1
00:00:06,642 --> 00:00:09,126
Welcome to staying connected, a podcast where I

2
00:00:09,126 --> 00:00:11,436
talk to people about their stories with feds,

3
00:00:11,835 --> 00:00:15,021
mar fan, louise s, and related vascular and

4
00:00:15,021 --> 00:00:16,670
aortic connective tissue condition

5
00:00:21,974 --> 00:00:24,685
The views, information and opinions in this podcast

6
00:00:24,685 --> 00:00:27,172
are those of the individuals involved the information

7
00:00:27,172 --> 00:00:30,041
presented does not constitute medical or other professional

8
00:00:30,041 --> 00:00:30,917
advice or services.

9
00:00:36,415 --> 00:00:36,549
For

10
00:00:37,546 --> 00:00:39,858
Welcome back to a new season of staying

11
00:00:39,858 --> 00:00:40,257
connected.

12
00:00:40,815 --> 00:00:43,128
This season, you'll hear from 7 people in

13
00:00:43,128 --> 00:00:46,330
our community about their stories with vets. Mar

14
00:00:46,330 --> 00:00:48,874
and Lo s, including 2 people who have

15
00:00:48,874 --> 00:00:51,839
a variant of uncertain significance or Vu us

16
00:00:51,975 --> 00:00:53,088
on call 3A1.

17
00:00:53,486 --> 00:00:55,076
The gene associated with beds.

18
00:00:55,887 --> 00:00:57,719
Today, we're gonna kick off the season by

19
00:00:57,719 --> 00:01:00,507
talking with Carlos Horn who is diagnosed with

20
00:01:00,507 --> 00:01:01,941
vets in 20 23.

21
00:01:02,673 --> 00:01:04,421
Before we get into the interview, I am

22
00:01:04,421 --> 00:01:06,487
very happy to share a new way to

23
00:01:06,487 --> 00:01:07,918
support the show. Merch.

24
00:01:08,633 --> 00:01:11,017
Saying connected now has merch.

25
00:01:11,669 --> 00:01:14,143
Including tote bags and t shirts and several

26
00:01:14,143 --> 00:01:16,618
different designs, which you can use to share

27
00:01:16,618 --> 00:01:19,492
your story or raise awareness about these conditions

28
00:01:19,492 --> 00:01:21,424
out and about, There will be a link

29
00:01:21,424 --> 00:01:23,265
to the store in the episode show notes

30
00:01:23,265 --> 00:01:25,424
and I expect more designs will be added

31
00:01:25,424 --> 00:01:27,504
as time goes on. If you like this

32
00:01:27,504 --> 00:01:29,831
show and you wanna help communities raise awareness

33
00:01:29,831 --> 00:01:32,297
of events, Marvin and Lo seats. You can

34
00:01:32,297 --> 00:01:35,081
also still join the Patreon. It's a fantastic

35
00:01:35,081 --> 00:01:37,005
way our support the podcast and the show

36
00:01:37,005 --> 00:01:39,391
wouldn't be possible without the continued support of

37
00:01:39,391 --> 00:01:42,095
my subscribers there. If you've already been supporting

38
00:01:42,095 --> 00:01:44,656
the show there, thank you. To Let's get

39
00:01:44,656 --> 00:01:45,292
into the interview.

40
00:01:51,193 --> 00:01:53,261
Thanks so much for joining the podcast to

41
00:01:53,261 --> 00:01:55,965
share your story with vascular Ehlers, Danlos syndrome

42
00:01:55,965 --> 00:01:57,873
or beds. Do you wanna introduce yourself to

43
00:01:57,873 --> 00:01:59,146
people who don't know you already?

44
00:01:59,878 --> 00:02:00,994
Sure. My name is Carlos.

45
00:02:01,712 --> 00:02:04,365
I'm 46. I was recently diagnosed with

46
00:02:04,742 --> 00:02:08,432
beds, vascular Ehlers danlos syndrome, and I'm from

47
00:02:08,982 --> 00:02:11,203
I was born some originally from Los Angeles,

48
00:02:11,600 --> 00:02:13,425
but I was lived in Arizona a lot

49
00:02:13,425 --> 00:02:15,646
of years. And you said that you were

50
00:02:15,646 --> 00:02:19,184
diagnosed recently, Like, how recently was this diagnosis?

51
00:02:20,756 --> 00:02:22,350
It was in the early part of last

52
00:02:22,350 --> 00:02:24,423
year, so 20 23.

53
00:02:25,793 --> 00:02:27,867
So how did this diagnosis come about for

54
00:02:27,867 --> 00:02:28,367
you

55
00:02:28,744 --> 00:02:29,701
at, like, you know,

56
00:02:30,418 --> 00:02:32,492
mid forties? Like, how how did this happen?

57
00:02:33,369 --> 00:02:34,565
So interesting thing.

58
00:02:35,059 --> 00:02:36,178
I I had a... I guess,

59
00:02:36,977 --> 00:02:39,933
The stroke when I was, what, 38. So

60
00:02:40,093 --> 00:02:41,531
was around 2016

61
00:02:41,531 --> 00:02:42,170
or 17.

62
00:02:42,504 --> 00:02:44,807
So roughly around 38 and went to the

63
00:02:44,807 --> 00:02:45,204
hospital,

64
00:02:45,839 --> 00:02:46,498
it wasn't

65
00:02:46,951 --> 00:02:48,857
a major stroke, but it was a stroke,

66
00:02:49,334 --> 00:02:50,367
you know, I was...

67
00:02:51,017 --> 00:02:52,923
Impair impair from any type of movement or

68
00:02:52,923 --> 00:02:54,512
anything for a few seconds, so it was

69
00:02:54,512 --> 00:02:55,068
pretty scary.

70
00:02:55,783 --> 00:02:58,325
But I've never experienced it, so I didn't

71
00:02:58,325 --> 00:02:59,834
think much of it because I was able

72
00:02:59,834 --> 00:03:00,334
to

73
00:03:00,724 --> 00:03:01,384
kind of

74
00:03:02,241 --> 00:03:04,476
catch my breath, catch myself, sit back down

75
00:03:04,476 --> 00:03:06,632
and kind of shake everything off after a

76
00:03:06,632 --> 00:03:09,107
few minutes and resting 15 20 minutes. So

77
00:03:09,107 --> 00:03:10,718
didn't think much of it, but I was

78
00:03:10,718 --> 00:03:12,707
having some other type of complications as far

79
00:03:12,707 --> 00:03:14,140
as my health goes, so I went to

80
00:03:14,140 --> 00:03:16,129
see the doctor about a week later and

81
00:03:16,129 --> 00:03:16,925
mentioned it, and

82
00:03:17,880 --> 00:03:19,153
we started running some,

83
00:03:20,044 --> 00:03:21,022
Well, he's he

84
00:03:21,718 --> 00:03:24,030
requested a bunch of... Away mris eyes and

85
00:03:24,030 --> 00:03:25,386
cat scans because of the stroke in my

86
00:03:25,386 --> 00:03:27,538
head and then... And saw it was a

87
00:03:27,538 --> 00:03:28,710
stroke, but

88
00:03:29,228 --> 00:03:31,564
again, he mentioned that it was it was

89
00:03:31,942 --> 00:03:33,379
small. He didn't really think nothing of it

90
00:03:33,379 --> 00:03:34,358
either. He just said

91
00:03:34,895 --> 00:03:37,210
possibly because of the scarring and it wasn't...

92
00:03:37,544 --> 00:03:40,278
There wasn't a major signs of it. But

93
00:03:40,735 --> 00:03:42,730
when I was also complaining about my other

94
00:03:42,730 --> 00:03:44,086
issues, I think it was stomach issues at

95
00:03:44,086 --> 00:03:46,649
that time. He had requested a full body

96
00:03:46,649 --> 00:03:47,286
scan and,

97
00:03:48,877 --> 00:03:49,832
forgot it at that time where those was

98
00:03:49,832 --> 00:03:51,582
cat scan or my both or whatever it

99
00:03:51,582 --> 00:03:53,897
was. But, later on, you had come back

100
00:03:53,897 --> 00:03:56,037
and mentioned that I had the aneurysms and

101
00:03:56,037 --> 00:03:56,829
also blood clots.

102
00:03:58,018 --> 00:03:58,518
So

103
00:03:59,619 --> 00:04:00,971
We dressed the blood clots. You put me

104
00:04:00,971 --> 00:04:02,880
on black thinner, but he just said let's

105
00:04:02,880 --> 00:04:03,119
progress.

106
00:04:04,392 --> 00:04:07,017
Let's keep progress on and let's keep... Hopefully

107
00:04:07,017 --> 00:04:09,421
it's progresses and the blood clots go away,

108
00:04:09,661 --> 00:04:11,336
take care of themselves and unless just keep

109
00:04:11,336 --> 00:04:12,851
an eye on you. But we didn't really

110
00:04:12,851 --> 00:04:15,084
get into any details, and and, you know,

111
00:04:15,244 --> 00:04:16,143
it it wasn't

112
00:04:16,759 --> 00:04:17,956
it it was more of, like,

113
00:04:19,242 --> 00:04:20,989
I guess because I was health I was

114
00:04:20,989 --> 00:04:23,212
healthy, and they didn't see much or a

115
00:04:23,212 --> 00:04:25,752
need of to check into it much further.

116
00:04:26,562 --> 00:04:28,074
We kinda put it on the back burner,

117
00:04:28,312 --> 00:04:30,381
just let's just monitor you. Right?

118
00:04:31,574 --> 00:04:34,295
I moved to Arizona and mike, insurance changed.

119
00:04:34,613 --> 00:04:36,603
So I had a couple different doctors between

120
00:04:36,603 --> 00:04:38,991
that point... At between that time period of

121
00:04:38,991 --> 00:04:40,287
me moving back to California,

122
00:04:41,714 --> 00:04:42,214
And

123
00:04:42,752 --> 00:04:44,289
when I moved back to California,

124
00:04:45,067 --> 00:04:46,663
you know, I... Again, I was healthy. So

125
00:04:46,743 --> 00:04:48,420
I was always I was into the gym,

126
00:04:48,579 --> 00:04:50,495
I was I in crossfit. I was hitting

127
00:04:50,495 --> 00:04:51,864
hard pretty good at that time for about

128
00:04:51,864 --> 00:04:53,216
a year straight, going 4 or 5 days

129
00:04:53,216 --> 00:04:53,534
a week.

130
00:04:54,488 --> 00:04:56,158
I was watching my nutrition. So I was...

131
00:04:56,397 --> 00:04:58,544
To myself, I I was doing At the

132
00:04:58,544 --> 00:04:59,021
same time.

133
00:04:59,594 --> 00:05:00,869
I was I was healthy. I was like,

134
00:05:00,949 --> 00:05:02,463
okay. I'm on top of, I feel young.

135
00:05:02,623 --> 00:05:04,536
I feel good. Yeah. And all of a

136
00:05:04,536 --> 00:05:07,486
sudden, I I didn't at 1 time. I

137
00:05:07,486 --> 00:05:09,650
just came to me. I I didn't feel

138
00:05:09,650 --> 00:05:11,401
good at all, like, terrible, and I had

139
00:05:11,401 --> 00:05:12,378
no reason why

140
00:05:13,231 --> 00:05:14,822
I didn't know why I was feeling bad.

141
00:05:15,061 --> 00:05:16,671
I just was, and it was feeling really

142
00:05:16,671 --> 00:05:18,186
bad. Some, like, a bad hangover.

143
00:05:19,303 --> 00:05:20,738
And I was going on for a couple

144
00:05:20,738 --> 00:05:22,573
of days. My sister suggests to go to

145
00:05:22,573 --> 00:05:24,407
the hospital or go tell my doctor checked

146
00:05:24,407 --> 00:05:26,740
for the blood clots. She's a nurse. So

147
00:05:26,740 --> 00:05:28,259
she said ask about the gl clots and

148
00:05:28,259 --> 00:05:29,300
check into all that stuff.

149
00:05:30,100 --> 00:05:32,019
And I ended up calling and they sent

150
00:05:32,019 --> 00:05:34,673
me to urgent care instead. So went into

151
00:05:34,673 --> 00:05:36,669
urgent care, and my blood pressure's is really

152
00:05:36,669 --> 00:05:39,703
high, and, I mean, extremely high. And, you

153
00:05:39,703 --> 00:05:41,299
know, before that, I had a a couple

154
00:05:41,299 --> 00:05:43,295
of blood pressure problems. I mean, it wasn't...

155
00:05:44,189 --> 00:05:45,248
Major wasn't

156
00:05:45,707 --> 00:05:47,146
where they were like, oh, well, you know,

157
00:05:47,226 --> 00:05:48,185
we need to put you on blood pressure

158
00:05:48,185 --> 00:05:49,783
measures it's more like you know, loose weight,

159
00:05:50,342 --> 00:05:51,381
or, you know if you keep up the

160
00:05:51,381 --> 00:05:52,500
weight and keep up the high blood pressure.

161
00:05:52,660 --> 00:05:54,355
We may need to chu is, but I

162
00:05:54,355 --> 00:05:54,915
lost the weight.

163
00:05:55,634 --> 00:05:57,714
So we didn't, see no need and also,

164
00:05:57,955 --> 00:05:59,875
a lot of times, they would take my

165
00:05:59,875 --> 00:06:01,555
blood pressure and then wait and then take

166
00:06:01,555 --> 00:06:02,754
it again, it would be down.

167
00:06:03,408 --> 00:06:04,945
And so we kinda just

168
00:06:05,641 --> 00:06:07,237
blew it off. Right? Yeah.

169
00:06:08,034 --> 00:06:08,534
So

170
00:06:09,550 --> 00:06:10,985
I go to the doctor at that point,

171
00:06:11,384 --> 00:06:12,341
urgent care and

172
00:06:13,313 --> 00:06:14,188
They're just feeling bad.

173
00:06:14,904 --> 00:06:16,654
So basically, at that point,

174
00:06:17,529 --> 00:06:19,041
I think at that time, I was working

175
00:06:19,041 --> 00:06:21,125
with the nurse, and she had mentioned that,

176
00:06:21,284 --> 00:06:22,796
okay. She gave me some aspirin. She's like,

177
00:06:22,876 --> 00:06:23,831
well, we may need to put you on

178
00:06:23,831 --> 00:06:25,502
blood pressure medicines, but let's monitor it.

179
00:06:26,218 --> 00:06:27,651
Let's just see if it's a 1 time.

180
00:06:28,144 --> 00:06:30,461
Go home, make sure you rest.

181
00:06:31,580 --> 00:06:33,817
And then if it's high again, come back

182
00:06:33,817 --> 00:06:35,415
in, and then we'll see Bug you into

183
00:06:35,415 --> 00:06:36,629
the doc and see if we can get

184
00:06:36,629 --> 00:06:38,227
you on some blood pressure medicine because we

185
00:06:38,227 --> 00:06:38,786
can see that,

186
00:06:39,825 --> 00:06:40,225
you know,

187
00:06:41,104 --> 00:06:42,463
obviously, losing weights it's not gonna fix it

188
00:06:42,463 --> 00:06:44,061
because you're not obese. I mean, I was

189
00:06:44,061 --> 00:06:45,913
a little overweight, But, I mean, nothing to

190
00:06:45,913 --> 00:06:47,350
the point where would they have to worry

191
00:06:47,350 --> 00:06:47,669
about it.

192
00:06:49,186 --> 00:06:50,942
The next day, it was literally the next

193
00:06:50,942 --> 00:06:52,379
day I just felt, like, terrible.

194
00:06:53,018 --> 00:06:55,589
It's hard to explain it. If if you

195
00:06:55,589 --> 00:06:58,310
have really, really hard blood pressure, you would

196
00:06:58,310 --> 00:06:59,430
know it and understand it,

197
00:07:00,150 --> 00:07:00,949
but it's like,

198
00:07:01,924 --> 00:07:04,721
you feel really out of energy tired,

199
00:07:05,440 --> 00:07:06,719
exhausted. Like, you really don't wanna get out

200
00:07:06,719 --> 00:07:09,116
of bed then kind of, like, not too

201
00:07:09,116 --> 00:07:10,555
bad of a hangover, but really, like,

202
00:07:11,689 --> 00:07:13,526
light handed. I wanna say, maybe, I don't

203
00:07:13,526 --> 00:07:15,045
know it's hard it's stuff to explain the

204
00:07:15,045 --> 00:07:16,083
the feeling physically.

205
00:07:17,042 --> 00:07:19,200
But I felt just bad and I I

206
00:07:19,200 --> 00:07:21,055
just... Told my sister, you know, I'm gonna

207
00:07:21,055 --> 00:07:22,975
go, and I called him... I called the

208
00:07:23,134 --> 00:07:24,115
Kaiser and

209
00:07:24,495 --> 00:07:26,435
the nurse and the nurse come into

210
00:07:27,295 --> 00:07:28,975
immediately. So I went into the. And That

211
00:07:28,975 --> 00:07:30,186
was the doctor that...

212
00:07:30,904 --> 00:07:32,659
So thank him. I I thank him and

213
00:07:32,818 --> 00:07:34,333
I appreciate he was there. That was the

214
00:07:34,333 --> 00:07:35,392
doctor that kind of

215
00:07:35,849 --> 00:07:38,162
opened my eyes and and said, you know,

216
00:07:38,720 --> 00:07:40,330
the he came in with my chart and

217
00:07:40,330 --> 00:07:42,005
said immediately off the bat. Before we even

218
00:07:42,005 --> 00:07:43,281
did anything. He's well, you had a stroke.

219
00:07:43,520 --> 00:07:44,876
He should be on aspirin and you should

220
00:07:44,876 --> 00:07:46,392
be on high blood pressure medicine, you we

221
00:07:46,392 --> 00:07:47,748
should be monitoring. You should be on a

222
00:07:47,748 --> 00:07:50,156
preventive maintenance plan. And whatnot. And I'm like,

223
00:07:50,236 --> 00:07:51,832
okay, and maybe I should be, but, you

224
00:07:51,832 --> 00:07:53,427
know, I'm not a doctor. You know.

225
00:07:54,305 --> 00:07:55,821
How much time was between?

226
00:07:56,874 --> 00:07:59,932
When those... Because you you mentioned these aneurysms

227
00:08:01,110 --> 00:08:02,089
that they found

228
00:08:02,868 --> 00:08:03,188
before.

229
00:08:03,987 --> 00:08:06,145
And then you moved Right to Arizona,

230
00:08:07,117 --> 00:08:09,609
And then eventually, you moved back to California,

231
00:08:10,463 --> 00:08:11,919
and that takes us to where,

232
00:08:12,375 --> 00:08:13,491
you know, you're having this.

233
00:08:14,144 --> 00:08:16,061
Experience that you're talking about now and you're

234
00:08:16,061 --> 00:08:18,298
in the hospital, and this doctor's like, whoa,

235
00:08:18,938 --> 00:08:21,195
hey, there's a stroke in your chart. There's

236
00:08:21,508 --> 00:08:24,233
aneurysms in your chart, like, how much time

237
00:08:24,607 --> 00:08:25,720
is between these events.

238
00:08:26,753 --> 00:08:29,614
So that all... That diagnosis and what I

239
00:08:29,614 --> 00:08:31,702
was working with... My doctor at that time

240
00:08:31,702 --> 00:08:33,161
was in 2017,

241
00:08:34,499 --> 00:08:35,537
between 2017

242
00:08:35,537 --> 00:08:36,735
and 2018,

243
00:08:37,709 --> 00:08:39,624
So roughly around 4 and a half almost

244
00:08:39,624 --> 00:08:42,497
5 years. Yeah. So continue then. I just

245
00:08:42,497 --> 00:08:43,694
wanted to get a... I wanted to get

246
00:08:43,694 --> 00:08:45,450
a better understanding of that time.

247
00:08:46,182 --> 00:08:48,731
That time span, and then we'll we'll talk

248
00:08:48,731 --> 00:08:49,549
more about

249
00:08:50,323 --> 00:08:51,062
the aneurysms.

250
00:08:51,916 --> 00:08:54,305
Yes. So, at that point, he said he

251
00:08:54,305 --> 00:08:56,236
want me... He... He put me on... He

252
00:08:56,236 --> 00:08:57,034
came he come in.

253
00:08:57,992 --> 00:08:59,030
He wants me to rest.

254
00:08:59,589 --> 00:09:01,265
They put me on blood pressure medicine,

255
00:09:02,303 --> 00:09:04,789
and he said, on An aspirin every day,

256
00:09:04,948 --> 00:09:06,380
1 aspirin a day in your blood pressure

257
00:09:06,380 --> 00:09:08,607
medicine, keep on that, and let's bring you

258
00:09:08,607 --> 00:09:09,482
in for a,

259
00:09:10,357 --> 00:09:11,645
checkup up you know, in a couple of

260
00:09:11,645 --> 00:09:12,919
weeks. He was I want you to follow

261
00:09:12,919 --> 00:09:14,671
up with your primary care because we need

262
00:09:14,671 --> 00:09:15,944
to look into this a little further.

263
00:09:16,581 --> 00:09:18,094
So I says, okay, You know, he was

264
00:09:18,094 --> 00:09:19,543
give it a couple of weeks, So a

265
00:09:19,543 --> 00:09:20,900
couple of weeks went by, but, you know,

266
00:09:21,299 --> 00:09:22,735
is the first time I ever taken blood

267
00:09:22,735 --> 00:09:24,889
pressure medicine, so I kind of went through

268
00:09:24,889 --> 00:09:27,296
the motions of that. And when you take

269
00:09:27,296 --> 00:09:30,080
blood pressure medicines, some don't react well with

270
00:09:30,080 --> 00:09:30,318
you.

271
00:09:31,114 --> 00:09:32,705
So, you know, the first 1 was I

272
00:09:32,705 --> 00:09:34,216
was just having migraine headaches, I never had

273
00:09:34,216 --> 00:09:36,464
in my life the worse. Like the absolute

274
00:09:36,464 --> 00:09:36,784
worst.

275
00:09:37,745 --> 00:09:39,504
So we kinda played around with different... A

276
00:09:39,504 --> 00:09:42,144
couple of different medicines, couple different dosages until

277
00:09:42,144 --> 00:09:43,745
we got this 1. And finally, I can

278
00:09:43,745 --> 00:09:44,784
take this 1 and function,

279
00:09:45,835 --> 00:09:47,267
without issues. And that went on for a

280
00:09:47,267 --> 00:09:49,017
few weeks until I started feeling better.

281
00:09:49,653 --> 00:09:51,585
So I finally ended up taking that medicine

282
00:09:52,372 --> 00:09:54,833
and kind of adapting to it, acc acclimated

283
00:09:54,833 --> 00:09:55,389
to everything.

284
00:09:55,865 --> 00:09:57,850
And then I followed up with my primary,

285
00:09:58,168 --> 00:09:59,700
and we went in and

286
00:10:00,009 --> 00:10:01,927
We had a couple visits, and we talked

287
00:10:01,927 --> 00:10:03,685
about what happened, and they were going over

288
00:10:03,685 --> 00:10:04,904
my charts. And

289
00:10:05,762 --> 00:10:08,253
at that point, it was, like, okay. My

290
00:10:08,253 --> 00:10:10,005
primary says, let's go ahead and he was...

291
00:10:10,085 --> 00:10:11,598
It they said it's been a while since

292
00:10:11,598 --> 00:10:12,952
we've had your scans.

293
00:10:13,510 --> 00:10:15,342
Let's go ahead and do the complete body

294
00:10:15,342 --> 00:10:16,935
scan again that you had 5 years ago.

295
00:10:17,269 --> 00:10:18,940
Wanna see what's going on with that, because

296
00:10:18,940 --> 00:10:20,214
we do see that she's had a bunch

297
00:10:20,214 --> 00:10:22,204
of aneurysms, No one's ever really addressed that.

298
00:10:23,079 --> 00:10:24,592
So I do the body scans.

299
00:10:25,722 --> 00:10:28,115
And we come back. And a couple of

300
00:10:28,115 --> 00:10:31,146
doctors, different doctors, primaries I've had in that

301
00:10:31,146 --> 00:10:33,060
time period because at times, you can't always

302
00:10:33,060 --> 00:10:34,416
see the same doctor right in the office.

303
00:10:34,656 --> 00:10:37,294
So they were collaborating, I guess or whatnot.

304
00:10:37,453 --> 00:10:38,485
So I would go see the other 1,

305
00:10:38,724 --> 00:10:41,028
and they came to consensus of we're gonna

306
00:10:41,028 --> 00:10:41,981
send you to a specialist.

307
00:10:42,711 --> 00:10:44,643
So they sent me to a vascular specialist

308
00:10:45,495 --> 00:10:45,995
and

309
00:10:46,528 --> 00:10:49,312
the vascular specialist in Riverside. She really knows

310
00:10:49,312 --> 00:10:51,538
her stuff. She's really good to pleasant to

311
00:10:51,538 --> 00:10:51,936
work with.

312
00:10:52,749 --> 00:10:54,427
And really thorough, is she kept she asked

313
00:10:54,427 --> 00:10:56,584
for as as many... As much as she

314
00:10:56,584 --> 00:10:58,763
could as far as ultrasound of my stomach

315
00:10:58,822 --> 00:11:00,180
cat scans, Mri.

316
00:11:01,474 --> 00:11:03,972
It be as much as she could without

317
00:11:04,111 --> 00:11:06,109
putting me in in more danger right because

318
00:11:06,109 --> 00:11:08,027
of all the radiation and whatnot. So she

319
00:11:08,027 --> 00:11:09,785
wanted to limit the the type of rays

320
00:11:09,785 --> 00:11:11,475
and and how many I got But she

321
00:11:11,475 --> 00:11:13,064
got as much as she could and much

322
00:11:13,064 --> 00:11:14,335
information she comes back and says,

323
00:11:15,130 --> 00:11:15,448
you know,

324
00:11:17,116 --> 00:11:19,754
I see there's stuff going on, but And

325
00:11:19,914 --> 00:11:22,149
I have... She goes... It's like AAA shot

326
00:11:22,149 --> 00:11:23,746
on to left field. I wanna send you

327
00:11:23,746 --> 00:11:25,422
to a genetic specialist because I wanna have

328
00:11:25,422 --> 00:11:26,779
you scan or I want to have you

329
00:11:26,779 --> 00:11:28,136
tested for or for something.

330
00:11:29,429 --> 00:11:29,929
And

331
00:11:30,549 --> 00:11:32,230
I don't... You know, at that point, I'm

332
00:11:32,389 --> 00:11:34,169
I'm, like, I'm listening, but

333
00:11:34,709 --> 00:11:36,389
I'm I'm zoning some of the stuff out

334
00:11:36,389 --> 00:11:38,149
just because of fear I guess, or what

335
00:11:38,149 --> 00:11:39,920
it may be? Maybe some type of fear,

336
00:11:40,079 --> 00:11:41,355
So I know something's wrong with me, but

337
00:11:41,435 --> 00:11:43,587
I'm not comprehend handing of the details of

338
00:11:43,587 --> 00:11:45,978
it, and I'm not wanting to soak in

339
00:11:45,978 --> 00:11:48,226
what she's telling me. I'm just hearing the

340
00:11:48,226 --> 00:11:49,902
direction of, like, okay. I'll need to go

341
00:11:49,902 --> 00:11:51,419
to the stop and get tested or whatnot.

342
00:11:52,536 --> 00:11:53,036
So

343
00:11:53,733 --> 00:11:55,582
I'm not sure if she actually ex... Blame

344
00:11:55,582 --> 00:11:56,855
to me and what she was gonna test

345
00:11:56,855 --> 00:11:57,514
me for

346
00:11:58,048 --> 00:11:59,264
exactly. And

347
00:11:59,798 --> 00:12:01,093
the details of it

348
00:12:01,468 --> 00:12:02,997
because I had no clue of of beds,

349
00:12:03,157 --> 00:12:04,752
and I've never heard of it before or

350
00:12:04,752 --> 00:12:05,150
anything.

351
00:12:06,108 --> 00:12:07,942
So she just told me she was gonna

352
00:12:07,942 --> 00:12:09,457
send it to me and what she said

353
00:12:09,457 --> 00:12:11,451
after that was kind of 1 at the

354
00:12:11,451 --> 00:12:11,691
other.

355
00:12:13,058 --> 00:12:15,441
So basically, at that point, it's wait for

356
00:12:15,441 --> 00:12:17,666
the genetic specialist office to call me, set

357
00:12:17,666 --> 00:12:19,096
up an appointment and go see them.

358
00:12:19,986 --> 00:12:22,375
This was probably probably March, I believe or

359
00:12:22,614 --> 00:12:22,773
April.

360
00:12:23,490 --> 00:12:25,003
I think it was April. I actually got

361
00:12:25,003 --> 00:12:27,152
tested and then May when they told me.

362
00:12:27,884 --> 00:12:29,401
So I I waited a couple of weeks.

363
00:12:29,561 --> 00:12:31,956
They call me, and I I get in,

364
00:12:32,914 --> 00:12:35,091
I get an appointment scheduled and I go

365
00:12:35,229 --> 00:12:37,225
to the genetic specialist in Kaiser.

366
00:12:37,799 --> 00:12:39,710
And we sit down and we talk, and

367
00:12:39,710 --> 00:12:40,427
he tells me,

368
00:12:41,941 --> 00:12:44,330
and he explains to me again on what

369
00:12:44,330 --> 00:12:46,082
it is. He he didn't actually tell me

370
00:12:46,082 --> 00:12:49,436
that, like, the medical terms and the medical

371
00:12:49,436 --> 00:12:51,740
names and the references of what it was

372
00:12:51,740 --> 00:12:52,852
he was testing me for.

373
00:12:53,567 --> 00:12:55,039
He just said there was vascular

374
00:12:55,340 --> 00:12:56,620
diseases that a couple of them that he

375
00:12:56,620 --> 00:12:57,659
wanted me to test for.

376
00:12:58,620 --> 00:13:00,379
That might be an issue. That might be

377
00:13:00,379 --> 00:13:02,220
the cause of this, without getting into too

378
00:13:02,220 --> 00:13:02,995
much detail

379
00:13:03,751 --> 00:13:05,127
you know, he mentioned that

380
00:13:05,742 --> 00:13:07,414
because I I looked out... I was so

381
00:13:07,414 --> 00:13:10,122
healthy. I looked healthy previously that I didn't

382
00:13:10,122 --> 00:13:11,338
show signs of

383
00:13:11,889 --> 00:13:15,154
or symptoms of of of that genetic disease.

384
00:13:16,030 --> 00:13:17,543
But, you know, it's it's funny. I look

385
00:13:17,543 --> 00:13:18,579
at it now, and I think you and

386
00:13:18,658 --> 00:13:20,592
I had this conversation before and

387
00:13:20,984 --> 00:13:22,740
And when you had sent it mentioned skin

388
00:13:22,740 --> 00:13:24,416
breaking, I I think back now and I

389
00:13:24,416 --> 00:13:25,214
was like, you know when I was said,

390
00:13:25,294 --> 00:13:27,050
and I told you about the bee being

391
00:13:27,050 --> 00:13:28,647
allergic the chalk, the chalk issue when I

392
00:13:28,647 --> 00:13:29,206
was in school.

393
00:13:29,938 --> 00:13:31,610
Well when I reached to touch chalk, I

394
00:13:31,610 --> 00:13:33,361
maybe been in for a second grade, and

395
00:13:33,361 --> 00:13:35,112
we had chalkboard, and we'd ride on the

396
00:13:35,112 --> 00:13:36,624
chalkboard. I'd go home a couple digging get

397
00:13:36,624 --> 00:13:39,426
my skin would break. Yeah. My fingertips, and

398
00:13:39,426 --> 00:13:41,519
my my mom would actually have to put

399
00:13:41,736 --> 00:13:43,489
cream on my hands and gloves.

400
00:13:44,047 --> 00:13:44,547
But

401
00:13:45,241 --> 00:13:46,596
no. There was no knowledge of that.

402
00:13:47,328 --> 00:13:49,162
You know, but that's what used to happen.

403
00:13:50,039 --> 00:13:50,539
So

404
00:13:51,076 --> 00:13:52,750
he goes, I'm gonna test you for it

405
00:13:52,750 --> 00:13:54,345
for some stuff, and we're gonna come back.

406
00:13:54,585 --> 00:13:55,621
And and and I asked him message as,

407
00:13:55,701 --> 00:13:57,069
well, what is... Do you guys test for?

408
00:13:57,388 --> 00:13:58,342
He goes, well we test for a lot

409
00:13:58,342 --> 00:13:59,615
of... They're they're gonna test you for a

410
00:13:59,615 --> 00:14:01,206
lot of stuff. So what's gonna happen is

411
00:14:01,206 --> 00:14:02,956
if you come up and you're alerted for...

412
00:14:03,289 --> 00:14:06,871
A specific gene, it'll show positive. Right? And

413
00:14:06,951 --> 00:14:07,508
I says, okay.

414
00:14:08,225 --> 00:14:09,737
So I got that call a couple of

415
00:14:09,737 --> 00:14:11,034
weeks later, and

416
00:14:11,983 --> 00:14:13,099
Yeah. Yeah It was him.

417
00:14:14,615 --> 00:14:15,811
So he called me in 1 of to

418
00:14:15,811 --> 00:14:17,167
talked about my results. I go into the

419
00:14:17,167 --> 00:14:18,842
office, and he starts telling me that I

420
00:14:18,842 --> 00:14:19,502
was positive

421
00:14:20,118 --> 00:14:21,177
for this

422
00:14:21,886 --> 00:14:23,875
And again, I had no knowledge of it.

423
00:14:24,750 --> 00:14:26,023
You know, I I didn't know what it

424
00:14:26,023 --> 00:14:28,091
was. I didn't know any details about it.

425
00:14:28,744 --> 00:14:29,463
Never heard of it.

426
00:14:30,502 --> 00:14:31,541
So I I just...

427
00:14:32,899 --> 00:14:34,737
I I stood in silence really, I didn't

428
00:14:34,737 --> 00:14:35,296
know how to,

429
00:14:36,747 --> 00:14:38,655
digested. I digest the information.

430
00:14:39,370 --> 00:14:40,721
What did he tell you about it?

431
00:14:41,755 --> 00:14:44,219
You know, he he he was pretty empathetic.

432
00:14:44,378 --> 00:14:45,593
You know, he was it was

433
00:14:45,985 --> 00:14:48,304
he was... He broke the news well. I

434
00:14:48,304 --> 00:14:48,945
mean, I can say,

435
00:14:50,384 --> 00:14:52,325
kept it, you know, as far as

436
00:14:53,197 --> 00:14:54,232
you know, I know this isn't what you

437
00:14:54,232 --> 00:14:56,223
wanna hear. I'm sorry, but, you know, this

438
00:14:56,223 --> 00:14:57,974
is is something that's... It's a vascular issue,

439
00:14:58,133 --> 00:14:59,885
and he started saying, he he told me

440
00:14:59,885 --> 00:15:01,813
a little bit about it. As far as,

441
00:15:01,893 --> 00:15:03,252
you know, it... Basically what it does is

442
00:15:03,252 --> 00:15:05,729
it makes your bay... Your your veins or

443
00:15:05,729 --> 00:15:06,229
arteries

444
00:15:06,608 --> 00:15:09,165
weak, You know, didn't go into much details

445
00:15:09,165 --> 00:15:09,405
about it.

446
00:15:10,139 --> 00:15:11,576
And the name of it. And then he

447
00:15:11,576 --> 00:15:13,252
told me, you know, you need to change

448
00:15:13,252 --> 00:15:13,752
your

449
00:15:15,089 --> 00:15:17,903
lifestyle to accommodate this, and you need to

450
00:15:18,282 --> 00:15:19,101
make sure

451
00:15:19,493 --> 00:15:21,006
you're keeping on top of it.

452
00:15:21,881 --> 00:15:23,155
And I'm like, what do you mean change

453
00:15:23,155 --> 00:15:24,508
my lifestyle. You know, he goes was, like,

454
00:15:24,667 --> 00:15:26,498
you immediately gotta stop the crossfit. You can't

455
00:15:26,498 --> 00:15:28,187
do that anymore. He you can't way live.

456
00:15:28,346 --> 00:15:30,100
And I'm like, you talking about. So, basically,

457
00:15:30,260 --> 00:15:32,094
I I can't live in normal life, and,

458
00:15:32,253 --> 00:15:33,768
you know, he told me this way you've

459
00:15:33,768 --> 00:15:34,885
been living a normal life.

460
00:15:35,523 --> 00:15:36,023
But

461
00:15:37,293 --> 00:15:39,530
you gotta make a few adjustments to as

462
00:15:39,530 --> 00:15:41,388
you're gonna get older. And

463
00:15:41,767 --> 00:15:44,416
at that point, that's, you know, when the

464
00:15:44,416 --> 00:15:46,646
grief... That's when it kinda started sinking in.

465
00:15:47,204 --> 00:15:47,443
You know,

466
00:15:49,354 --> 00:15:51,505
luckily enough my vascular surgeon called me an

467
00:15:51,505 --> 00:15:53,831
after hey got tested it and they found

468
00:15:53,831 --> 00:15:54,070
out.

469
00:15:54,788 --> 00:15:57,760
And she gave me some more details about

470
00:15:58,456 --> 00:16:01,008
about beds and whatnot and about what it

471
00:16:01,008 --> 00:16:01,987
is and and

472
00:16:02,459 --> 00:16:04,373
you know, what to do and and as

473
00:16:04,373 --> 00:16:05,112
far as

474
00:16:05,569 --> 00:16:08,062
what not to do. But the thing is

475
00:16:08,838 --> 00:16:10,592
I still felt like I knew nothing,

476
00:16:11,804 --> 00:16:14,117
I... I knew absolutely nothing about it. It's

477
00:16:14,117 --> 00:16:14,276
like,

478
00:16:15,473 --> 00:16:17,148
yeah. You're telling me I can't wait left.

479
00:16:17,307 --> 00:16:18,902
Yeah. You're telling me I can't crossfit. You're

480
00:16:18,902 --> 00:16:20,737
telling me. I can't go and jog anymore.

481
00:16:21,629 --> 00:16:22,986
Or I can jog, it has to be

482
00:16:22,986 --> 00:16:23,864
very, very lightly,

483
00:16:24,503 --> 00:16:26,897
and it can be not, you know, no

484
00:16:26,897 --> 00:16:29,531
marathons or anything like that. So you're basically

485
00:16:29,531 --> 00:16:30,031
taking

486
00:16:30,423 --> 00:16:32,815
everything I wanna do, and I can't do

487
00:16:32,815 --> 00:16:33,293
it why?

488
00:16:34,010 --> 00:16:35,445
Why can't I I because my orders are

489
00:16:35,445 --> 00:16:37,756
weak. So what? Okay? What's gonna happen?

490
00:16:38,329 --> 00:16:39,919
You know, I I didn't know the details

491
00:16:39,919 --> 00:16:41,930
about it. I just knew that

492
00:16:42,781 --> 00:16:44,053
that's what... The way it was.

493
00:16:45,246 --> 00:16:45,723
How did that...

494
00:16:46,533 --> 00:16:48,280
What did that feel? Like, how did you

495
00:16:48,280 --> 00:16:50,583
move forward with that? Because... I mean, like

496
00:16:50,583 --> 00:16:52,886
you point out, you had been doing crossfit.

497
00:16:53,124 --> 00:16:55,427
You were active, You were weight lifting.

498
00:16:56,000 --> 00:16:58,559
I mean, even years before when you were

499
00:16:58,559 --> 00:17:01,039
diagnosed with these aneurysms and then had the

500
00:17:01,039 --> 00:17:02,959
stroke or the mini stroke. Like,

501
00:17:03,694 --> 00:17:05,047
You know, at that time, they were just...

502
00:17:05,206 --> 00:17:06,081
It seems like,

503
00:17:07,036 --> 00:17:08,787
okay. You had these things. We're not gonna

504
00:17:08,787 --> 00:17:09,582
look into it,

505
00:17:10,537 --> 00:17:13,336
you know, and mer, you go along. Your

506
00:17:13,336 --> 00:17:14,631
way. And

507
00:17:15,482 --> 00:17:17,627
then this time, it's totally different.

508
00:17:18,819 --> 00:17:20,726
Like, how did you move forward from that?

509
00:17:23,206 --> 00:17:23,706
So

510
00:17:24,240 --> 00:17:25,138
I think the

511
00:17:25,831 --> 00:17:28,218
the the the immediate,

512
00:17:29,188 --> 00:17:29,825
Time period,

513
00:17:30,622 --> 00:17:32,613
I I didn't take it well. It was

514
00:17:32,613 --> 00:17:33,967
more of 1 of those things of...

515
00:17:35,560 --> 00:17:36,993
I didn't take it as serious as I

516
00:17:36,993 --> 00:17:37,471
should have.

517
00:17:38,444 --> 00:17:39,325
I I just was like,

518
00:17:40,044 --> 00:17:41,884
okay. You know, maybe I won't do the

519
00:17:41,884 --> 00:17:43,244
cross here, but I also still do things

520
00:17:43,244 --> 00:17:44,605
and, like, it's not a big deal. I've

521
00:17:44,605 --> 00:17:45,804
lived this long and I'm healthy.

522
00:17:46,845 --> 00:17:47,345
And

523
00:17:47,976 --> 00:17:49,111
that's not the case

524
00:17:49,563 --> 00:17:52,180
at all, you know, because what happened while

525
00:17:52,260 --> 00:17:52,894
I did that,

526
00:17:53,767 --> 00:17:54,957
you know, I I wound up in the

527
00:17:54,957 --> 00:17:55,591
hospital again.

528
00:17:56,242 --> 00:17:58,233
I think in January or what it was.

529
00:17:58,472 --> 00:17:59,427
I think it was January.

530
00:18:00,064 --> 00:18:01,918
I went up in the hospital, and

531
00:18:02,772 --> 00:18:03,886
that doctor was like,

532
00:18:04,380 --> 00:18:05,980
and it was in... I was in visiting

533
00:18:05,980 --> 00:18:07,420
in Mexico at the time, so I wound

534
00:18:07,420 --> 00:18:08,700
up in the hospital in Mexico even.

535
00:18:09,339 --> 00:18:11,579
And that same day because I was throwing

536
00:18:11,579 --> 00:18:12,460
a blood. They did a...

537
00:18:13,354 --> 00:18:15,030
Cat scan on my stomach. I had told

538
00:18:15,030 --> 00:18:16,626
the doctor. Well, I didn't tell the doctor

539
00:18:16,786 --> 00:18:19,260
I told the nurse, but when they took

540
00:18:19,260 --> 00:18:20,936
my rays, he came back in and he

541
00:18:20,936 --> 00:18:23,021
goes, you got he they immediately knew. They

542
00:18:23,021 --> 00:18:24,451
didn't even... It didn't take them weeks or

543
00:18:24,451 --> 00:18:27,311
anything. That doctor. That doctor was older. So

544
00:18:27,311 --> 00:18:28,583
he had much more experience.

545
00:18:29,553 --> 00:18:31,466
And because he was a lot older. So

546
00:18:31,625 --> 00:18:33,219
I'm sure he's seen a lot more than

547
00:18:33,219 --> 00:18:34,494
some of the doctors Was working with here.

548
00:18:35,291 --> 00:18:37,779
And from it from the sounds of it.

549
00:18:38,019 --> 00:18:39,380
He had been exposed to a lot more

550
00:18:39,380 --> 00:18:40,900
and worked in a lot of other areas

551
00:18:40,900 --> 00:18:41,460
in the world.

552
00:18:42,420 --> 00:18:44,420
So... But he immediately knew. I mean, he

553
00:18:44,420 --> 00:18:45,755
told me he goes you have a vast

554
00:18:46,115 --> 00:18:47,474
disease, and he was in it's very rare,

555
00:18:48,035 --> 00:18:49,154
and I go, yeah. Got it.

556
00:18:49,954 --> 00:18:52,755
And he was you shouldn't be cute He

557
00:18:52,755 --> 00:18:54,761
started like you should not be drinking. She

558
00:18:54,761 --> 00:18:56,187
should not be partying, she should not be

559
00:18:56,187 --> 00:18:59,039
doing not eating he was don't chili. You

560
00:18:59,039 --> 00:19:00,465
know, he goes, what's wrong with you and

561
00:19:00,544 --> 00:19:02,148
I go, be Well, I I just found

562
00:19:02,148 --> 00:19:03,580
out last year and he goes not. And

563
00:19:03,580 --> 00:19:05,409
and so he explained to me. So I

564
00:19:05,409 --> 00:19:08,375
wound up in the hospital for Hiatus hiatus

565
00:19:08,432 --> 00:19:10,516
hernia. Hiatus Hernia. So I had a hernia

566
00:19:10,516 --> 00:19:12,587
on my stomach. And it's funny. I mission

567
00:19:12,587 --> 00:19:13,486
that, and

568
00:19:14,738 --> 00:19:15,933
I met a nurse later,

569
00:19:16,730 --> 00:19:18,654
so that had told me that is was

570
00:19:18,654 --> 00:19:20,722
common amongst individual events, and I was like,

571
00:19:20,802 --> 00:19:22,711
oh, wow. III would've have never even known

572
00:19:22,711 --> 00:19:24,143
that. So that's why how I... I wound

573
00:19:24,143 --> 00:19:25,597
the pen hospital Mexico and

574
00:19:25,989 --> 00:19:27,268
What happened was son I had the hernia

575
00:19:27,507 --> 00:19:28,786
and I threw up the blood, he had

576
00:19:28,786 --> 00:19:31,104
explained to me. He was... Your your lighter

577
00:19:31,104 --> 00:19:32,942
your blood vessels burst. You had all those...

578
00:19:33,101 --> 00:19:35,351
There... Then those are aneurysms. Right? He said

579
00:19:35,351 --> 00:19:37,019
they just burst it. That's what happened.

580
00:19:37,654 --> 00:19:38,607
So that makes sense.

581
00:19:39,481 --> 00:19:41,546
So at that time, I I start taking

582
00:19:41,546 --> 00:19:43,109
stuff serious and I said says, okay. So

583
00:19:43,309 --> 00:19:44,984
I I came back from vacation, and I

584
00:19:44,984 --> 00:19:47,855
buckled down, and I started going into the

585
00:19:47,855 --> 00:19:49,131
doctor and let him know I have the

586
00:19:49,131 --> 00:19:50,110
hernia and,

587
00:19:50,567 --> 00:19:52,162
you know, we started

588
00:19:53,614 --> 00:19:56,650
just focusing on me and just keeping up

589
00:19:56,650 --> 00:19:58,808
with my vascular surgeon, and my vascular surgeon.

590
00:19:59,207 --> 00:20:00,486
When I had told her about it, she

591
00:20:00,486 --> 00:20:00,645
goes,

592
00:20:01,778 --> 00:20:03,922
I'm gonna put you on a plan every

593
00:20:03,922 --> 00:20:06,622
year, we're gonna do full body scans once

594
00:20:06,622 --> 00:20:09,163
a year for you. So I did that

595
00:20:09,163 --> 00:20:11,323
this year and I think March. What it

596
00:20:11,323 --> 00:20:12,758
was so Doing around February, March,

597
00:20:13,555 --> 00:20:15,787
and she will be doing that from this

598
00:20:15,787 --> 00:20:16,743
time forward. Right?

599
00:20:17,540 --> 00:20:18,497
So that's where I'm at.

600
00:20:19,228 --> 00:20:21,929
Yeah. Did you need any surgery on any

601
00:20:21,929 --> 00:20:22,747
of your aneurysms

602
00:20:23,121 --> 00:20:25,742
before or have they remained stable? Like, where

603
00:20:25,742 --> 00:20:27,013
are your aneurysms and...

604
00:20:28,065 --> 00:20:30,225
And what is being done about? I guess

605
00:20:30,225 --> 00:20:31,105
is a real question?

606
00:20:31,744 --> 00:20:33,505
So all my aneurysms are in my pe

607
00:20:33,505 --> 00:20:33,825
area,

608
00:20:34,384 --> 00:20:36,305
right now, my my Lil, which is my

609
00:20:36,305 --> 00:20:37,105
left 5.

610
00:20:37,997 --> 00:20:38,816
Growing area

611
00:20:39,194 --> 00:20:42,144
is actually very large that we're already in

612
00:20:42,144 --> 00:20:43,580
talks of surgery on on,

613
00:20:44,617 --> 00:20:47,065
mitigating that, whatever it is. They're they're gonna

614
00:20:47,264 --> 00:20:49,097
proceed with. I am talking to doctor S.

615
00:20:50,133 --> 00:20:52,545
We I actually just sent over my

616
00:20:53,081 --> 00:20:55,329
police forms and stuff so they could are

617
00:20:55,329 --> 00:20:56,849
signed on my form so they could pull

618
00:20:56,849 --> 00:20:58,930
my medical records and and work that out

619
00:20:58,930 --> 00:21:00,769
for an initial intake type of interview, so

620
00:21:00,769 --> 00:21:02,450
we could see about surgery and stuff like

621
00:21:02,450 --> 00:21:05,184
that. But they're telling me that it's growing

622
00:21:05,184 --> 00:21:07,025
at a maybe a centimeter a year,

623
00:21:07,825 --> 00:21:10,625
and I had the talks of that with

624
00:21:10,625 --> 00:21:11,904
my vascular specialist.

625
00:21:12,718 --> 00:21:13,218
So

626
00:21:13,995 --> 00:21:16,490
with that, with the last, not this

627
00:21:16,947 --> 00:21:19,501
x ray round, but the previous to last

628
00:21:19,501 --> 00:21:19,740
year,

629
00:21:21,505 --> 00:21:23,039
during the diagnosis

630
00:21:23,573 --> 00:21:26,117
round of x rays, she had caught that

631
00:21:26,117 --> 00:21:27,708
and said it was pretty large. So she

632
00:21:27,708 --> 00:21:29,719
wanted me to go talk to talk to

633
00:21:30,269 --> 00:21:31,730
their vascular Kaiser

634
00:21:32,349 --> 00:21:34,830
surgical vascular specialist. She's a surgeon too, but

635
00:21:34,830 --> 00:21:36,750
she said she didn't feel comfortable taking that

636
00:21:36,750 --> 00:21:37,285
type of

637
00:21:37,963 --> 00:21:39,639
project on. So she wanted me to go

638
00:21:39,639 --> 00:21:41,953
talk to someone that was more seasoned. Another

639
00:21:41,953 --> 00:21:44,666
doctor and maybe more exposure and experience with

640
00:21:44,666 --> 00:21:44,826
it.

641
00:21:45,638 --> 00:21:47,069
So I went to down, which is an

642
00:21:47,148 --> 00:21:48,046
La Kaiser

643
00:21:48,499 --> 00:21:51,122
in West La. And I guess that's their

644
00:21:51,122 --> 00:21:52,394
specialty cases for Kaiser.

645
00:21:53,204 --> 00:21:54,872
And I spoke with him. He took my

646
00:21:54,872 --> 00:21:56,007
x rays and

647
00:21:56,460 --> 00:21:58,128
he said, you know, the same thing. It's

648
00:21:58,525 --> 00:22:00,352
that it's about a 3.6 centimeter meter. He

649
00:22:00,352 --> 00:22:01,799
goes for your size. He goes... This is

650
00:22:01,799 --> 00:22:03,319
the time we need to talk about surgery

651
00:22:03,319 --> 00:22:04,200
and repairing it.

652
00:22:04,920 --> 00:22:05,420
But,

653
00:22:05,960 --> 00:22:06,279
you know,

654
00:22:06,920 --> 00:22:07,420
unfortunately,

655
00:22:08,119 --> 00:22:10,940
after talking with their group, and he

656
00:22:11,334 --> 00:22:14,600
their specialty their team, they felt uncomfortable to

657
00:22:14,600 --> 00:22:15,396
do the procedure.

658
00:22:17,069 --> 00:22:17,569
So

659
00:22:18,184 --> 00:22:20,278
before that, this is, I

660
00:22:20,829 --> 00:22:23,067
I had already been working with with the

661
00:22:23,147 --> 00:22:25,464
Mar Foundation, and I had already reached out

662
00:22:25,464 --> 00:22:26,364
to them and

663
00:22:26,743 --> 00:22:29,141
and got in touch with the Mar Foundation

664
00:22:29,141 --> 00:22:30,200
in Jan and

665
00:22:30,591 --> 00:22:32,572
Janet is the 1 that... That gave me

666
00:22:32,572 --> 00:22:35,186
all the resources and contacts for vets knowledge.

667
00:22:35,424 --> 00:22:37,009
And what whatever knowledge they have. Right?

668
00:22:38,137 --> 00:22:40,530
And context, which as much as what what

669
00:22:40,530 --> 00:22:42,125
they could. And she's actually the first person

670
00:22:42,125 --> 00:22:43,024
that kind of

671
00:22:43,402 --> 00:22:45,156
gave me some type some knowledge and some

672
00:22:45,156 --> 00:22:46,751
reassurance, you know, that, you know,

673
00:22:48,200 --> 00:22:50,905
being proactive and and keeping on top of

674
00:22:50,905 --> 00:22:54,008
everything, you know, you can still live life

675
00:22:54,008 --> 00:22:54,508
and

676
00:22:54,819 --> 00:22:55,778
it can be enjoyable.

677
00:22:56,577 --> 00:22:58,015
There are times and may be a little

678
00:22:58,015 --> 00:22:59,554
rough than normal. And

679
00:23:00,811 --> 00:23:02,742
and she's like, you know, you're not gonna

680
00:23:02,742 --> 00:23:04,576
die tomorrow, which I appreciate it. It kind

681
00:23:04,576 --> 00:23:04,736
of...

682
00:23:05,454 --> 00:23:06,730
It it really gave me a lot of

683
00:23:06,730 --> 00:23:08,883
relief. She was the first 1. So I

684
00:23:08,883 --> 00:23:11,377
had already been talking to the whole hospital

685
00:23:12,326 --> 00:23:14,656
And I met with their... In the vascular

686
00:23:14,713 --> 00:23:15,987
department, and I met with all of them,

687
00:23:16,226 --> 00:23:18,613
all the whole department is by far.

688
00:23:19,742 --> 00:23:21,253
I will never forget the department and they're

689
00:23:21,253 --> 00:23:23,560
the greatest, everyone in there. So I appreciate

690
00:23:23,560 --> 00:23:25,811
him. So I met with doctor Lia

691
00:23:26,266 --> 00:23:27,936
and everybody, all the nurses in.

692
00:23:28,747 --> 00:23:30,259
That well doctor. Danes is the 1 that

693
00:23:30,259 --> 00:23:32,010
that mentioned when I had told him about

694
00:23:32,090 --> 00:23:32,590
Eli,

695
00:23:32,965 --> 00:23:35,273
or my il artery and the surgery.

696
00:23:36,877 --> 00:23:38,543
And I had... And he... He's the 1

697
00:23:38,543 --> 00:23:39,971
that told me a lot of people... A

698
00:23:39,971 --> 00:23:41,796
lot of doctors are probably gonna feel reluctant

699
00:23:41,796 --> 00:23:43,480
about working on you. He was... But we

700
00:23:43,480 --> 00:23:45,160
do have a surgeon that actually has a

701
00:23:45,160 --> 00:23:46,059
lot of exposure

702
00:23:47,000 --> 00:23:47,500
and

703
00:23:48,279 --> 00:23:50,200
it's seasoned as far as working on doing

704
00:23:50,200 --> 00:23:51,240
these type of procedures with...

705
00:23:51,972 --> 00:23:53,404
Individuals with vascular diseases.

706
00:23:54,280 --> 00:23:55,553
And he goes, she's great,

707
00:23:56,190 --> 00:23:58,020
and she has, and she's done Il lax

708
00:23:58,020 --> 00:23:59,786
surgeries before if that's the case. And I

709
00:23:59,786 --> 00:24:01,458
says, yeah. So we started talking about that.

710
00:24:02,174 --> 00:24:03,925
So this was beef prior to the meeting

711
00:24:03,925 --> 00:24:05,221
with him, the

712
00:24:05,675 --> 00:24:08,381
the surgeon in Kaiser in West La. Got

713
00:24:08,381 --> 00:24:09,453
it. The So

714
00:24:10,777 --> 00:24:11,595
I had

715
00:24:12,285 --> 00:24:13,712
mentioned to him after he said that I

716
00:24:13,712 --> 00:24:14,744
says, well,

717
00:24:16,028 --> 00:24:17,324
I know of

718
00:24:18,335 --> 00:24:19,074
another vascular

719
00:24:19,846 --> 00:24:20,244
surgeon.

720
00:24:21,835 --> 00:24:23,840
I don't always say place. But hospital that

721
00:24:23,840 --> 00:24:25,275
they're willing to to work I mean, they

722
00:24:25,275 --> 00:24:26,071
got knowledge at this.

723
00:24:26,709 --> 00:24:28,643
It's called Whole hospital and

724
00:24:30,706 --> 00:24:32,851
they've already... I've already spoke with them, and

725
00:24:32,851 --> 00:24:34,360
they said they would, you know, take on

726
00:24:34,360 --> 00:24:37,220
anything that I need. And he was, you

727
00:24:37,220 --> 00:24:37,934
know, he was

728
00:24:38,649 --> 00:24:41,055
understanding. He was very understand very acceptance.

729
00:24:41,695 --> 00:24:42,975
You know, he had asked me the doctor's

730
00:24:42,975 --> 00:24:44,414
name, and he goes I'll get your referral

731
00:24:44,414 --> 00:24:45,775
over there. He goes, that's great to hear.

732
00:24:45,934 --> 00:24:47,295
He goes, yeah. If they have... If they

733
00:24:47,295 --> 00:24:48,894
have experience with this, and they're willing to

734
00:24:48,894 --> 00:24:50,820
do it. In He goes and they know,

735
00:24:50,979 --> 00:24:52,723
you know, they they can have an... Success

736
00:24:52,723 --> 00:24:54,626
with it. That's great. And I said, yeah,

737
00:24:54,784 --> 00:24:56,132
He goes maybe, you know, they can talk

738
00:24:56,132 --> 00:24:57,242
with us and we can learn from them.

739
00:24:57,812 --> 00:24:59,717
So I gave him the the doctor's name,

740
00:24:59,875 --> 00:25:01,383
and he actually did sent the referral over

741
00:25:01,383 --> 00:25:02,653
right away, which I appreciated.

742
00:25:03,287 --> 00:25:04,343
And so

743
00:25:05,208 --> 00:25:06,799
we hadn't actually moved forward with any of

744
00:25:06,799 --> 00:25:08,971
that yet. We kinda just had an initial

745
00:25:09,107 --> 00:25:09,346
consultation.

746
00:25:10,063 --> 00:25:12,291
I met doctor S at...

747
00:25:12,944 --> 00:25:14,944
The s Mar symposium.

748
00:25:15,424 --> 00:25:16,704
I think that's what it's called, But is

749
00:25:16,704 --> 00:25:17,825
the symposium in Oregon.

750
00:25:18,704 --> 00:25:19,204
We

751
00:25:19,585 --> 00:25:21,905
met and it was just brief during the

752
00:25:21,905 --> 00:25:23,732
dinner. We didn't get to talk, but, you

753
00:25:23,732 --> 00:25:23,891
know,

754
00:25:25,718 --> 00:25:27,227
she had said to send all the information

755
00:25:27,227 --> 00:25:28,974
over, and she would take a look at

756
00:25:28,974 --> 00:25:29,053
it,

757
00:25:29,942 --> 00:25:30,442
And

758
00:25:30,975 --> 00:25:32,565
so I'm just now getting around to it.

759
00:25:32,803 --> 00:25:34,552
So this is where I'm at now. Yeah.

760
00:25:35,029 --> 00:25:36,880
As far as that's the only surgery.

761
00:25:37,829 --> 00:25:39,990
That I'm I'm looking at you presently,

762
00:25:40,549 --> 00:25:41,910
not to say there won't be ending in

763
00:25:41,910 --> 00:25:42,470
the future,

764
00:25:43,589 --> 00:25:44,390
because, you know,

765
00:25:44,964 --> 00:25:46,315
at this time, I'm living with a lot

766
00:25:46,315 --> 00:25:48,381
of aneurysms. I think... I think they had

767
00:25:48,381 --> 00:25:50,391
said 1 2 every organ, but

768
00:25:51,163 --> 00:25:51,560
there...

769
00:25:52,768 --> 00:25:55,158
Not critical. I wanna say. They're just something

770
00:25:55,158 --> 00:25:56,911
to look at and then pay attention to

771
00:25:56,911 --> 00:25:58,026
in the background. Mh.

772
00:25:59,221 --> 00:26:01,451
I always just wanna take a moment to...

773
00:26:02,183 --> 00:26:03,001
Shout out

774
00:26:03,534 --> 00:26:05,862
pretty much everybody that you just mentioned

775
00:26:06,395 --> 00:26:07,690
between doctor S,

776
00:26:08,144 --> 00:26:09,097
doctor and Lia yang,

777
00:26:10,066 --> 00:26:10,963
meg over

778
00:26:11,337 --> 00:26:13,641
and doctor Lia office. She's been on the

779
00:26:13,641 --> 00:26:16,580
podcast before and works with him and has

780
00:26:16,580 --> 00:26:17,771
vets herself, you know,

781
00:26:18,422 --> 00:26:18,922
and

782
00:26:20,650 --> 00:26:21,627
all those people

783
00:26:22,718 --> 00:26:23,536
are amazing

784
00:26:23,991 --> 00:26:24,786
and jan lynch,

785
00:26:25,598 --> 00:26:27,674
Jan, if you're listening to this podcast, you've

786
00:26:27,674 --> 00:26:29,372
done an incredible job

787
00:26:30,309 --> 00:26:30,809
connecting

788
00:26:31,746 --> 00:26:34,641
people and giving them information and

789
00:26:35,034 --> 00:26:37,208
you know, making people feel

790
00:26:37,903 --> 00:26:39,816
A little more stable, I think is what

791
00:26:39,976 --> 00:26:42,128
I heard. Right? Carla just a little more,

792
00:26:42,207 --> 00:26:42,446
like,

793
00:26:43,416 --> 00:26:43,653
Okay.

794
00:26:44,764 --> 00:26:46,270
Take a deep breath. Like,

795
00:26:47,381 --> 00:26:49,205
we're gonna move on from this. We're gonna

796
00:26:49,205 --> 00:26:50,498
figure out how to

797
00:26:51,282 --> 00:26:52,393
how to make it work?

798
00:26:54,059 --> 00:26:55,884
For sure. Definitely a breath of fresh air

799
00:26:55,884 --> 00:26:57,947
for sure. Yeah. Jan amazing.

800
00:26:58,438 --> 00:27:00,188
All of y'all are amazing. Shout out to

801
00:27:00,267 --> 00:27:02,096
All of y'all. I'm so glad that you

802
00:27:02,096 --> 00:27:04,106
were connected with Jan and then

803
00:27:04,481 --> 00:27:07,363
with David Lia, and then S Cha, like,

804
00:27:07,523 --> 00:27:08,882
they're all amazing people.

805
00:27:09,681 --> 00:27:12,099
You know, so I met you at that

806
00:27:12,158 --> 00:27:12,658
conference

807
00:27:13,037 --> 00:27:15,195
in Portland, the Symposium in Portland,

808
00:27:15,927 --> 00:27:17,594
What did it feel like meeting at their

809
00:27:17,594 --> 00:27:18,308
people with ads?

810
00:27:20,689 --> 00:27:24,023
Bitter sweet. Right? You you don't want anybody.

811
00:27:24,594 --> 00:27:25,232
To have this,

812
00:27:25,870 --> 00:27:26,189
obviously,

813
00:27:26,826 --> 00:27:27,703
this is not fun.

814
00:27:28,979 --> 00:27:31,074
But to know that you're not alone

815
00:27:31,530 --> 00:27:32,668
and that people

816
00:27:33,539 --> 00:27:35,157
have an understanding of,

817
00:27:35,774 --> 00:27:38,489
you know, how you feel physically and emotionally.

818
00:27:38,728 --> 00:27:40,804
I think the emotional is probably the more

819
00:27:40,804 --> 00:27:41,043
important.

820
00:27:42,241 --> 00:27:44,414
But you know, It's it's hard to for

821
00:27:44,414 --> 00:27:46,734
people to understand, you know, that don't have

822
00:27:46,734 --> 00:27:48,494
this. I'm I'm not saying that other the

823
00:27:48,494 --> 00:27:50,414
people don't have other issues, but if they

824
00:27:50,414 --> 00:27:51,615
don't, and they don't have this,

825
00:27:52,908 --> 00:27:54,497
hard for people to understand the small aches

826
00:27:54,497 --> 00:27:57,039
and pains that you live through... That you

827
00:27:57,039 --> 00:27:57,754
think is normal,

828
00:27:58,707 --> 00:28:00,946
and it's not you know, I didn't realize

829
00:28:00,946 --> 00:28:01,923
that me

830
00:28:02,852 --> 00:28:04,146
having sharp pains

831
00:28:04,520 --> 00:28:06,903
in my stomach or in my side area

832
00:28:06,903 --> 00:28:08,094
or my back. I just thought it was

833
00:28:08,094 --> 00:28:10,253
normal. I just... I've always shut up and

834
00:28:10,253 --> 00:28:11,841
not complained about it. You know, I just

835
00:28:11,841 --> 00:28:12,897
living with the pains

836
00:28:13,349 --> 00:28:15,334
is normal, and it's not, you know,

837
00:28:16,446 --> 00:28:18,454
Like I said, it's bitter sweet and

838
00:28:19,164 --> 00:28:21,480
it was great to meet everybody. I just...

839
00:28:23,477 --> 00:28:25,315
Everybody is just so welcoming.

840
00:28:25,809 --> 00:28:27,809
And I like to think that a lot

841
00:28:27,809 --> 00:28:29,730
of people... A lot of us that do

842
00:28:29,730 --> 00:28:31,410
have it. The reason why is because we

843
00:28:31,410 --> 00:28:32,529
know there's a lack of knowledge.

844
00:28:33,183 --> 00:28:35,327
And we know how tough mentally, it can

845
00:28:35,327 --> 00:28:36,915
be if if you don't know what's going

846
00:28:36,915 --> 00:28:37,153
on.

847
00:28:37,947 --> 00:28:39,138
And you don't understand it.

848
00:28:40,012 --> 00:28:40,671
I think

849
00:28:41,298 --> 00:28:41,798
that's

850
00:28:42,172 --> 00:28:43,046
the bigger issue.

851
00:28:44,000 --> 00:28:45,908
Right, for an individual. Yeah.

852
00:28:46,782 --> 00:28:49,246
For sure. And I think, just wanna make

853
00:28:49,246 --> 00:28:51,722
sure that we... You know, that after you

854
00:28:51,722 --> 00:28:52,753
were diagnosed, like,

855
00:28:53,547 --> 00:28:55,371
when we talked before, you said it changes

856
00:28:55,371 --> 00:28:56,958
a way that you thought of yourself.

857
00:28:58,164 --> 00:29:00,312
Like it changed, like, you had thought you

858
00:29:00,312 --> 00:29:00,812
were

859
00:29:02,379 --> 00:29:04,845
healthy, like, do you wanna expand on that?

860
00:29:05,894 --> 00:29:07,434
Feeling after the diagnosis?

861
00:29:08,615 --> 00:29:08,855
Well,

862
00:29:09,575 --> 00:29:11,755
the only thing I could say is that

863
00:29:12,454 --> 00:29:14,054
there was this brief time period.

864
00:29:15,264 --> 00:29:16,321
When I thought

865
00:29:16,934 --> 00:29:18,127
that I wouldn't be able to do any.

866
00:29:18,287 --> 00:29:19,877
I I thought I building. I was just

867
00:29:19,877 --> 00:29:22,440
broken as a person. Like, my body just

868
00:29:22,440 --> 00:29:24,192
physically, like, I'm I'm no good. I'm I'm

869
00:29:24,192 --> 00:29:25,786
broken now. Like, what am I gonna do?

870
00:29:26,662 --> 00:29:28,017
You know, what what can I do?

871
00:29:29,451 --> 00:29:29,951
And

872
00:29:31,615 --> 00:29:34,239
that is... That's tough for someone to take

873
00:29:34,239 --> 00:29:34,398
on.

874
00:29:35,352 --> 00:29:35,750
You know.

875
00:29:36,465 --> 00:29:38,612
And the messed the thing is people that

876
00:29:38,612 --> 00:29:40,654
have temporary injuries. I'm sure they go through

877
00:29:40,773 --> 00:29:43,075
2 for a short period, but it'll heal

878
00:29:43,075 --> 00:29:46,011
and you'll be alright. For us, it's a

879
00:29:46,011 --> 00:29:46,987
little more tough

880
00:29:47,995 --> 00:29:49,319
because we know that

881
00:29:49,679 --> 00:29:52,552
as of right now, there's there's no healing

882
00:29:52,632 --> 00:29:53,909
There's only keeping...

883
00:29:54,708 --> 00:29:57,342
There's only preventive maintenance. Right? There's just keeping

884
00:29:57,342 --> 00:29:59,112
an eye on it and trying to stay

885
00:29:59,112 --> 00:30:00,148
healthy and fight as you can.

886
00:30:00,945 --> 00:30:01,901
I it's a good way to put it.

887
00:30:02,060 --> 00:30:03,915
We have a lot of research to do

888
00:30:04,451 --> 00:30:05,566
to find a treatment.

889
00:30:06,378 --> 00:30:08,212
That will prevent us from having to deal

890
00:30:08,212 --> 00:30:09,249
with these kinds of things.

891
00:30:11,321 --> 00:30:13,155
You know, So you so you were diagnosed

892
00:30:13,155 --> 00:30:14,612
with us, and then

893
00:30:14,924 --> 00:30:16,592
know, you're doing... You're going through all of

894
00:30:16,592 --> 00:30:20,247
this monitoring and figuring out the surgery on

895
00:30:20,247 --> 00:30:22,710
this Il and when is that gonna happen

896
00:30:22,710 --> 00:30:24,870
and how... You who is that gonna be

897
00:30:24,870 --> 00:30:27,332
with and all that. And taking in, like,

898
00:30:27,570 --> 00:30:29,318
all of this information, I think it's been

899
00:30:29,318 --> 00:30:30,668
about a year, a little more than a

900
00:30:30,668 --> 00:30:34,021
year, maybe since your diagnosis. Right? Yeah. Yeah.

901
00:30:34,579 --> 00:30:35,079
So

902
00:30:35,773 --> 00:30:37,946
just like rapid change of

903
00:30:39,518 --> 00:30:41,601
before and after. And then you go to

904
00:30:41,601 --> 00:30:43,826
the symposium and you're meeting people and you're

905
00:30:43,826 --> 00:30:45,495
hearing about research? And I'm...

906
00:30:46,289 --> 00:30:48,061
Guess, like, what are what are your takeaways

907
00:30:48,356 --> 00:30:48,856
from

908
00:30:49,802 --> 00:30:51,816
Where we are right now and where

909
00:30:52,431 --> 00:30:53,148
we should be.

910
00:30:54,263 --> 00:30:54,502
Well,

911
00:30:56,335 --> 00:30:58,406
obviously, we're still at the starting line. Trust.

912
00:30:59,059 --> 00:30:59,958
As far as

913
00:31:00,815 --> 00:31:03,369
having, you know, a lot of accurate data

914
00:31:03,369 --> 00:31:03,769
and

915
00:31:04,487 --> 00:31:05,684
put in 1 place, you know, for us

916
00:31:05,684 --> 00:31:07,600
to understand and and at and accuracy,

917
00:31:09,055 --> 00:31:09,375
you know,

918
00:31:10,815 --> 00:31:12,255
and also to be on the same page,

919
00:31:12,494 --> 00:31:14,575
I know this symposium, they had mentioned that

920
00:31:14,575 --> 00:31:17,055
there's clinical preach, clinical trials that are going

921
00:31:17,055 --> 00:31:17,695
on in Europe,

922
00:31:18,188 --> 00:31:19,863
are not even in Europe. They're actually past

923
00:31:19,863 --> 00:31:22,597
clinical trials and they're already having treatments that

924
00:31:22,655 --> 00:31:24,729
they say are effective. We don't have the

925
00:31:24,729 --> 00:31:26,585
data, and we don't have the understanding here

926
00:31:26,803 --> 00:31:27,815
because we don't

927
00:31:28,490 --> 00:31:30,320
We are not a part of those clinical

928
00:31:30,320 --> 00:31:31,615
trials, but

929
00:31:31,990 --> 00:31:33,263
it was 1 that... There was 1 that

930
00:31:33,263 --> 00:31:34,399
was started before

931
00:31:34,774 --> 00:31:36,205
Covid. I know that it stopped.

932
00:31:36,777 --> 00:31:38,446
But it has started up again. And when

933
00:31:38,446 --> 00:31:39,956
we went to the symposium, they had mentioned

934
00:31:39,956 --> 00:31:41,784
that it stopped, and it hadn't... They had

935
00:31:41,784 --> 00:31:43,374
knowledge of it. They didn't have knowledge it

936
00:31:43,374 --> 00:31:45,224
started up again. But I had actually just

937
00:31:45,224 --> 00:31:47,065
received an email a week prior to the

938
00:31:47,065 --> 00:31:47,565
symposium

939
00:31:48,184 --> 00:31:48,684
about

940
00:31:50,024 --> 00:31:50,924
if I was

941
00:31:51,224 --> 00:31:52,984
interested in in being a part of it

942
00:31:52,984 --> 00:31:54,435
because they were starting it up already again.

943
00:31:54,834 --> 00:31:56,188
So I'm moving forward with that,

944
00:31:57,224 --> 00:31:59,237
and it's the clinical trial for

945
00:32:00,012 --> 00:32:01,378
I'm not sure if you know, the name

946
00:32:01,378 --> 00:32:02,726
it. I don't know the name. That's the

947
00:32:02,726 --> 00:32:03,836
1 for so all.

948
00:32:05,580 --> 00:32:07,666
Liberal. That's what it is. So

949
00:32:09,006 --> 00:32:10,835
we're gonna... I'm gonna... I'm definitely keeping in

950
00:32:10,835 --> 00:32:13,540
contact with them. I'm moving forward with that

951
00:32:13,540 --> 00:32:15,130
to see how that works and if I'm

952
00:32:15,130 --> 00:32:16,482
actually gonna get started. I know I've already

953
00:32:16,482 --> 00:32:18,488
been approved. Or waiting on my medical records,

954
00:32:19,045 --> 00:32:20,717
and I hope, you know, you would look

955
00:32:20,717 --> 00:32:22,629
into that maybe consider it and and look

956
00:32:22,629 --> 00:32:23,982
into that yourself and all of us, You

957
00:32:23,982 --> 00:32:26,627
know, if it's something that if some or

958
00:32:26,627 --> 00:32:28,482
1 of us are willing to do or

959
00:32:28,780 --> 00:32:31,252
wanna do, definitely, it's good... You know, something

960
00:32:31,252 --> 00:32:31,890
to look into.

961
00:32:32,767 --> 00:32:34,203
I also looked into stem cells,

962
00:32:35,414 --> 00:32:36,927
with stem cells being,

963
00:32:38,519 --> 00:32:39,395
I wanna say,

964
00:32:40,590 --> 00:32:41,090
there's

965
00:32:41,625 --> 00:32:42,125
almost

966
00:32:42,501 --> 00:32:43,718
no data on it

967
00:32:44,187 --> 00:32:46,410
that's actually public or very little data.

968
00:32:47,442 --> 00:32:50,061
There is data that, you know, different universities

969
00:32:50,061 --> 00:32:52,625
have publications for it. You can research that

970
00:32:53,173 --> 00:32:54,629
it does help a lot of

971
00:32:55,085 --> 00:32:58,272
autoimmune diseases and and repair organs and joints,

972
00:32:59,468 --> 00:33:01,858
but it's not a cure, right, for us.

973
00:33:02,017 --> 00:33:02,517
But

974
00:33:03,069 --> 00:33:05,307
as far as for me, the research I

975
00:33:05,307 --> 00:33:07,864
was looking into was any... Some type, something

976
00:33:07,864 --> 00:33:09,163
that would make me feel comfortable

977
00:33:09,782 --> 00:33:11,641
and help me prolong

978
00:33:12,913 --> 00:33:15,059
or for go any issues that I would

979
00:33:15,059 --> 00:33:16,649
have till I'm older. Right? We wanna live

980
00:33:16,649 --> 00:33:19,113
that long and and good quality of life.

981
00:33:19,352 --> 00:33:21,021
That's our goal. Right? That's everybody's goal. You

982
00:33:21,021 --> 00:33:22,944
wanna live to be old in its best

983
00:33:22,944 --> 00:33:24,376
quality of life as you can have.

984
00:33:25,171 --> 00:33:26,285
So with stem cells,

985
00:33:27,239 --> 00:33:29,306
I was looking to that also, and what

986
00:33:29,386 --> 00:33:30,363
I found was

987
00:33:30,753 --> 00:33:32,049
I talked to a couple different

988
00:33:33,061 --> 00:33:33,561
agencies

989
00:33:34,096 --> 00:33:36,563
that that do offer it... Got offer the

990
00:33:36,563 --> 00:33:38,711
treatment even here in the Us here in

991
00:33:38,711 --> 00:33:39,371
in Mexico.

992
00:33:40,239 --> 00:33:42,716
And, you know, their belief, which... There's not...

993
00:33:42,876 --> 00:33:44,634
Again, there's not enough data gathered around for

994
00:33:44,634 --> 00:33:45,752
any of this to be true,

995
00:33:46,312 --> 00:33:47,670
to be set in stone that is true,

996
00:33:47,830 --> 00:33:49,997
but you know, there is data, and it

997
00:33:49,997 --> 00:33:52,068
has been compiled, and some of it has

998
00:33:52,068 --> 00:33:52,728
been proven

999
00:33:53,184 --> 00:33:54,241
just for real life

1000
00:33:54,857 --> 00:33:56,711
experience, right, in real life

1001
00:33:57,247 --> 00:33:57,566
cases.

1002
00:33:58,219 --> 00:33:59,118
You know, where

1003
00:33:59,735 --> 00:34:01,651
it there a repair, you know, your pancreas

1004
00:34:01,651 --> 00:34:03,646
your repairs, you know, people will do this

1005
00:34:03,726 --> 00:34:05,801
Iv treatments and some of your organs will

1006
00:34:05,801 --> 00:34:08,282
just be will be well again for... I

1007
00:34:08,282 --> 00:34:10,188
don't know if it's temporary or permanent, but

1008
00:34:10,347 --> 00:34:11,141
I know it happens.

1009
00:34:12,094 --> 00:34:14,659
And also, they believe that it

1010
00:34:15,130 --> 00:34:17,050
what it does is because when... If you...

1011
00:34:17,289 --> 00:34:18,970
And, again, you have to have it... They

1012
00:34:18,970 --> 00:34:19,610
do it in different,

1013
00:34:21,050 --> 00:34:22,809
I wanna say different ways of giving you

1014
00:34:22,809 --> 00:34:24,978
the treatment, whether it injection or whether it's

1015
00:34:25,057 --> 00:34:25,535
Iv.

1016
00:34:26,331 --> 00:34:26,831
So

1017
00:34:27,206 --> 00:34:29,355
their belief is if they give an Iv

1018
00:34:29,355 --> 00:34:31,663
treatment that the stem cells and the ex

1019
00:34:31,663 --> 00:34:32,561
xo will

1020
00:34:33,428 --> 00:34:35,172
flow through the body and even the egg

1021
00:34:35,172 --> 00:34:37,472
zones as tiny They will go ahead and

1022
00:34:37,472 --> 00:34:39,637
and get into different areas of

1023
00:34:40,168 --> 00:34:40,668
your

1024
00:34:41,454 --> 00:34:42,751
arteries and

1025
00:34:43,207 --> 00:34:45,758
are the needed areas of your arteries and

1026
00:34:45,758 --> 00:34:46,258
veins

1027
00:34:46,635 --> 00:34:48,968
and blood vessels and repair the

1028
00:34:49,757 --> 00:34:50,893
the weakened

1029
00:34:51,347 --> 00:34:53,278
walls, basically kind of

1030
00:34:54,765 --> 00:34:56,752
hold up the structure like a barrier and

1031
00:34:56,752 --> 00:34:58,103
and strengthen that. Right?

1032
00:34:59,312 --> 00:34:59,551
Again,

1033
00:35:00,188 --> 00:35:02,021
I don't know whether it's temporary or permanent,

1034
00:35:03,535 --> 00:35:04,991
most likely, it's temporary,

1035
00:35:06,259 --> 00:35:08,254
But if it's something that can help,

1036
00:35:09,611 --> 00:35:12,244
temporarily, I'm off for it. Right? Because I

1037
00:35:12,244 --> 00:35:13,442
go through the pain, and I know what

1038
00:35:13,442 --> 00:35:13,761
it is.

1039
00:35:14,650 --> 00:35:16,790
Yeah. That is so interesting. That's like,

1040
00:35:17,742 --> 00:35:19,565
I haven't really heard of that being used

1041
00:35:19,565 --> 00:35:21,229
in vascular Eds and I'm...

1042
00:35:22,199 --> 00:35:24,857
Interested to read more about it. So,

1043
00:35:25,875 --> 00:35:28,193
I will, for our listeners, I'll dig up

1044
00:35:28,193 --> 00:35:29,332
what I can find

1045
00:35:29,711 --> 00:35:31,570
and put it in the show notes

1046
00:35:32,121 --> 00:35:33,394
so that, you know, you could check it

1047
00:35:33,394 --> 00:35:34,349
out if you want to.

1048
00:35:34,985 --> 00:35:37,713
That's so interesting. And, you know, I think

1049
00:35:37,769 --> 00:35:38,088
overall,

1050
00:35:39,218 --> 00:35:41,773
research just... We have so much more to

1051
00:35:41,773 --> 00:35:42,273
do

1052
00:35:43,130 --> 00:35:44,248
than where we are right now.

1053
00:35:45,365 --> 00:35:46,882
What? For sure. Yeah.

1054
00:35:48,174 --> 00:35:50,884
Were there signs... Like you mentioned earlier the

1055
00:35:50,884 --> 00:35:53,275
skin tearing from the chalk when you were

1056
00:35:53,275 --> 00:35:55,427
a kid, were there other signs growing up?

1057
00:35:56,159 --> 00:35:58,477
That you now know are associated with vets

1058
00:35:58,477 --> 00:36:01,135
that you had? Well, I'm not necessarily

1059
00:36:01,514 --> 00:36:02,632
because III

1060
00:36:02,632 --> 00:36:04,151
guess I... It was the lack of knowledge

1061
00:36:04,151 --> 00:36:06,081
of what to look for. I I can

1062
00:36:06,081 --> 00:36:08,074
tell. They're probably were. I just don't remember.

1063
00:36:08,870 --> 00:36:10,544
The 1 thing I do remember is about

1064
00:36:10,544 --> 00:36:12,159
my skin breaking because

1065
00:36:13,109 --> 00:36:13,828
It was often,

1066
00:36:14,308 --> 00:36:16,146
and it it lasted, you know, until I

1067
00:36:16,146 --> 00:36:17,824
was almost the teenager, and it didn't stop.

1068
00:36:17,984 --> 00:36:19,023
I don't know why it stopped when I

1069
00:36:19,023 --> 00:36:20,621
was a teenager, but it did...

1070
00:36:21,755 --> 00:36:22,255
And,

1071
00:36:22,795 --> 00:36:25,114
you know, well, also, I I learned to

1072
00:36:25,114 --> 00:36:27,835
stay away from chalk and try things too.

1073
00:36:28,074 --> 00:36:30,083
Right? And, like, whatever dried my skin up,

1074
00:36:30,243 --> 00:36:32,655
I learned to stay away from. But I

1075
00:36:32,952 --> 00:36:35,102
I just... I can tell you. There's certain

1076
00:36:35,102 --> 00:36:37,094
things that I noticed now now that I've

1077
00:36:37,173 --> 00:36:38,623
I've been around all of... I've been around

1078
00:36:38,623 --> 00:36:41,336
of individuals, other individuals with it, that we

1079
00:36:41,336 --> 00:36:41,895
have common...

1080
00:36:42,533 --> 00:36:44,050
We have things that are in common, maybe,

1081
00:36:44,209 --> 00:36:45,646
like, like my smaller mouth.

1082
00:36:46,376 --> 00:36:48,598
I I always thought that was normal because

1083
00:36:48,598 --> 00:36:49,947
of my dad, but, you know you're look

1084
00:36:49,947 --> 00:36:50,978
at my brother and my sister, they don't.

1085
00:36:51,216 --> 00:36:52,644
We do look alike like the upper face,

1086
00:36:52,803 --> 00:36:53,835
but not the bottom. Right?

1087
00:36:54,644 --> 00:36:56,559
And they were talking about this symposium about

1088
00:36:56,559 --> 00:36:58,395
mouth shape and the top in the butt

1089
00:36:58,395 --> 00:37:00,310
and the top arch or whatever. And I

1090
00:37:00,310 --> 00:37:02,066
noticed that's common between us.

1091
00:37:02,799 --> 00:37:03,836
Some of us have that,

1092
00:37:04,634 --> 00:37:06,149
facial facial feature facial features.

1093
00:37:07,903 --> 00:37:10,137
They're just slight, but if you really, really

1094
00:37:10,137 --> 00:37:12,131
notice my, that they're there.

1095
00:37:13,658 --> 00:37:15,567
But other than that growing up, no. You

1096
00:37:15,567 --> 00:37:17,476
know, I I just I couldn't tell you

1097
00:37:17,476 --> 00:37:19,385
because I I didn't know... I wouldn't I

1098
00:37:19,385 --> 00:37:20,578
know what to look for at that time.

1099
00:37:21,469 --> 00:37:23,789
And it's so far back. I I don't

1100
00:37:23,789 --> 00:37:24,589
remember it. Yeah.

1101
00:37:25,630 --> 00:37:28,269
Do you have any advice for someone going

1102
00:37:28,269 --> 00:37:30,598
through? Either what's... You're going through now or

1103
00:37:30,598 --> 00:37:32,351
something that you've been through related to your

1104
00:37:32,351 --> 00:37:33,170
med diagnosis?

1105
00:37:34,344 --> 00:37:36,257
Yes. Pay attention to your health.

1106
00:37:37,309 --> 00:37:39,623
Pay attention to the littlest thing. It doesn't

1107
00:37:39,623 --> 00:37:40,421
matter what it is.

1108
00:37:41,379 --> 00:37:42,097
If you're young,

1109
00:37:42,896 --> 00:37:44,252
you can probably get away with it, but

1110
00:37:44,252 --> 00:37:44,970
as you get older,

1111
00:37:45,623 --> 00:37:47,697
if you feel something's not right,

1112
00:37:49,133 --> 00:37:50,670
it doesn't matter if you

1113
00:37:52,004 --> 00:37:53,759
feel like it's a waste of time or

1114
00:37:53,759 --> 00:37:54,716
if you don't believe it,

1115
00:37:55,848 --> 00:37:57,523
get check, get a checkup up, you know,

1116
00:37:57,762 --> 00:37:58,161
make sure...

1117
00:37:58,879 --> 00:38:01,750
And then doctors are people too, even though

1118
00:38:01,909 --> 00:38:03,106
I've met some that are some of the

1119
00:38:03,106 --> 00:38:04,621
most brilliant people that I've ever met in

1120
00:38:04,621 --> 00:38:05,020
my life,

1121
00:38:06,153 --> 00:38:08,151
to be human is to error. Right? You

1122
00:38:08,151 --> 00:38:10,068
know, they you you gotta... You also... If

1123
00:38:10,068 --> 00:38:12,797
you feel like something right, speak up. Let

1124
00:38:12,797 --> 00:38:14,068
him know, hey, Maybe you should look into

1125
00:38:14,068 --> 00:38:15,816
more... Into that more for me, please, because

1126
00:38:15,975 --> 00:38:17,088
I don't understand it, and I don't know

1127
00:38:17,088 --> 00:38:19,391
what it is. And if you say it's

1128
00:38:19,391 --> 00:38:20,583
there, and it's... And you don't know if

1129
00:38:20,583 --> 00:38:22,267
it's sears, or not, maybe it is serious

1130
00:38:22,267 --> 00:38:23,938
so we need to look into it. Speak

1131
00:38:23,938 --> 00:38:24,097
up.

1132
00:38:25,449 --> 00:38:26,585
Also, if

1133
00:38:27,279 --> 00:38:28,885
you do have it and you don't know

1134
00:38:28,885 --> 00:38:30,477
where to look or don't know who to

1135
00:38:30,477 --> 00:38:33,661
talk to Marvin Foundation. Please call them,

1136
00:38:34,457 --> 00:38:36,447
get in touch with the resources, reach out

1137
00:38:36,447 --> 00:38:37,424
to your local

1138
00:38:38,773 --> 00:38:39,753
resource hospital.

1139
00:38:40,771 --> 00:38:42,929
I'm sure they have a a Facebook page.

1140
00:38:43,168 --> 00:38:44,847
I'm sure they have a group that they

1141
00:38:44,847 --> 00:38:46,445
get together and they hang out, you know,

1142
00:38:46,605 --> 00:38:48,128
like like us. We have a group chat.

1143
00:38:48,286 --> 00:38:50,427
Like, we've talked we've met. I'm sure they

1144
00:38:50,427 --> 00:38:52,250
have that that way, you don't feel alone

1145
00:38:52,250 --> 00:38:53,360
and that way, you can also gain some

1146
00:38:53,360 --> 00:38:53,915
more knowledge.

1147
00:38:54,644 --> 00:38:56,482
And accurate knowledge because of what out there...

1148
00:38:56,722 --> 00:38:58,100
What's out there on the Internet

1149
00:38:58,479 --> 00:38:59,598
is really old data.

1150
00:39:00,397 --> 00:39:02,808
There's very little that's updated. I should say

1151
00:39:02,808 --> 00:39:04,402
most of it is old data. So what

1152
00:39:04,402 --> 00:39:05,301
you're gonna find

1153
00:39:05,838 --> 00:39:07,591
may not be as accurate as as what

1154
00:39:07,591 --> 00:39:09,027
what it is it... What it is now.

1155
00:39:09,346 --> 00:39:10,701
And it may not be as scary,

1156
00:39:11,434 --> 00:39:13,451
it may enlighten you and and

1157
00:39:14,467 --> 00:39:16,623
put a positive spin on on this and

1158
00:39:16,623 --> 00:39:17,421
in your life.

1159
00:39:18,379 --> 00:39:20,236
That's great advice. I'll put

1160
00:39:20,628 --> 00:39:22,615
Also, I'll put links in the episode show

1161
00:39:22,615 --> 00:39:25,475
notes for the foundation and the support groups

1162
00:39:25,475 --> 00:39:27,462
and things like that too. That's wonderful advice.

1163
00:39:28,193 --> 00:39:30,746
For the medical professionals listening or the medical

1164
00:39:30,746 --> 00:39:31,623
students listening.

1165
00:39:32,101 --> 00:39:34,494
Is there anything about your experience living with

1166
00:39:34,494 --> 00:39:35,472
ads or

1167
00:39:36,009 --> 00:39:37,466
just in general about

1168
00:39:37,779 --> 00:39:38,974
ads that you want them to know?

1169
00:39:39,692 --> 00:39:41,308
I'm not I'm not sure. I have the

1170
00:39:41,924 --> 00:39:43,519
I'm not sure I I have the capacity

1171
00:39:43,519 --> 00:39:46,012
or or the expert the knowledge to even

1172
00:39:46,484 --> 00:39:48,160
give them an advice or tell them, you

1173
00:39:48,160 --> 00:39:50,634
know, Yeah. What it could... What could they

1174
00:39:50,634 --> 00:39:52,230
do or what couldn't they do better?

1175
00:39:53,188 --> 00:39:54,246
You know, I think

1176
00:39:54,958 --> 00:39:56,153
what they're limited to.

1177
00:39:56,950 --> 00:39:59,101
They are doing what they can. You know,

1178
00:39:59,340 --> 00:40:01,115
I I know we we have those

1179
00:40:02,545 --> 00:40:04,804
those 3 regions that are working

1180
00:40:05,264 --> 00:40:06,864
hard, I I guess. Right,

1181
00:40:07,505 --> 00:40:09,664
as far as to find out information and

1182
00:40:09,664 --> 00:40:10,164
and

1183
00:40:10,704 --> 00:40:12,956
pull stuff together. Right? I I think it's

1184
00:40:13,036 --> 00:40:14,094
Oregon State University,

1185
00:40:14,472 --> 00:40:15,929
John Hopkins and

1186
00:40:16,545 --> 00:40:19,257
in Texas, I believe too. Yeah. To my

1187
00:40:19,257 --> 00:40:20,794
understanding. Yeah. Baylor and

1188
00:40:22,064 --> 00:40:23,818
I get the Ut and Baylor are the

1189
00:40:23,818 --> 00:40:24,318
same

1190
00:40:24,776 --> 00:40:27,110
thing, and there's also the university of Washington.

1191
00:40:27,966 --> 00:40:29,561
But yeah. Those are the... I think those

1192
00:40:29,561 --> 00:40:31,657
are probably the main regions or some

1193
00:40:32,128 --> 00:40:34,905
doctors over at in New York that are

1194
00:40:34,905 --> 00:40:37,389
pretty familiar. There's mayo clinic in

1195
00:40:38,000 --> 00:40:38,500
Rochester.

1196
00:40:39,190 --> 00:40:40,325
There's a lot of different

1197
00:40:40,793 --> 00:40:43,265
hospitals now where we have people who are

1198
00:40:43,265 --> 00:40:43,765
knowledgeable

1199
00:40:44,142 --> 00:40:46,215
about vets and Mar and Illinois states,

1200
00:40:46,853 --> 00:40:49,267
But I think the major research is

1201
00:40:49,820 --> 00:40:52,059
as you mentioned coming from, like, 3 or

1202
00:40:52,059 --> 00:40:53,440
4 areas plus

1203
00:40:53,820 --> 00:40:54,219
Europe.

1204
00:40:55,420 --> 00:40:55,660
Yeah.

1205
00:40:56,460 --> 00:40:58,355
I guess the only question I have is

1206
00:40:58,634 --> 00:41:01,031
with all the updated technology and I'm an

1207
00:41:01,111 --> 00:41:01,611
It

1208
00:41:01,990 --> 00:41:02,709
with Ai,

1209
00:41:03,827 --> 00:41:06,159
Like, where are we at with that? Know,

1210
00:41:06,239 --> 00:41:08,559
and and implementing that in a strategy using

1211
00:41:08,719 --> 00:41:09,699
Ai and

1212
00:41:10,239 --> 00:41:10,739
and

1213
00:41:12,239 --> 00:41:14,914
helping as far as speed up, you process

1214
00:41:14,972 --> 00:41:17,284
speed up, gathering the data speed up, the

1215
00:41:17,284 --> 00:41:19,298
quest... The answers to the questions that

1216
00:41:19,914 --> 00:41:21,748
and the solutions that we have, you know,

1217
00:41:21,828 --> 00:41:24,387
where are we with integrating that technology. And

1218
00:41:24,467 --> 00:41:26,293
I actually asked that the symposium. I asked

1219
00:41:26,293 --> 00:41:27,008
1 of the doctors,

1220
00:41:27,722 --> 00:41:28,596
and, you know,

1221
00:41:29,311 --> 00:41:31,216
she had laughed yeah. That's the hot topic

1222
00:41:31,216 --> 00:41:31,534
right now.

1223
00:41:32,661 --> 00:41:34,807
She goes, but, you know, we're... We... We...

1224
00:41:34,966 --> 00:41:37,748
We don't get and we haven't, but it's

1225
00:41:37,748 --> 00:41:40,390
being talked about. And I'm like, why are

1226
00:41:40,390 --> 00:41:43,110
we talking about this because I know there's

1227
00:41:43,110 --> 00:41:43,429
other,

1228
00:41:44,070 --> 00:41:45,989
I wanna say issues it is being used

1229
00:41:45,989 --> 00:41:47,429
for in the medical field because it is

1230
00:41:47,429 --> 00:41:49,444
being used in the medical field. Right? I

1231
00:41:49,444 --> 00:41:51,601
mean, it has to be. I don't have

1232
00:41:51,601 --> 00:41:52,581
that type of

1233
00:41:53,039 --> 00:41:55,037
exposure to it to know for sure for

1234
00:41:55,037 --> 00:41:57,090
certain, but I know it has to be

1235
00:41:58,168 --> 00:41:59,846
with all the new stuff they talk about

1236
00:41:59,846 --> 00:42:00,825
as far as

1237
00:42:01,364 --> 00:42:02,503
how they've sped up

1238
00:42:03,202 --> 00:42:04,340
with Covid treatments,

1239
00:42:04,814 --> 00:42:07,212
with other treatments, they've gone down from 10

1240
00:42:07,212 --> 00:42:09,150
years to 3 to 5 years

1241
00:42:09,769 --> 00:42:13,365
from finding answers to solutions and even speeding

1242
00:42:13,365 --> 00:42:13,820
up

1243
00:42:14,258 --> 00:42:16,093
pro progress with speeding up

1244
00:42:17,528 --> 00:42:19,384
approvals. Right? So

1245
00:42:20,001 --> 00:42:22,553
why is that not being used for rare

1246
00:42:22,553 --> 00:42:23,510
genetic diseases?

1247
00:42:24,323 --> 00:42:25,063
And this

1248
00:42:25,521 --> 00:42:28,155
itself that's I guess, I I have that

1249
00:42:28,155 --> 00:42:28,554
question.

1250
00:42:29,512 --> 00:42:31,188
So I guess that's the only thing I

1251
00:42:31,268 --> 00:42:34,412
I would ask are our health professionals

1252
00:42:35,264 --> 00:42:37,172
is where are we with that? And how

1253
00:42:37,172 --> 00:42:37,910
can we

1254
00:42:38,762 --> 00:42:40,432
how can we help? Or how can we...

1255
00:42:41,164 --> 00:42:43,401
Implement that to help speed stuff speed up

1256
00:42:43,401 --> 00:42:44,599
these answers to these solutions.

1257
00:42:45,717 --> 00:42:47,336
Yeah. I think that's a great

1258
00:42:48,049 --> 00:42:50,202
that's a great thought to kinda leave with

1259
00:42:50,202 --> 00:42:52,753
the medical professionals listening and the medical students

1260
00:42:52,753 --> 00:42:54,108
and the researchers listening.

1261
00:42:54,666 --> 00:42:56,261
I think it's a great thought. You know,

1262
00:42:57,231 --> 00:42:57,731
both,

1263
00:42:58,265 --> 00:43:00,174
you know, why aren't we doing this?

1264
00:43:00,811 --> 00:43:03,197
How do we do this? Is this applicable?

1265
00:43:03,848 --> 00:43:06,258
To our research and beds and

1266
00:43:06,792 --> 00:43:07,531
how as,

1267
00:43:07,906 --> 00:43:09,179
you know, someone with vets,

1268
00:43:10,293 --> 00:43:12,735
like, how can someone with vets help this

1269
00:43:13,014 --> 00:43:15,991
process, help this research, help make sure that

1270
00:43:16,449 --> 00:43:18,686
progress is moving forward. Right? I think those

1271
00:43:18,686 --> 00:43:19,745
are great thoughts

1272
00:43:20,378 --> 00:43:21,117
to leave

1273
00:43:21,734 --> 00:43:24,307
the medical professionals and researchers with

1274
00:43:24,685 --> 00:43:25,163
good thoughts.

1275
00:43:26,280 --> 00:43:28,194
Well, thank you so much for coming on

1276
00:43:28,194 --> 00:43:29,391
and sharing your story.

1277
00:43:30,361 --> 00:43:32,590
Especially so soon after diagnosis, you know, I

1278
00:43:32,590 --> 00:43:34,660
know it's been about a year, but in

1279
00:43:34,660 --> 00:43:36,650
the grand scheme of things, like, I know,

1280
00:43:38,017 --> 00:43:40,500
a year is not very long to be

1281
00:43:41,349 --> 00:43:42,642
living with this knowledge

1282
00:43:43,490 --> 00:43:45,791
about beds and, you know, figuring it all

1283
00:43:45,791 --> 00:43:47,473
out out and meeting people for the first

1284
00:43:47,473 --> 00:43:49,141
time doing everything that you're doing now.

1285
00:43:49,856 --> 00:43:53,033
They can be overwhelming. And I really, really

1286
00:43:53,033 --> 00:43:55,121
appreciate you coming on to share your story

1287
00:43:55,495 --> 00:43:57,188
out Well, Thank you. I mean, I appreciate

1288
00:43:57,188 --> 00:43:58,706
you allowing Me, be on here and and

1289
00:43:58,706 --> 00:44:00,544
tell it. I'm glad I could I could

1290
00:44:00,544 --> 00:44:01,902
do this. I I never would've have thought

1291
00:44:01,902 --> 00:44:03,181
even thought about it or even had the

1292
00:44:03,181 --> 00:44:03,420
courage.

1293
00:44:04,153 --> 00:44:05,687
And for you to invite me and

1294
00:44:06,141 --> 00:44:08,128
and kinda hold my hand through the entire

1295
00:44:08,128 --> 00:44:09,003
process and to do this.

1296
00:44:10,036 --> 00:44:11,388
It's really cool. I appreciate it.

1297
00:44:12,119 --> 00:44:13,877
Yeah. Of course. If you're listening in you're

1298
00:44:13,877 --> 00:44:15,416
newly diagnosed and you're

1299
00:44:15,795 --> 00:44:17,713
trying to find resources, As I said, there's

1300
00:44:17,713 --> 00:44:19,790
gonna be lots resources down in the bottom.

1301
00:44:20,284 --> 00:44:22,762
But thanks again, Carlos, and I'll be wishing

1302
00:44:22,762 --> 00:44:24,300
the best for you for your

1303
00:44:24,920 --> 00:44:25,420
upcoming

1304
00:44:26,118 --> 00:44:28,995
to be determined date of your Il.

1305
00:44:30,209 --> 00:44:31,647
Procedure and all of that.

1306
00:44:32,526 --> 00:44:32,926
For sure.

1307
00:44:33,565 --> 00:44:33,965
Thank you.

1308
00:44:40,451 --> 00:44:43,003
Thanks for listening to this episode featuring Carlos

1309
00:44:43,163 --> 00:44:46,353
Horn, sharing his story with vets. If you're

1310
00:44:46,353 --> 00:44:48,905
ready to meet others, get involved or need

1311
00:44:48,905 --> 00:44:50,758
support, there are links for you in the

1312
00:44:50,758 --> 00:44:53,076
episode show notes, as well as information on

1313
00:44:53,076 --> 00:44:54,834
how to sign up for the Fed's collaborative.

1314
00:44:55,233 --> 00:44:57,871
A research study for people with beds, mar,

1315
00:44:58,030 --> 00:44:58,750
and lo Dee.

1316
00:44:59,324 --> 00:45:00,919
If you like this show, be sure to

1317
00:45:00,919 --> 00:45:02,992
share it on social media or even better,

1318
00:45:03,232 --> 00:45:05,465
give it a rating or review. You can

1319
00:45:05,465 --> 00:45:07,698
also support the production of this podcast by

1320
00:45:07,698 --> 00:45:11,216
joining my Patreon, or by buying merch. As

1321
00:45:11,216 --> 00:45:13,442
always, my top tier patrons are listed in

1322
00:45:13,442 --> 00:45:15,669
the episode show notes. If you wanna be

1323
00:45:15,669 --> 00:45:17,339
on the next season of the show, there's

1324
00:45:17,339 --> 00:45:19,025
a link in the episode show notes to

1325
00:45:19,025 --> 00:45:21,261
get on the pre interview calendar, and I'll

1326
00:45:21,261 --> 00:45:23,578
be starting the interview process for next season

1327
00:45:23,578 --> 00:45:26,388
in September. In the next episode, we'll be

1328
00:45:26,388 --> 00:45:28,929
talking to Aaron Lang about her story with

1329
00:45:28,929 --> 00:45:30,756
a Us. See you soon.

1330
00:45:35,760 --> 00:45:35,815
We