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- Hey, humans.

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How's it going? Susan Ruth here.

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Thanks for listening to another episode

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of Hey Human Podcast.

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- This - Is episode 3 96, and
my guest is Caner Sherman.

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Caner was 43 when she was diagnosed

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with stage two rectal cancer.

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After holistic options failed.

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And in advanced to stage three, she opted

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for more traditional methods,

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but no one told her about the
toll that would take on her,

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specifically on her sexual organs.

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And she wrote a book about her
experience called Healing the

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Deepest Wounds, where she
talks about the physical

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and emotional toil that chemotherapy

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and radiation caused her.

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And I mean so many others.

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It's something that I think we
all know that the treatments

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for cancer, basically, in a lot of cases,

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bring you within an inch of your life.

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It's, they, they practically
kill you to save you,

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and the aftermath of

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that on the body is just
severe emotionally, physically.

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So she's, she's really open about it.

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In this conversation, we talk about

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everything she went through.

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And just as a trigger warning,

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there are some explicit
conversations in here,

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and be aware of that if
that is something that might

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trigger you or, or something
you might not wanna listen to.

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She has had all sorts of
interesting career paths.

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Uh, most notably now she's
a life coach, a hospice

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spiritual care provider,
and a patient advocate,

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and she tours around and
talks about her experience

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and helps others through
their experiences.

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Check out, hey, human
podcast.com for links.

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And to learn more about
my guests in the show,

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check out Susan ruth.com.

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To learn more about me and
my other artistic endeavors,

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follow Susan Ruth and hey,
human podcast on social media,

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and find my music on Spotify,
apple music, Amazon music,

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wherever you get your music rate.

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Review and subscribe to,
Hey, human podcast on iTunes

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or wherever you get your podcasts.

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Thank you for listening.
Be well, be kind, be love.

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My gosh, we need it
desperately in the world.

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I feel like every time I turn on the news,

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another horrific thing
is going on in the world.

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I'm trying to take in as much
good news as humanly possible,

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as a way to combat all the sadness and,

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and horribleness out there.

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There's more good. I promise there is.

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We have to look for it. Take
care of yourself. Be well.

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Here we go. Nart Sherman,

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welcome to Hey, human.

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- Thank you so much for having me.

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- It's nice to see you.
- Yeah, you too.

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- Shout out to cousin Michael.
- Totally. Hey, Mike.

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- Let's go back to the beginning of you.

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Where were you raised up?
What was family life like?

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What shaped you?

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- So I was born in Israel.

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My parents divorced when I was four.

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And so there was some, a turmoil around

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normal divorces and children.

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And, uh, I lived with my
mom for a while, then moved

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to my dad's, then we
came to the United States

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Middle School here, high school, college.

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Went back to Israel for six
years, did my master's there,

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and then I came back to the United States.

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- And was your master's in mathematics?

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- No. My master's is,
is in the life sciences

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and my first degree is in biochemistry.

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- What drew you to that?
- Um,

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I thought about maybe working in medicine,

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maybe being a physician.

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I wasn't sure. It just happened to be

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that I was good in math and science.

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I got the high school math award

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and the high school science
award and other awards,

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and it was just like the
path kind of rolled that way.

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- What do you remember about
your childhood in Israel?

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I think a lot of people don't really

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know what it's like
there. What do you recall?

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- It's very, uh, communal,
kind of very social.

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It's not like in the United States

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that people live in separate houses.

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They live in apartments.
People own their apartments.

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And so it's easy. Just go downstairs

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and go visit the neighbor's kids.

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There's a lot of kids. A lot of neighbors.

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And it was fun to go

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after school to visit, you know,

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from one person to the next.

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Just a normal childhood
living in the suburbs

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of Tel Aviv in a town called Raman.

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- Only child.
- No, I have an older brother.

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And, uh, too much younger.

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- The fact that your parents
divorced so young did,

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when you were so young, did you end up

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with six stepparents?

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Anything like that that
shaped any part of your life?

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- Oh, yes, definitely. Definitely.

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It, I think it all shaped me.
It all shaped me. Yeah. Yeah.

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My father has been married several times,

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and my mom remarried.

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Definitely. Every stepparent
had some kind of an influence.

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- When you went back to
Israel for six years,

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what brought you then
back to the States again?

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- I went back to Israel
for a million reasons.

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I ended up doing my master's
there, my first one.

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But I went there, uh, also to get close

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with my mom

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and her family to see what it was like

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to live in Israel as an adult.

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At the time. There was,
um, some peace accords,

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uh, between, that were being signed

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between robbing and Arafat.

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That brought a lot of hope for me.

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So I think a lot of reasons together.

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I lived there for about
five and a half years.

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Family situation.

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There was more challenging
for me, family life here.

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People were very warm and accepting.

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And I think with the family
in Israel at the time,

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it was, it was challenging.

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And then my brother,
who was here, called me,

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he would call me on the phone
and say, Hey, I miss you.

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I want you to come and live
here. I miss you. I miss you.

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I miss you. You should
come live here, <laugh>.

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And finally, I did. I
came over. I came back.

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- Sounds like you've had quite a lot

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of changes in your life.

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Uh, I wrote it down, uh, math teacher,

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spiritual psychology,
time, massage, chaplain.

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It's a lot of different lifetimes.

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- Yeah. So I, you know, I think in, in,

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I've always had an artistic side

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and I've always had a science
mathematical kind of side

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and a humanistic kind of side,

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all playing together, um, really nicely.

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And, uh, because I was good at math

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and science, you know, I, I
really wasn't sure, shall I do

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that or shall I go to the performing arts?

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And my dad had a lot

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of influence on me going
into the math and science.

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So I did. But I could see it wasn't my

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passion, but I wasn't sure.

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Research wasn't my passion.
So I, I wasn't sure what was.

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And so then I, I worked as a
teacher for a while, adults,

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uh, children.

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And when I was in middle
school, teaching middle school,

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once there was, um, I had to meet at the,

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at the eighth grade math
teacher's classroom,

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I mean English teacher's classroom.

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And when I went there,
she had a sign on the wall

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and said, you are the author
of your own life story.

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And I couldn't take my eyes
off of it, Susan. I couldn't.

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There was just, something
was fucking my whole presence

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into this one sign.

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You're the author of your own life story.

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And I was 30 years old,
and I thought, oh yeah.

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Oh yeah, wow. I write my life story.

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How's my story right
now? And I thought, wow.

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I'd be so bored if I
were reading my story,

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I'd be super bored.

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And I was like, oh, no, I gotta change.

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And I, and I didn't know what,
the only thing I knew was

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that I had traveled between
the ages of 22 to 30.

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I would just go somewhere
with a backpack by myself

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and travel for two, three months.

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And I said, okay, you're
going to go and travel

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and you're going to come
back when you're ready

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to come back, because the other travels.

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I was never ready to come back.

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And so I went, I took a
leave of absence for a year.

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I went to the Far East.

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And then when I was there,

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probably my third month
in, I was in Thailand.

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And people told me to meditate.

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And a friend of mine sent me off

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to my travels with a book.

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And it, the book said

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that if many people
tell you the same thing,

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you sh it's the universe's
way of telling you

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<laugh>, you need to do it.

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I was not interested in
meditation whatsoever. Zero.

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I had zero, zero.

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And no matter who talked to
me, I said, I'm not interested.

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I, you know, my brainwashed,
my brain is already washed.

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I don't need to wash it again with more

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ideas and more concepts.

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But truth is that I was fascinated.

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Went to a 10 day silent
meditation retreat,

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and I was fascinated and mind opened up

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00:10:01,195 --> 00:10:04,175
and I thought, wow, this is incredible.

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And then I stayed five more days

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00:10:06,495 --> 00:10:09,255
because I was so
fascinated that I asked one

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00:10:09,255 --> 00:10:12,455
of the participants there
to show me what she does,

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because she really, I could
see 10 days I watched her.

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She knew she knew how to meditate,

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00:10:18,155 --> 00:10:19,495
and I was still fidgeting.

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My mind couldn't do it. I
Maria, well, you teach me.

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And she did. She taught me what to do.

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I sat with her three
times a day and I did.

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00:10:29,775 --> 00:10:31,575
I just watched my belly move.

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00:10:32,645 --> 00:10:35,545
And once I could only
focus on that, she said,

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00:10:35,545 --> 00:10:37,505
when a thought comes
through your mind, just,

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just notice it, give it a
name, and then leave it.

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Go back to just noticing the Brits.

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00:10:44,025 --> 00:10:47,545
So the focus was so
much on the movement of

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00:10:48,365 --> 00:10:50,225
my abdomen only.

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I just wouldn't let it my
mind be distracted. Right.

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And then the thoughts started coming

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and I started naming
them, planning, analyzing,

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fantasizing, futurizing.

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00:11:02,145 --> 00:11:03,965
It was just wow, wow, wow.

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00:11:03,965 --> 00:11:07,245
First time in my life I
could see what was running

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00:11:07,515 --> 00:11:09,485
through this mind.

220
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And it was so fascinating.

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I was like, oh, that
was a fun game to play.

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00:11:16,145 --> 00:11:19,325
And then I was like, wow,
I'm playing the game of me.

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It's all about me. Oh, my
ego really love that one.

224
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It's me, it's my show. So
fun. I loved it so much.

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It was so much more interesting
than watching television,

226
00:11:30,885 --> 00:11:33,145
but it was like watching
television, like, oh,

227
00:11:33,435 --> 00:11:34,945
these are the stories that are happening.

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That's what's happening in this screen.

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And then as I watched it more and more,

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'cause I was so fascinated,
there became gaps.

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They just came out of the blue

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because the thoughts started
calming slower and slower.

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So I was watching them and there was gaps.

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And the gaps were so lovely.

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And it took me a while to notice.

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And I then I thought, wow, this is even

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nicer than the thoughts.

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00:12:06,595 --> 00:12:08,335
Wow, wow, wow.

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00:12:10,225 --> 00:12:12,155
Like swimming and quiet.

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And I felt so good.

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00:12:18,125 --> 00:12:22,835
So I just kept doing
it. And it was so fun.

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00:12:23,315 --> 00:12:26,395
I could sit there and
watch one thought, sit

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00:12:26,415 --> 00:12:28,955
and watch thoughts begin to form.

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Not even when they were forming.

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00:12:31,115 --> 00:12:33,755
There's energy coming on my
right and one on my left.

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00:12:34,295 --> 00:12:38,035
And if I watched them, they
wouldn't fuse into a thought.

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They'd just go out of the field.

248
00:12:42,745 --> 00:12:45,765
And it was all about
being present, completely,

249
00:12:46,015 --> 00:12:47,405
completely focused.

250
00:12:48,225 --> 00:12:51,365
And then on the 15th day,
so the five days after,

251
00:12:52,855 --> 00:12:55,045
after the first the attend day meditation

252
00:12:55,045 --> 00:12:57,725
or I, I woke up in the morning
and I sat in the forest,

253
00:12:57,985 --> 00:12:59,565
and then, um,

254
00:13:01,125 --> 00:13:03,125
I waited for thoughts.

255
00:13:03,125 --> 00:13:05,365
And then just the whole construct

256
00:13:05,625 --> 00:13:08,915
of canary left.

257
00:13:09,565 --> 00:13:13,835
There was no canary, just the
whole ego, all the thoughts,

258
00:13:14,015 --> 00:13:16,075
all the feelings, all the memories,

259
00:13:17,265 --> 00:13:19,045
all concepts disappeared.

260
00:13:19,155 --> 00:13:22,435
They just went. And there was

261
00:13:23,175 --> 00:13:27,135
no er, she didn't exist.

262
00:13:29,075 --> 00:13:32,505
It's fake. There was an energy

263
00:13:33,765 --> 00:13:37,265
inside some kind of a
light that was so loving

264
00:13:37,485 --> 00:13:39,585
and so powerful.

265
00:13:41,995 --> 00:13:46,415
And it was the clearest of the clearest

266
00:13:47,675 --> 00:13:49,005
that that was truth.

267
00:13:50,165 --> 00:13:54,435
And the personality was an illusion.

268
00:13:54,735 --> 00:13:57,315
And that all of life is an illusion

269
00:13:58,015 --> 00:13:59,795
of the senses of perception.

270
00:14:01,305 --> 00:14:05,535
That for 30 years, I
had no clue there was,

271
00:14:05,535 --> 00:14:09,055
there's actually no, I, I don't exist.

272
00:14:11,165 --> 00:14:12,935
That was a huge realization.

273
00:14:13,435 --> 00:14:16,455
And that home was inside.

274
00:14:17,155 --> 00:14:20,455
It was not outside, not
in anything or anyone.

275
00:14:22,775 --> 00:14:27,015
It's that light that's beyond

276
00:14:27,815 --> 00:14:29,815
anything that I can see in the physical.

277
00:14:30,915 --> 00:14:33,775
And that energy had no religion

278
00:14:35,295 --> 00:14:37,155
or that energy light, I'm gonna call it.

279
00:14:37,375 --> 00:14:39,715
And it also didn't have a gender,

280
00:14:41,785 --> 00:14:45,325
and it was the most beautiful
thing I've ever experienced.

281
00:14:47,625 --> 00:14:50,165
And so that changed the
trajectory of my life

282
00:14:50,165 --> 00:14:51,805
because I had no context.

283
00:14:52,145 --> 00:14:56,805
So I started going to spiritual centers in

284
00:14:58,285 --> 00:15:00,765
Thailand and, and India.

285
00:15:00,945 --> 00:15:04,605
And what just happened?
<laugh>, what was that?

286
00:15:05,105 --> 00:15:06,205
The ego came back.

287
00:15:07,105 --> 00:15:11,195
The ego came back, and it,
there it was same thing as

288
00:15:11,195 --> 00:15:15,315
before, dealing with the
exact same issues, afraid,

289
00:15:15,895 --> 00:15:20,235
scared, doubtful, <laugh>, righteous,

290
00:15:21,035 --> 00:15:23,435
judgmental, on and on and on and on.

291
00:15:23,435 --> 00:15:28,105
And I thought, wow, wow.
What do I do with that?

292
00:15:28,895 --> 00:15:33,745
There's this spiritual, and
then there's what the ego does,

293
00:15:33,885 --> 00:15:35,705
and how do I live like that?

294
00:15:37,095 --> 00:15:40,945
Yeah. So then, you know, I
wasn't interested anymore in

295
00:15:41,825 --> 00:15:43,705
teaching in, I wasn't,

296
00:15:43,705 --> 00:15:45,905
the only thing I was interested was going

297
00:15:45,905 --> 00:15:49,185
to meditation centers and meditating

298
00:15:49,285 --> 00:15:51,425
and learning more about
the spiritual life.

299
00:15:51,725 --> 00:15:53,585
So that's how, you know, things changed.

300
00:15:53,865 --> 00:15:58,265
I went from science teaching to

301
00:16:00,525 --> 00:16:03,925
spiritual understandings and
learning more about that.

302
00:16:05,265 --> 00:16:06,675
What is that? Yeah.

303
00:16:07,135 --> 00:16:10,355
- How does a soul, for
lack of a better word

304
00:16:10,355 --> 00:16:14,195
or energy, exist in a world

305
00:16:14,225 --> 00:16:16,995
that requires food and water and shelter

306
00:16:17,135 --> 00:16:18,595
and healthcare and all of that.

307
00:16:18,855 --> 00:16:23,075
How do you find the intersection
that allows for you to be

308
00:16:23,895 --> 00:16:25,555
of spirit,

309
00:16:25,975 --> 00:16:30,715
but also know that the shell
casing the spirit's been shoved

310
00:16:30,715 --> 00:16:34,075
into has to be cared for
without being, I mean,

311
00:16:34,255 --> 00:16:36,555
how does one be in it and not be of it?

312
00:16:36,985 --> 00:16:39,235
- Well, somehow we find ourselves in this,

313
00:16:39,735 --> 00:16:41,355
in this body suit, right?

314
00:16:42,315 --> 00:16:43,995
<laugh> somehow.

315
00:16:45,255 --> 00:16:50,135
And so we, we get to
choose, we get to choose

316
00:16:51,225 --> 00:16:56,135
how we wanna care for this
expression of life through us.

317
00:16:57,975 --> 00:17:00,915
And do we wanna, how much we want to play

318
00:17:02,335 --> 00:17:04,835
and what we want to play
in the world of form.

319
00:17:05,615 --> 00:17:08,395
As long as we keep it as
play, of course we forget.

320
00:17:08,935 --> 00:17:11,555
We forget that it's play.

321
00:17:13,035 --> 00:17:15,875
- Absolutely. So that
what drew you into then

322
00:17:16,735 --> 00:17:18,835
the spiritual psychology degree?

323
00:17:18,865 --> 00:17:20,755
Explain what that is, first of all. Yeah,

324
00:17:20,755 --> 00:17:21,755
- Yeah.

325
00:17:21,755 --> 00:17:23,435
So, you know, after I came
back, it was clear to me

326
00:17:23,435 --> 00:17:25,675
that I couldn't just be a regular teacher

327
00:17:26,375 --> 00:17:28,515
and that I needed to find a vocation

328
00:17:28,585 --> 00:17:29,915
that would be better suited

329
00:17:29,935 --> 00:17:31,475
for my new understanding of life.

330
00:17:31,695 --> 00:17:33,275
And so I was looking around

331
00:17:33,335 --> 00:17:35,595
and I found the University of Santa Monica

332
00:17:35,735 --> 00:17:38,315
and I enrolled in spiritual
psychology program,

333
00:17:38,445 --> 00:17:39,675
which was a master's program.

334
00:17:40,535 --> 00:17:44,195
And it's about the understanding
that we are, you know,

335
00:17:44,195 --> 00:17:46,555
there's a spirit having
a human experience.

336
00:17:46,855 --> 00:17:48,835
And again, how do we reconcile the two?

337
00:17:49,465 --> 00:17:51,525
How do we draw on the spiritual side

338
00:17:51,785 --> 00:17:55,685
and yet still address our
human side, which judges

339
00:17:55,945 --> 00:17:59,605
and blames and has big feelings

340
00:18:00,345 --> 00:18:02,565
and tantrums all over the place,

341
00:18:03,265 --> 00:18:05,765
and how do we reconcile the two?

342
00:18:06,585 --> 00:18:10,765
And so it did call
upon, you know, speaking

343
00:18:10,795 --> 00:18:15,485
with our higher self or our
soul self, uh, for guidance.

344
00:18:16,435 --> 00:18:19,605
There's a lot of metaphysical
learning there too, about

345
00:18:19,625 --> 00:18:23,755
how do we focus, where does
our mind focus as far as

346
00:18:23,755 --> 00:18:25,515
what we're creating in the

347
00:18:27,395 --> 00:18:28,395
- World?

348
00:18:28,395 --> 00:18:29,835
Did you have an idea of
where you wanted to take

349
00:18:29,835 --> 00:18:33,675
that degree, or was it more
about being in the learning

350
00:18:33,775 --> 00:18:34,955
and see what happens next?

351
00:18:35,655 --> 00:18:38,115
- It was being in the learning
and seeing what happens next.

352
00:18:38,975 --> 00:18:40,035
- Mm-Hmm. <affirmative>.
- Yeah.

353
00:18:40,175 --> 00:18:44,075
- So what happens next?
- Well,

354
00:18:44,675 --> 00:18:46,115
I still didn't know what to do.

355
00:18:46,435 --> 00:18:49,515
I, I did study a Thai massage
when I was in Thailand,

356
00:18:49,895 --> 00:18:52,355
so I said, well, why don't I do massage?

357
00:18:52,475 --> 00:18:54,835
I couldn't, I couldn't,
uh, work in a regular job.

358
00:18:55,535 --> 00:18:59,795
So I babysat family were all freaked out

359
00:18:59,795 --> 00:19:01,995
because I wasn't normal.

360
00:19:03,095 --> 00:19:05,315
And they were very concerned

361
00:19:05,315 --> 00:19:07,035
that I wouldn't have
money to pay for life.

362
00:19:07,135 --> 00:19:09,475
So they started sending
me people to babysit.

363
00:19:09,655 --> 00:19:10,755
All of a sudden, out of nowhere,

364
00:19:10,755 --> 00:19:12,235
people were calling me to babysit.

365
00:19:12,415 --> 00:19:14,235
And I was like, who are you? <laugh>?

366
00:19:14,985 --> 00:19:18,115
Well, your uncles gave me your
number, my uncle gave you.

367
00:19:18,575 --> 00:19:21,475
Oh, right. You know, nice Jewish family.

368
00:19:21,475 --> 00:19:24,275
Nobody asks, they just
send people to call you.

369
00:19:24,595 --> 00:19:28,155
I started to babysit and I
started doing time massage,

370
00:19:28,335 --> 00:19:29,675
and I started pet sitting.

371
00:19:30,695 --> 00:19:33,115
And that's how I lived
for about eight years.

372
00:19:33,295 --> 00:19:34,475
And about a year

373
00:19:34,645 --> 00:19:36,835
after I finished the,

374
00:19:36,975 --> 00:19:39,315
the spiritual psychology
program, I was doing massage.

375
00:19:40,215 --> 00:19:41,635
And a woman came in

376
00:19:42,495 --> 00:19:45,825
and she was, um, wow.

377
00:19:45,845 --> 00:19:49,265
She came in and it was like the
dark, I don't know what kind

378
00:19:49,265 --> 00:19:51,385
of dark spirit she was in.

379
00:19:51,925 --> 00:19:54,615
And I was like, wow, whoa.

380
00:19:54,845 --> 00:19:56,855
That was like some
darkness around this lady.

381
00:19:57,195 --> 00:20:00,375
And I said, Hey, what's going ons?

382
00:20:00,465 --> 00:20:02,665
Even though I was doing
massage, I, I couldn't,

383
00:20:02,825 --> 00:20:03,825
I couldn't let her,

384
00:20:03,985 --> 00:20:07,185
I couldn't let her be
the slow, it bothered me.

385
00:20:07,325 --> 00:20:08,865
So I said, Hey, what's going on?

386
00:20:09,925 --> 00:20:11,905
You know, I sat and I talked
with her a little bit.

387
00:20:12,185 --> 00:20:14,785
I, you know, reflected
back kind of what I heard.

388
00:20:14,965 --> 00:20:17,345
And, and then I said, you know, I see life

389
00:20:17,345 --> 00:20:20,065
and I see what you said in
a totally different way,

390
00:20:20,765 --> 00:20:22,025
you know, would you like to hear?

391
00:20:22,125 --> 00:20:25,915
And she did. And then she
had such a transformation.

392
00:20:26,975 --> 00:20:28,275
She was like a different person.

393
00:20:28,375 --> 00:20:30,755
She had light, she had a smile.

394
00:20:31,195 --> 00:20:32,795
I was like, wow, that, that was amazing.

395
00:20:33,575 --> 00:20:35,795
She came back like two weeks later

396
00:20:35,855 --> 00:20:37,515
and she said, I don't know what you did,

397
00:20:37,735 --> 00:20:42,715
but I was on a high,
like for a whole week.

398
00:20:42,935 --> 00:20:45,875
And then slowly started coming
down and I became me again.

399
00:20:47,475 --> 00:20:49,965
Yeah. And so then I
started working with people

400
00:20:50,575 --> 00:20:54,045
- Doing energy work or time
massage or both together,

401
00:20:55,435 --> 00:20:57,885
- Like talking to them and doing massage

402
00:20:58,875 --> 00:20:59,875
- Both.

403
00:20:59,875 --> 00:21:02,205
Yeah. And then 2015 happens.

404
00:21:03,305 --> 00:21:05,285
- Yes, 2015 happened

405
00:21:05,705 --> 00:21:09,205
and I, uh, started feeling odd.

406
00:21:09,225 --> 00:21:11,725
And then there was, there was like blood,

407
00:21:12,195 --> 00:21:14,725
like a blood clump smeared on the stool.

408
00:21:15,585 --> 00:21:17,005
And I went to the doctor

409
00:21:17,105 --> 00:21:20,295
and I was diagnosed with rectal cancer

410
00:21:20,955 --> 00:21:22,895
- At age 43 ish.

411
00:21:23,595 --> 00:21:25,135
- Yes. 43. mm-Hmm.

412
00:21:25,255 --> 00:21:28,855
- <affirmative>. Yeah.
And was that, did you have

413
00:21:28,855 --> 00:21:31,375
that in your family
history? Was it shocking?

414
00:21:32,045 --> 00:21:34,055
- Yeah, it was shocking. Yes.

415
00:21:34,275 --> 00:21:38,135
My parents don't have cancer and didn't,

416
00:21:38,235 --> 00:21:41,015
and only one grandparent had cancer,

417
00:21:41,315 --> 00:21:42,975
and that was when she was 68.

418
00:21:43,155 --> 00:21:45,535
So here I was at 43,

419
00:21:45,795 --> 00:21:48,615
and yeah, this came outta
left field completely.

420
00:21:50,245 --> 00:21:54,105
- And did they have any
indication at the time as to

421
00:21:54,105 --> 00:21:56,305
what might have brought it on,

422
00:21:56,305 --> 00:21:57,865
and did you have any symptoms other

423
00:21:57,865 --> 00:21:59,785
than seeing blood in the stool? So

424
00:21:59,785 --> 00:22:01,425
- Blood in the stool was the first thing.

425
00:22:03,165 --> 00:22:04,365
A little bit after that.

426
00:22:04,365 --> 00:22:07,085
There was like something in the pelvis,

427
00:22:07,555 --> 00:22:09,725
something in the pelvis wasn't right,

428
00:22:10,705 --> 00:22:12,845
and I could feel something odd.

429
00:22:12,865 --> 00:22:15,765
And I didn't know if it
was the female organs.

430
00:22:16,315 --> 00:22:17,485
Something was odd.

431
00:22:18,185 --> 00:22:22,725
And then I started feeling
a sucking sensation again

432
00:22:23,185 --> 00:22:27,965
inside my pelvis as if
something was sucking my blood

433
00:22:27,985 --> 00:22:30,165
or the, my body's blood onto itself.

434
00:22:31,365 --> 00:22:33,915
I could feel it. And I,

435
00:22:33,975 --> 00:22:35,795
and I didn't know, I knew
it was in the pelvis,

436
00:22:36,255 --> 00:22:38,035
and I remember telling people that,

437
00:22:38,135 --> 00:22:41,635
but I was like, that is
such a weird sensation.

438
00:22:42,975 --> 00:22:46,575
So, so weird. And then hemorrhoids.

439
00:22:46,995 --> 00:22:49,895
So hemorrhoids are also quite normal

440
00:22:50,395 --> 00:22:51,775
for people with rectal cancer.

441
00:22:51,945 --> 00:22:55,455
Often patients go to
their primary physician

442
00:22:55,455 --> 00:22:57,815
and they say, oh, I'm seeing
some blood on the stool.

443
00:22:58,355 --> 00:22:59,495
And then the physician looks

444
00:22:59,695 --> 00:23:01,215
and says, oh, you have hemorrhoids.

445
00:23:01,395 --> 00:23:02,935
Go home and take a hemorrhoid cream.

446
00:23:03,975 --> 00:23:06,475
And that's what happened
to me also, except

447
00:23:06,475 --> 00:23:08,235
that I knew it wasn't the hemorrhoids,

448
00:23:08,235 --> 00:23:11,395
because I'm, I didn't have
hemorrhoids usually, like

449
00:23:11,505 --> 00:23:14,235
what was causing the
hemorrhoids, you know?

450
00:23:14,235 --> 00:23:16,715
So I was, I was nice and I
took the, the hemorrhoid.

451
00:23:16,875 --> 00:23:18,595
I didn't take the hemorrhoid cream.

452
00:23:18,755 --> 00:23:20,275
I, I just went back a week

453
00:23:20,275 --> 00:23:21,515
later and said, something's not right.

454
00:23:21,615 --> 00:23:23,115
I'm feeling a whole lot of things here.

455
00:23:23,495 --> 00:23:24,595
Please do more testing.

456
00:23:25,575 --> 00:23:26,795
And then they did more testing

457
00:23:27,215 --> 00:23:28,515
and everything came back normal.

458
00:23:28,615 --> 00:23:31,795
And I, and I, and then my
roommate said, you know,

459
00:23:31,795 --> 00:23:32,995
do you wanna have a colonoscopy?

460
00:23:32,995 --> 00:23:36,075
And I said, I do. And I, I
went back to the doctor again

461
00:23:36,075 --> 00:23:38,515
and I said, I want to have a colonoscopy.

462
00:23:39,905 --> 00:23:42,405
I'm actually not gonna leave
this office until you tell me

463
00:23:42,405 --> 00:23:45,325
that you, you're putting a
referral to a gastroenterologist.

464
00:23:46,585 --> 00:23:50,925
And I hear this so many
times from so many patients.

465
00:23:51,505 --> 00:23:54,405
Oh, I went, they told
me it was a hemorrhoid.

466
00:23:55,025 --> 00:23:58,405
So I went home, I went,
they did some testing,

467
00:23:58,435 --> 00:24:01,325
they said everything was
okay, and I went home.

468
00:24:01,545 --> 00:24:04,165
And then I, and then they
wait six months, a year,

469
00:24:05,005 --> 00:24:07,725
18 months, and then
diagnosed with stage four.

470
00:24:08,415 --> 00:24:11,085
- Right? I mean, we have to
be advocates for ourselves

471
00:24:11,085 --> 00:24:14,165
because we are in our
bodies and nobody else is.

472
00:24:14,745 --> 00:24:18,045
And doctors may see
things on a nonstop basis,

473
00:24:18,385 --> 00:24:21,165
and they, they're not us.

474
00:24:21,165 --> 00:24:22,685
They're not in our bodies.

475
00:24:22,955 --> 00:24:26,405
It's so, so important to,
I mean, they work for us.

476
00:24:27,015 --> 00:24:29,365
Let's be clear that we have to demand

477
00:24:30,595 --> 00:24:32,985
tests when we feel like
we need to get them.

478
00:24:33,845 --> 00:24:36,145
- Yes, absolutely. Women
- Especially.

479
00:24:36,765 --> 00:24:37,785
- Yes, absolutely.

480
00:24:38,805 --> 00:24:41,065
- And people of color,
people of color as well.

481
00:24:41,065 --> 00:24:42,145
People tend to be ignored.

482
00:24:42,775 --> 00:24:46,585
- Yeah. Yeah. But yes, we are
the ones living in our bodies.

483
00:24:46,765 --> 00:24:50,105
And so it's, it's our job to advocate.

484
00:24:50,255 --> 00:24:51,385
It's our job to go

485
00:24:51,525 --> 00:24:53,905
and say, okay, you didn't
hear me the first time.

486
00:24:54,045 --> 00:24:56,105
Let me say it in a way. You can hear me.

487
00:24:56,285 --> 00:24:57,585
How can you, what, what is,

488
00:24:57,585 --> 00:24:59,625
what is it gonna take
for you to hear me? Did

489
00:24:59,745 --> 00:25:00,825
- They push back with you?

490
00:25:01,855 --> 00:25:04,745
- Yeah, because when, when
a person is under the,

491
00:25:04,845 --> 00:25:08,585
the normal age of whatever
they decide the testing is.

492
00:25:09,455 --> 00:25:10,545
Yeah. Yeah.

493
00:25:10,685 --> 00:25:13,385
So like I said, I had to
return three times before,

494
00:25:13,765 --> 00:25:16,665
before I was referred
to a gastroenterologist.

495
00:25:16,685 --> 00:25:19,345
And the first time I spoke
with a gastroenterologist

496
00:25:19,345 --> 00:25:23,025
and I was describing my sis
my symptoms on the phone,

497
00:25:23,575 --> 00:25:25,425
they said, oh, honey, you gotta come in

498
00:25:25,425 --> 00:25:27,105
and you gotta come in like fast.

499
00:25:28,245 --> 00:25:33,215
They knew already. So how
shocking, you know, between,

500
00:25:33,875 --> 00:25:35,215
you know, the primary care physician

501
00:25:35,215 --> 00:25:38,335
and the specialist who knew
exactly what I was dealing with,

502
00:25:38,595 --> 00:25:39,815
bef, you know, they probably didn't

503
00:25:39,815 --> 00:25:40,855
even need the colonoscopy

504
00:25:41,865 --> 00:25:45,815
- Level of care with specialists
is hopefully they listen a

505
00:25:45,815 --> 00:25:47,055
little bit more clearly.

506
00:25:47,315 --> 00:25:50,935
So you are diagnosed with
stage two rectal cancer.

507
00:25:51,915 --> 00:25:54,655
- Yes.
- You're diagnosed stage two,

508
00:25:56,075 --> 00:25:58,775
and what happens next?

509
00:25:58,925 --> 00:26:01,335
They say, here are your options.

510
00:26:01,545 --> 00:26:04,255
We're gonna give you chemo or radiation.

511
00:26:04,555 --> 00:26:08,655
And you didn't take to
those options very well.

512
00:26:09,565 --> 00:26:12,415
- Yeah, I was actually
quite shocked, you know,

513
00:26:12,415 --> 00:26:13,655
at, at the treatments.

514
00:26:14,075 --> 00:26:16,655
Um, it was going to be radiation

515
00:26:16,675 --> 00:26:18,935
and chemo followed by a surgery

516
00:26:19,515 --> 00:26:21,775
and having an, an ileostomy

517
00:26:22,635 --> 00:26:25,375
and then an, and then more
chemo. And another surgery.

518
00:26:25,605 --> 00:26:27,255
- Explain what an ileostomy is.

519
00:26:27,475 --> 00:26:32,215
- An ileostomy is an
opening in the abdomen

520
00:26:32,625 --> 00:26:36,015
where the end of the
small intestine is called.

521
00:26:36,035 --> 00:26:40,215
The ileum is pulled
out outside of the body

522
00:26:40,595 --> 00:26:44,715
and then cut, and then then feces

523
00:26:45,255 --> 00:26:48,195
or digested food goes outside of

524
00:26:48,935 --> 00:26:50,755
the abdomen into a pouch.

525
00:26:51,705 --> 00:26:53,965
And that's instead of using

526
00:26:54,665 --> 00:26:58,915
the large this intestine, um, system,

527
00:26:59,545 --> 00:27:03,795
because in that particular
surgery they cut out

528
00:27:04,615 --> 00:27:07,435
the rectum, uh, with the sigmoid colon

529
00:27:07,855 --> 00:27:09,515
and they want the area to heal.

530
00:27:10,095 --> 00:27:14,795
And so then, then create this
stoma, this opening outside

531
00:27:15,175 --> 00:27:19,675
of the body for a few
months until the area heals.

532
00:27:20,375 --> 00:27:23,435
So those, those treatments
to me, seemed really harsh.

533
00:27:23,635 --> 00:27:26,515
I was scared of radiation, I
was scared of, of chemotherapy.

534
00:27:27,355 --> 00:27:30,675
I did know what, what they
would cause long term.

535
00:27:31,295 --> 00:27:32,395
So I refused it.

536
00:27:33,175 --> 00:27:35,715
And I listened to something called,

537
00:27:36,095 --> 00:27:37,235
uh, the Truth about Cancer.

538
00:27:37,575 --> 00:27:41,025
And I heard a lot of stories of people

539
00:27:41,045 --> 00:27:42,745
who healed from cancer naturally.

540
00:27:42,765 --> 00:27:46,155
And I decided to try. And so I did.

541
00:27:46,355 --> 00:27:49,635
I tried, um, many different

542
00:27:50,205 --> 00:27:53,065
modalities, treatment plans.

543
00:27:53,885 --> 00:27:56,745
- Did you get pushback
from your doctors for that?

544
00:27:57,785 --> 00:28:00,025
- I did, yes. Yes.

545
00:28:00,035 --> 00:28:02,945
There was definitely,
I'm gonna say judgment.

546
00:28:04,325 --> 00:28:08,825
Um, and many doctors, you know,

547
00:28:08,825 --> 00:28:10,665
they were very concerned for me.

548
00:28:10,765 --> 00:28:12,585
I'm gonna say they were concerned for me.

549
00:28:12,965 --> 00:28:15,065
And so they, they thought I was crazy.

550
00:28:15,845 --> 00:28:19,495
And you know, that for rectal cancer,

551
00:28:20,795 --> 00:28:25,785
the traditional medicine has

552
00:28:25,905 --> 00:28:30,385
a pretty high success rate, curing rate.

553
00:28:31,165 --> 00:28:35,305
And so they were concerned that
I was doing something that,

554
00:28:35,965 --> 00:28:38,385
you know, I would not recover from.

555
00:28:38,925 --> 00:28:42,865
And so it came at me with a judgment

556
00:28:43,205 --> 00:28:44,785
and a lot of concern.

557
00:28:44,925 --> 00:28:47,425
And that was challenging, you know,

558
00:28:47,585 --> 00:28:50,545
'cause I still needed to,
to have, um, scans done

559
00:28:51,435 --> 00:28:54,225
while I was doing what it,
whatever method I was doing.

560
00:28:54,975 --> 00:28:57,745
- Were you afraid of
the chemo and radiation

561
00:28:57,775 --> 00:29:00,945
because of the damage those things do

562
00:29:00,945 --> 00:29:02,105
while they're killing the cancer?

563
00:29:02,485 --> 00:29:05,825
Or was there something else
that made you afraid of it?

564
00:29:06,455 --> 00:29:10,705
- Many things. Radiation
to, with rectal cancer,

565
00:29:10,885 --> 00:29:14,825
the rectum sits right under
the vagina, the uterus,

566
00:29:15,005 --> 00:29:16,665
the bladder, the ovaries.

567
00:29:16,685 --> 00:29:18,385
And so they were all going to get hit.

568
00:29:19,605 --> 00:29:21,745
And the long-term effects from all

569
00:29:21,745 --> 00:29:23,425
of those I wasn't sure about.

570
00:29:24,545 --> 00:29:27,585
I knew that my, my
grandmother had osteoporosis

571
00:29:27,645 --> 00:29:29,065
and she had a hysterectomy

572
00:29:29,245 --> 00:29:31,745
and an, was it called it ooo ectomy, uh,

573
00:29:31,745 --> 00:29:35,905
what we ectomy when they take
out also the, the ovaries.

574
00:29:36,605 --> 00:29:38,785
And, and then she became hunched back.

575
00:29:38,945 --> 00:29:40,105
I was concerned about that.

576
00:29:40,785 --> 00:29:44,965
I was still considering
getting pregnant with a partner

577
00:29:45,475 --> 00:29:46,645
that I didn't have yet.

578
00:29:46,865 --> 00:29:49,125
So all, all of those reasons, um,

579
00:29:50,205 --> 00:29:52,965
I was concerned and afraid of. Yeah.

580
00:29:53,785 --> 00:29:56,885
- And what were the alternative
treatments you sought? Um,

581
00:29:58,585 --> 00:30:00,885
- The first one we did
a lot of cleansings.

582
00:30:02,355 --> 00:30:05,455
So I took a lot of herbs and mushrooms

583
00:30:05,915 --> 00:30:08,135
and did a lot of cleansings

584
00:30:08,135 --> 00:30:11,455
and went to, um, a guy that had a machine

585
00:30:11,455 --> 00:30:14,655
that would scan the body and
like, like a rife machine,

586
00:30:14,795 --> 00:30:17,855
and then would, um, send back frequencies

587
00:30:18,395 --> 00:30:20,095
to kill the, the cancer.

588
00:30:21,935 --> 00:30:26,375
I did that. Um, I went to, um, saunas

589
00:30:27,155 --> 00:30:28,495
to do some heat therapies.

590
00:30:29,615 --> 00:30:34,415
I did UV bloody radiation, uh,

591
00:30:34,545 --> 00:30:39,155
three weeks of vitamins C um,

592
00:30:39,495 --> 00:30:41,915
le trill, which is apricot pit

593
00:30:43,355 --> 00:30:46,835
ozone insufflation, which means
there's a catheter that goes

594
00:30:47,015 --> 00:30:50,515
inside the rectum and it's
hooked up to an ozone machine.

595
00:30:50,575 --> 00:30:55,395
And I would put that because
ozone supposedly o has

596
00:30:55,395 --> 00:30:58,075
to, has a lot of oxygen
and that can kill cancer.

597
00:30:58,295 --> 00:31:00,515
So I did a lot of different things.

598
00:31:01,295 --> 00:31:03,995
Um, later on I went to,
uh, hope for Cancer.

599
00:31:04,425 --> 00:31:05,835
It's a, a clinic in Mexico.

600
00:31:06,175 --> 00:31:09,225
And I did their, their program

601
00:31:09,965 --> 00:31:12,745
and their program halted the growth.

602
00:31:13,765 --> 00:31:17,305
Um, so it stayed, let's
say at five centimeters.

603
00:31:17,685 --> 00:31:20,265
So if at first it was 1.8, then

604
00:31:20,265 --> 00:31:22,465
what I was doing the first
step, the first things

605
00:31:22,465 --> 00:31:26,545
that I was doing, it went
to 2.2, then 4.5, then five.

606
00:31:27,365 --> 00:31:30,265
- So it was really growing
during the alternative therapies.

607
00:31:30,645 --> 00:31:34,545
- It was,
- That didn't dissuade you at all?

608
00:31:35,365 --> 00:31:38,505
- Not yet, no. I, I kept
believing that there's a way

609
00:31:38,605 --> 00:31:39,785
as a way to make it work.

610
00:31:39,805 --> 00:31:42,185
It worked for them. Why
wouldn't it work for me?

611
00:31:42,325 --> 00:31:44,225
You know, it works for some people.

612
00:31:44,845 --> 00:31:46,585
So I just kept reading about people

613
00:31:46,645 --> 00:31:47,705
who were healing from it.

614
00:31:47,805 --> 00:31:49,505
And I said, okay, well if this is not

615
00:31:49,505 --> 00:31:50,545
it, well, let me try this.

616
00:31:51,325 --> 00:31:52,385
The hope for cancer,

617
00:31:52,595 --> 00:31:55,105
their things kept it at five centimeters.

618
00:31:55,485 --> 00:32:00,255
And, but it was $2,000
each month in addition

619
00:32:00,255 --> 00:32:04,515
to the 42,000 that I paid for three weeks

620
00:32:05,605 --> 00:32:08,185
and three and three months
supply of the medication.

621
00:32:08,205 --> 00:32:10,065
And I thought, wow, that's too much money

622
00:32:10,215 --> 00:32:11,705
that I'm not going to have.

623
00:32:12,525 --> 00:32:13,545
So I got off of that.

624
00:32:13,745 --> 00:32:16,705
I went to the Optimum Health
Institute in San Diego.

625
00:32:17,465 --> 00:32:19,065
I did their three week cleanse,

626
00:32:19,065 --> 00:32:22,345
and then I maintained
their program at home.

627
00:32:22,895 --> 00:32:25,225
Then I did a scan and
it was 10 centimeters.

628
00:32:26,785 --> 00:32:29,245
- So that's then stage three.

629
00:32:30,195 --> 00:32:32,325
- Yeah. Then it's, yeah,
I started moving to,

630
00:32:32,625 --> 00:32:33,885
to the lymph nodes.

631
00:32:34,025 --> 00:32:36,285
Yes. And, but I didn't give up.

632
00:32:36,885 --> 00:32:39,725
I did a three week green juice fast.

633
00:32:39,935 --> 00:32:41,325
There was just some vegetables.

634
00:32:41,995 --> 00:32:44,845
- Were people around
you losing their minds

635
00:32:44,915 --> 00:32:49,365
that you were not seeing, that
you weren't getting results

636
00:32:49,505 --> 00:32:53,005
and worrying that you were
heading toward the abyss?

637
00:32:53,545 --> 00:32:56,445
- Yes. Yes. They were all very scared.

638
00:32:57,865 --> 00:33:01,645
And they all knew that it's
my life, it's my choices.

639
00:33:02,245 --> 00:33:05,045
I get to try things the
way I get to try them.

640
00:33:06,165 --> 00:33:07,565
I think they were rooting for me,

641
00:33:07,625 --> 00:33:09,885
but they were so scared they had no idea

642
00:33:09,885 --> 00:33:11,085
if I was gonna live or not.

643
00:33:11,435 --> 00:33:14,165
Yeah. That was, that was, you
know, wow. That was so tough.

644
00:33:14,165 --> 00:33:17,445
At the beginning. I had to tell
everybody, I said, you know,

645
00:33:17,445 --> 00:33:18,605
you might get scared about this,

646
00:33:18,625 --> 00:33:20,205
but if you get scared,
I'm gonna get scared.

647
00:33:20,205 --> 00:33:21,205
And I don't wanna get scared.

648
00:33:22,405 --> 00:33:24,385
You know, I, I'm gonna
walk some kind of a path.

649
00:33:24,485 --> 00:33:28,705
I'm gonna try it, hope it
works, and please be supportive.

650
00:33:28,765 --> 00:33:31,545
And if you can't be
supportive, then, you know,

651
00:33:31,555 --> 00:33:34,465
let's not hang out until, until I can.

652
00:33:34,845 --> 00:33:37,345
- So what happened next?
- Well, you know, nothing worked.

653
00:33:37,445 --> 00:33:40,665
So I had to finally,
you know, I, I went to,

654
00:33:40,765 --> 00:33:42,865
um, to an oncologist.

655
00:33:43,005 --> 00:33:44,665
He was really challenging for me.

656
00:33:44,865 --> 00:33:47,225
'cause he was, I think,
really frightened for me.

657
00:33:47,645 --> 00:33:50,185
But he was also like, you're gonna die.

658
00:33:51,985 --> 00:33:54,415
Don't you wanna be cured?
Don't you wanna be cured?

659
00:33:55,195 --> 00:33:59,015
Go talk to this surgeon. We're
really lucky to have him.

660
00:33:59,235 --> 00:34:01,735
And at the same day, you know, I insisted

661
00:34:01,735 --> 00:34:05,845
that my cousin come with me,
insisted that my cousin come

662
00:34:05,845 --> 00:34:06,965
with me because I'm single.

663
00:34:07,065 --> 00:34:08,005
So different people would

664
00:34:08,005 --> 00:34:09,005
come with me to doctor appointments.

665
00:34:09,265 --> 00:34:10,325
Her mom said, I'll come with you.

666
00:34:10,325 --> 00:34:12,005
And I said, no, I want her to come.

667
00:34:12,115 --> 00:34:13,325
Like, it was so clear

668
00:34:13,325 --> 00:34:15,085
that my c this cousin had to come with me.

669
00:34:15,905 --> 00:34:17,045
And when she came

670
00:34:17,065 --> 00:34:20,565
and he said the name of
the surgeon, she said, oh,

671
00:34:21,945 --> 00:34:23,245
Ste Steen, Dr.

672
00:34:23,565 --> 00:34:27,165
Steen. I, I know his wife.
She was my gynecologist.

673
00:34:27,225 --> 00:34:29,805
Oh, I love her. She's great.
She's great, he's great.

674
00:34:30,105 --> 00:34:32,285
And you know what, there
was something about that

675
00:34:33,585 --> 00:34:36,155
that made me say, okay,
I'll go talk to him.

676
00:34:38,335 --> 00:34:41,865
Yeah. And so I did talk to
him. He was a wonderful guy.

677
00:34:43,025 --> 00:34:45,305
I asked him about the treatments.

678
00:34:45,965 --> 00:34:48,425
Um, I, you know, really appreciated him.

679
00:34:48,445 --> 00:34:51,345
He was, he was very kind
to me with no judgment.

680
00:34:51,565 --> 00:34:54,265
And he was willing to
consider all possibilities.

681
00:34:55,995 --> 00:35:00,735
- Do you find that there
is an irony to the fact

682
00:35:00,735 --> 00:35:03,735
that the thing that you feared
most about what would happen

683
00:35:04,515 --> 00:35:08,135
had you done this traditional
quote, unquote way

684
00:35:08,135 --> 00:35:11,935
of going about killing a
cancer when it was still

685
00:35:12,605 --> 00:35:17,015
only stage two, that now
at stage three to four was

686
00:35:18,175 --> 00:35:19,415
starting to overwhelm your body

687
00:35:19,555 --> 00:35:22,135
and then would create the
scenario where things would

688
00:35:23,115 --> 00:35:25,655
get really hairy, if you will?

689
00:35:26,995 --> 00:35:29,255
- You know, I never, I
didn't think about it.

690
00:35:29,775 --> 00:35:31,935
I didn't think about it. I was just like,

691
00:35:32,125 --> 00:35:33,215
this is my next step.

692
00:35:33,925 --> 00:35:37,665
This is my next step. Just,
just looking at the next step.

693
00:35:37,805 --> 00:35:41,625
That's it. I mean, and
when I got that, you know,

694
00:35:41,785 --> 00:35:45,485
'cause I was still doing
all these things, you know,

695
00:35:45,505 --> 00:35:48,265
the beamer all the time.

696
00:35:48,645 --> 00:35:52,195
And when I got the report one day

697
00:35:52,615 --> 00:35:57,375
and it said that the meso rectal fat

698
00:35:58,355 --> 00:35:59,375
was thick

699
00:36:01,135 --> 00:36:05,235
and a couple of lymph nodes,
you know, had involvements.

700
00:36:05,295 --> 00:36:09,485
The meso rectal fat is
outside of the rectum.

701
00:36:09,485 --> 00:36:12,725
And that's when I was like, okay, <laugh>,

702
00:36:13,155 --> 00:36:14,605
it's going out of the rectum.

703
00:36:14,605 --> 00:36:19,245
If I don't address it right
now, it is gonna be stage four

704
00:36:20,235 --> 00:36:20,735
- Mm-Hmm. <affirmative>.

705
00:36:21,285 --> 00:36:25,065
- Yeah. And that's when I put

706
00:36:25,065 --> 00:36:26,625
that switch on and it was really hard.

707
00:36:26,685 --> 00:36:30,185
It was really hard to say,
okay, I'm gonna surrender

708
00:36:30,285 --> 00:36:32,665
and I'm gonna need to use
these really harsh treatments.

709
00:36:34,135 --> 00:36:36,035
- And you did get damaged from it?

710
00:36:36,635 --> 00:36:38,075
- I did. Mm-Hmm.
- <affirmative>, can we

711
00:36:38,075 --> 00:36:40,275
talk about that a little bit?
Whatever you're comfortable

712
00:36:40,275 --> 00:36:41,275
- With.

713
00:36:41,275 --> 00:36:42,555
Yeah, yeah, definitely. Yeah.

714
00:36:43,295 --> 00:36:47,355
So with radiation, radiation
to the pelvis means it's going

715
00:36:47,355 --> 00:36:48,555
to hit all these organs

716
00:36:48,555 --> 00:36:51,875
for a woman in the pelvis and ferment too.

717
00:36:52,615 --> 00:36:55,355
Uh, but women have more
organs in the pelvis.

718
00:36:55,535 --> 00:36:59,495
And so yeah, the ovaries are killed.

719
00:36:59,675 --> 00:37:02,695
So there's immediate
menopause, no more estrogen

720
00:37:02,695 --> 00:37:05,815
and progesterone, at least
what the ovaries produce.

721
00:37:06,675 --> 00:37:11,405
Then the, the uterus has some scar tissue,

722
00:37:12,265 --> 00:37:14,005
so it's non-functional

723
00:37:14,905 --> 00:37:17,765
and can't go in into the uterus.

724
00:37:18,335 --> 00:37:19,525
After several years

725
00:37:19,575 --> 00:37:21,605
after the radiation treatments,

726
00:37:21,965 --> 00:37:25,485
I started feeling pressure
in the lower part of my body,

727
00:37:26,305 --> 00:37:27,965
and then I needed to do a scan

728
00:37:28,545 --> 00:37:31,325
and there was fluid trapped in the cervix

729
00:37:32,165 --> 00:37:33,505
and the cervical canal.

730
00:37:33,965 --> 00:37:37,985
And so they had to go inside and do a DNC,

731
00:37:38,445 --> 00:37:41,825
but not, they couldn't
get into the, the uterus

732
00:37:41,825 --> 00:37:43,625
because of the scar tissue,
but they had to open it

733
00:37:44,045 --> 00:37:45,505
for the water to drain.

734
00:37:46,225 --> 00:37:47,625
A year later. The same thing,

735
00:37:47,775 --> 00:37:50,425
because the tissue is irradiated.

736
00:37:50,565 --> 00:37:52,145
It is not a normal tissue.

737
00:37:52,405 --> 00:37:53,905
It never goes back to being normal.

738
00:37:54,685 --> 00:37:56,585
So, you know, radiation finished.

739
00:37:57,405 --> 00:38:00,865
And I, I was told about
menopause and the ovaries

740
00:38:01,005 --> 00:38:03,905
and the uterus, and there was 15% chance

741
00:38:03,905 --> 00:38:06,705
that the bladder would be also affected.

742
00:38:08,515 --> 00:38:12,905
I was lucky that mine wasn't,
two weeks later, af no,

743
00:38:12,905 --> 00:38:15,545
two weeks later, two
months later, I had sex

744
00:38:15,895 --> 00:38:17,945
with a partner and it hurt.

745
00:38:18,845 --> 00:38:21,345
And, and I didn't know why.

746
00:38:22,105 --> 00:38:24,145
I thought, why, why does penetration hurt?

747
00:38:25,665 --> 00:38:26,965
No one said anything. I thought, okay,

748
00:38:26,965 --> 00:38:30,205
maybe still from the radiation,
maybe it hasn't healed yet,

749
00:38:30,235 --> 00:38:31,645
even though it's been two months.

750
00:38:32,635 --> 00:38:36,725
Okay. A few days later, I got
a, I got a text from my sister

751
00:38:37,185 --> 00:38:41,365
and it said, my friend who is
a radiation oncologist told me

752
00:38:41,365 --> 00:38:45,085
to tell you that radiation
oncologists usually don't talk

753
00:38:45,085 --> 00:38:47,725
about it, but you need to use dilators.

754
00:38:48,385 --> 00:38:49,925
And I thought, what are dilators?

755
00:38:50,785 --> 00:38:54,045
No one ever mentioned that.
I, I had no idea. Like what?

756
00:38:54,585 --> 00:38:56,525
So I, look, I went, you
know, looked online.

757
00:38:56,555 --> 00:38:59,885
What are dilators? Huh? How interesting.

758
00:39:00,405 --> 00:39:03,125
I, but I had surgery
coming up in, in 10 days.

759
00:39:03,225 --> 00:39:07,795
So, so I didn't look into
it, you know, very deeply.

760
00:39:07,955 --> 00:39:09,555
I said, I'll deal with it after surgeries,

761
00:39:09,555 --> 00:39:11,955
and there was surgery, blah, blah, blah.

762
00:39:12,455 --> 00:39:15,465
And then, um, sometime

763
00:39:15,465 --> 00:39:20,035
after that, um, I met a woman,
she was introduced to me

764
00:39:21,095 --> 00:39:24,515
and she had anal cancer
and she had radiation.

765
00:39:25,235 --> 00:39:26,645
Okay? This was like three years later.

766
00:39:27,465 --> 00:39:30,935
And I said, Hey, do
you have any, any pain?

767
00:39:31,635 --> 00:39:32,975
You know, how's your sexuality?

768
00:39:32,995 --> 00:39:36,215
Do you have any, any vaginal
pain with penetration?

769
00:39:36,835 --> 00:39:41,815
And she said, oh, um, well, I
had radiation three years ago,

770
00:39:42,755 --> 00:39:47,555
and a lot of scar tissue
built up in the vagina.

771
00:39:47,735 --> 00:39:51,835
And so my husband and I,
we can't have penetration

772
00:39:52,765 --> 00:39:55,055
because it's all closed up.

773
00:39:55,765 --> 00:39:57,025
The vagina is closed.

774
00:39:57,685 --> 00:39:59,905
And I said, wow, did
anybody tell you that?

775
00:40:00,405 --> 00:40:03,065
Did they tell you that
could happen? Would happen?

776
00:40:03,815 --> 00:40:06,265
Were you informed at
all? And she said, no.

777
00:40:06,965 --> 00:40:10,665
And I was like, wow, that's
amazing. That's her and me.

778
00:40:11,325 --> 00:40:13,905
And then I met another woman
that had rectal cancer.

779
00:40:13,905 --> 00:40:15,625
And I said, did you have
radiation? She said, yes.

780
00:40:15,625 --> 00:40:17,825
And I said, do you have
pain within intercourse?

781
00:40:18,325 --> 00:40:19,385
And she said, I do.

782
00:40:19,885 --> 00:40:21,705
And I said, did anyone tell you that you,

783
00:40:21,735 --> 00:40:22,905
that would, that would happen?

784
00:40:22,965 --> 00:40:26,385
And she said, no. And
at that point I joined

785
00:40:27,485 --> 00:40:30,225
two colorectal Facebook pages

786
00:40:31,085 --> 00:40:35,065
and I started posting is, is this normal?

787
00:40:35,335 --> 00:40:38,945
Were you told, you know, what
do you do with this pain?

788
00:40:39,205 --> 00:40:41,265
How do you deal with
it? How do you have sex?

789
00:40:41,265 --> 00:40:42,385
How, how do you stay sexual?

790
00:40:44,235 --> 00:40:48,215
And there were a lot of
angry posts from a lot

791
00:40:48,215 --> 00:40:51,495
of very angry women, um,

792
00:40:51,515 --> 00:40:53,975
saying they weren't told that.

793
00:40:54,045 --> 00:40:57,055
They told me that, you know,
dilators have to be used.

794
00:40:57,725 --> 00:41:01,455
Some of them said that on
radiation oncologist office gave

795
00:41:01,455 --> 00:41:03,255
them dilators.

796
00:41:04,485 --> 00:41:06,255
Some women said, wow, I can't believe it.

797
00:41:06,285 --> 00:41:08,175
What today they still don't tell you.

798
00:41:08,175 --> 00:41:12,095
And in 2018, they still don't,
don't say anything about it.

799
00:41:12,425 --> 00:41:13,975
There was a lot of surprise.

800
00:41:14,375 --> 00:41:16,975
I I asked them, you know,
what about the pain?

801
00:41:16,975 --> 00:41:18,695
And they said, well, you
just lived through it.

802
00:41:19,515 --> 00:41:23,455
You know, you, you, you, you,
you know, try to masturbate,

803
00:41:23,795 --> 00:41:26,335
try to use vibration to distract the pain.

804
00:41:27,395 --> 00:41:30,175
And so I, you know, this was all new.

805
00:41:30,355 --> 00:41:34,205
It was all new because I
didn't know this was not

806
00:41:34,275 --> 00:41:35,765
told, not shared.

807
00:41:36,425 --> 00:41:37,765
And I, I had no idea.

808
00:41:37,825 --> 00:41:41,245
And here I am in a dilemma,
you know, after chemo

809
00:41:41,385 --> 00:41:44,605
and surgery and living
with a stoma, trying

810
00:41:44,605 --> 00:41:47,005
to figure out the stoma needed
to figure out sexuality.

811
00:41:47,745 --> 00:41:49,885
Um, so it took, it took a while.

812
00:41:50,645 --> 00:41:53,285
I went to a couple of
different gynecologists.

813
00:41:53,635 --> 00:41:55,685
They said the pain was because of dryness.

814
00:41:55,685 --> 00:41:57,525
And I was like, it's
not because of dryness.

815
00:41:57,715 --> 00:42:00,445
There's something else.
They're like, no, no, it's

816
00:42:00,445 --> 00:42:02,605
because of dryness, because
you're menopausal now.

817
00:42:03,265 --> 00:42:06,805
No, no, that's not it. Okay.
Take ex estrogen creams.

818
00:42:08,625 --> 00:42:11,475
Okay. That's for the, you know, to, to,

819
00:42:11,535 --> 00:42:14,395
to have more lubrication
in the, in the vagina.

820
00:42:15,175 --> 00:42:20,075
So, um, I called back the
radiation oncologist and office

821
00:42:20,175 --> 00:42:22,875
and I said, Hey, so I'm, I,

822
00:42:23,115 --> 00:42:25,595
I have vaginal damage from the radiation.

823
00:42:26,175 --> 00:42:30,955
I'm told that offices give women dilators.

824
00:42:31,535 --> 00:42:34,875
And they said, we only give them to

825
00:42:35,665 --> 00:42:37,395
gynecological cancers.

826
00:42:37,815 --> 00:42:39,355
And I said, you're kidding me, right?

827
00:42:39,905 --> 00:42:43,805
Like, the rectum is right under the vagina

828
00:42:43,985 --> 00:42:47,285
and it gets hit when you're
focusing on the rectum.

829
00:42:47,465 --> 00:42:49,125
It passes through the vagina.

830
00:42:49,585 --> 00:42:51,045
I'm sorry, we just don't do that.

831
00:42:51,865 --> 00:42:55,365
My disbelief, my anger, my
rage just went up the roof.

832
00:42:55,565 --> 00:42:58,085
'cause I was thinking, what,
how, how is this possible?

833
00:42:58,785 --> 00:43:02,445
How are they just so
unaware, uncaring, inhumane?

834
00:43:03,085 --> 00:43:05,365
I mean, lots of women go through this is,

835
00:43:05,385 --> 00:43:06,605
I'm not the first person.

836
00:43:07,905 --> 00:43:10,125
So that was really shocking to me.

837
00:43:10,985 --> 00:43:12,005
And after that,

838
00:43:12,325 --> 00:43:15,405
I did a really big survey
on the colorectal face

839
00:43:15,965 --> 00:43:17,845
Facebook pages, and I
asked, you know, who,

840
00:43:18,585 --> 00:43:21,005
how many women were
told of all the effects.

841
00:43:21,345 --> 00:43:24,005
So then I learned that it was
the scar tissue through the,

842
00:43:24,005 --> 00:43:27,565
through the women on the
Facebook pages, they explained

843
00:43:27,565 --> 00:43:30,525
to me that what's painful
is that there's scar tissue

844
00:43:31,505 --> 00:43:34,645
in the vagina and the nerves get hit there

845
00:43:35,185 --> 00:43:36,845
and they're hypersensitive.

846
00:43:36,985 --> 00:43:39,765
So it doesn't matter whether
it's a speculum that goes in a,

847
00:43:40,005 --> 00:43:43,245
a hand, a finger, a
penis, it's going to hurt

848
00:43:43,395 --> 00:43:46,805
because it rubs against those nerves

849
00:43:46,825 --> 00:43:49,125
and it, they send these pain signals.

850
00:43:49,545 --> 00:43:52,325
So with pain signals, who
wants to, to, to have sex?

851
00:43:52,585 --> 00:43:56,345
Nobody who wants to use the,
the dilators? Nobody. Why?

852
00:43:56,345 --> 00:43:57,625
Because it's painful. So I kept

853
00:43:57,625 --> 00:43:58,705
asking, what do you do with pain?

854
00:43:58,705 --> 00:44:01,565
What do you do with pain?
What do you do with pain?

855
00:44:01,565 --> 00:44:03,645
Then one woman, finally, after,

856
00:44:03,815 --> 00:44:06,285
after a long time, she said, she said that

857
00:44:06,415 --> 00:44:10,405
after she saw five different
gynecologists, the last one

858
00:44:11,115 --> 00:44:14,525
gave her a recipe with some nerve blocker.

859
00:44:15,315 --> 00:44:17,605
That helps. And I was like, okay,

860
00:44:17,625 --> 00:44:19,085
so there's a nerve blocker.

861
00:44:20,645 --> 00:44:24,175
Okay, then I could use the dilator. Yeah.

862
00:44:24,315 --> 00:44:26,855
So yeah, that was kind of the process.

863
00:44:27,155 --> 00:44:29,095
And out of the survey that I did,

864
00:44:29,095 --> 00:44:33,405
and this was in September of
2018, a hundred women got back

865
00:44:33,405 --> 00:44:38,125
to me and 25 of them basically
were told everything.

866
00:44:38,995 --> 00:44:43,505
Great. Yay. There are people
that are told and are supported

867
00:44:43,505 --> 00:44:46,625
and wonderful, and about 12%

868
00:44:47,535 --> 00:44:50,795
were told partial things,
not the whole thing,

869
00:44:50,895 --> 00:44:55,375
but they had either friends
who had this before them,

870
00:44:55,435 --> 00:44:59,055
or they were on the Facebook
pages and read women's posts

871
00:44:59,075 --> 00:45:02,495
and then asked their,
their radiation oncologist

872
00:45:02,795 --> 00:45:05,595
for dilators.

873
00:45:05,735 --> 00:45:06,915
And they asked questions.

874
00:45:07,615 --> 00:45:11,395
And 63 women that got
back to me were not told

875
00:45:11,815 --> 00:45:14,435
of anything sexual that's
going to be different

876
00:45:14,435 --> 00:45:15,835
after radiation treatment.

877
00:45:17,075 --> 00:45:21,335
And yeah, lots of very
angry, A lot of pain.

878
00:45:22,055 --> 00:45:24,295
A lot of pain. And so, you know,

879
00:45:24,295 --> 00:45:25,455
after reading that I said,

880
00:45:25,455 --> 00:45:26,815
you know, I just can't let that go.

881
00:45:27,775 --> 00:45:30,275
You know, I can't let that's,
that's gonna go in the book.

882
00:45:30,935 --> 00:45:34,355
And somehow I want these
women to have a voice,

883
00:45:35,695 --> 00:45:39,115
and I want them to have a
voice along with my voice.

884
00:45:39,385 --> 00:45:40,995
Yeah. Things need to be different.

885
00:45:41,045 --> 00:45:43,795
There has to be transparency, there has

886
00:45:43,795 --> 00:45:45,315
to be medical transparency

887
00:45:46,505 --> 00:45:48,925
and a shared decision
making with the patient.

888
00:45:50,155 --> 00:45:53,925
This is what's going to
happen. Why do we do this?

889
00:45:53,925 --> 00:45:56,885
Because this is the percent survival,

890
00:45:57,185 --> 00:45:58,605
but these are all the things

891
00:45:58,605 --> 00:45:59,885
you're gonna need to deal with after.

892
00:46:00,835 --> 00:46:05,525
- Yeah. It is to me just a,
a commentary, if you will,

893
00:46:06,025 --> 00:46:10,565
on the value of women in
society, especially when it comes

894
00:46:10,565 --> 00:46:13,205
to their sexuality and what it's worth.

895
00:46:14,825 --> 00:46:18,475
- Yeah. Yeah. So I'm gonna
say it hasn't yet sunk in

896
00:46:19,455 --> 00:46:20,835
to the whole of society.

897
00:46:20,895 --> 00:46:24,515
I'm gonna say the medical field to

898
00:46:25,695 --> 00:46:29,475
how important that is, how
important sexuality is for,

899
00:46:30,015 --> 00:46:34,875
for being human, for our
connecting with a partner. Well,

900
00:46:34,875 --> 00:46:38,355
- I've had a biopsy in, in
my, you know, uterine biopsy.

901
00:46:38,945 --> 00:46:40,395
They don't anesthetize you,

902
00:46:40,395 --> 00:46:42,475
they don't give you any
kind of numbing, nothing.

903
00:46:42,545 --> 00:46:45,155
They just like, this is gonna
hurt like a motherfucker

904
00:46:45,815 --> 00:46:48,155
for a real quick second,
and then they do it.

905
00:46:48,155 --> 00:46:50,715
And I, after I had that
done, it was negative.

906
00:46:51,135 --> 00:46:53,955
But after it was done, I asked around,

907
00:46:54,135 --> 00:46:56,915
and many women had had
the same experience.

908
00:46:56,915 --> 00:46:59,635
And I thought, my god,
they would never do that

909
00:46:59,635 --> 00:47:00,995
to a man ever.

910
00:47:01,785 --> 00:47:03,915
He's numb to high heaven
when they take care

911
00:47:03,915 --> 00:47:05,755
of the old vasectomy situation.

912
00:47:05,895 --> 00:47:06,955
You know what I mean? <laugh>

913
00:47:07,775 --> 00:47:10,915
and women are just expected
to endure these things.

914
00:47:11,705 --> 00:47:15,915
- Yeah. So, yeah, I
think that you're right.

915
00:47:15,915 --> 00:47:18,695
And there's just, it's just,
I don't, I don't know if,

916
00:47:18,695 --> 00:47:20,935
whether it's people not being comfortable

917
00:47:21,015 --> 00:47:24,415
with women's sexuality, talking
about women's sexuality.

918
00:47:24,675 --> 00:47:28,815
Yes, yes. Yeah. Or whether
it's complete ignorance. Yes.

919
00:47:29,185 --> 00:47:33,125
You know, lack of awareness.
Yes. <laugh>. Um, yeah. Scott

920
00:47:33,285 --> 00:47:34,525
- Speaking on the line, really
- <laugh>.

921
00:47:34,555 --> 00:47:39,045
Yeah. You know, some, some
centers now do talk about it.

922
00:47:39,315 --> 00:47:40,525
Some centers are great.

923
00:47:41,045 --> 00:47:42,405
I was just reading yesterday

924
00:47:42,745 --> 00:47:46,605
for Memorial Sloan Kettering
Cancer Center, that part

925
00:47:46,605 --> 00:47:51,085
of their treatment plan with
rectal cancer, female patients

926
00:47:51,625 --> 00:47:55,405
is they send them to, to
a, um, to a sex therapist

927
00:47:56,725 --> 00:47:57,825
as part of the center

928
00:47:58,325 --> 00:48:01,065
to talk about what's gonna
happen, how it's gonna happen.

929
00:48:01,355 --> 00:48:06,065
Great. But that should be the
standard everywhere across

930
00:48:06,205 --> 00:48:07,205
- The board.

931
00:48:07,205 --> 00:48:09,505
Sure. Standard of care.
But I think you're right.

932
00:48:09,665 --> 00:48:12,505
I think there is, there's something about

933
00:48:14,165 --> 00:48:17,825
the shame around sexuality
more specifically

934
00:48:17,845 --> 00:48:20,785
and how it is for people with uterus

935
00:48:22,095 --> 00:48:23,395
or people with vaginas.

936
00:48:23,705 --> 00:48:26,595
- Yeah. You know, when I
first started receiving the

937
00:48:27,105 --> 00:48:29,435
radiation treatment, within
a week, I could start

938
00:48:29,435 --> 00:48:32,675
to feel the labia
buzzing lab and clitoris.

939
00:48:32,675 --> 00:48:35,595
And I was like, why are they
buzzing? Why are they buzzing?

940
00:48:35,655 --> 00:48:39,655
Are they irradiating the labia?

941
00:48:39,655 --> 00:48:43,655
Like, like, am I like gonna be
like sexually nonfunctional?

942
00:48:44,515 --> 00:48:47,055
And I went to the, to the technician

943
00:48:47,275 --> 00:48:50,695
and I said, listen, my
labia is buzzing, so

944
00:48:51,655 --> 00:48:52,775
I think something's wrong here,

945
00:48:52,795 --> 00:48:54,815
and I think they need to
look at the calculations.

946
00:48:55,935 --> 00:48:58,275
And he brought me to
the radiation oncologist

947
00:48:58,935 --> 00:49:00,075
and I said the same thing.

948
00:49:00,095 --> 00:49:02,035
And he said, okay, let, let, let us check.

949
00:49:02,695 --> 00:49:06,275
And the next day when I
came, I went to visit him

950
00:49:06,775 --> 00:49:10,315
before going to the treatment,
and he said that I was right.

951
00:49:11,305 --> 00:49:14,405
And they, and they changed
their calculations.

952
00:49:15,065 --> 00:49:17,845
But isn't that amazing, the errors,

953
00:49:18,265 --> 00:49:22,965
the not paying attention,
the not, not meticulous about

954
00:49:23,635 --> 00:49:27,565
valuing, again, sexuality,
women's sexuality can, that,

955
00:49:27,955 --> 00:49:32,245
that is so important to preserve pleasure

956
00:49:32,385 --> 00:49:36,285
and bonding, that they
really, for those types

957
00:49:36,285 --> 00:49:39,165
of calculations, they have
to look really, really like,

958
00:49:39,825 --> 00:49:40,965
do 'em over and over

959
00:49:41,025 --> 00:49:43,405
and make sure, can we do
it this way or another way?

960
00:49:43,425 --> 00:49:46,725
Or how can we not go through that area?

961
00:49:47,315 --> 00:49:48,485
Yeah, yeah.

962
00:49:48,485 --> 00:49:51,365
And, and I'm guessing that there are women

963
00:49:52,145 --> 00:49:54,925
who wouldn't say anything. Oh,

964
00:49:54,925 --> 00:49:55,925
- Of course.

965
00:49:55,975 --> 00:49:59,445
Let's talk about the book, uh,
healing the deepest wounds.

966
00:50:00,985 --> 00:50:03,485
You decided to take all this information

967
00:50:03,825 --> 00:50:05,965
and to be a voice for the voiceless.

968
00:50:06,825 --> 00:50:09,295
- Yes, yes, yes.

969
00:50:09,735 --> 00:50:12,485
I wrote a book and it does it,

970
00:50:12,585 --> 00:50:14,325
it contains the whole journey.

971
00:50:15,165 --> 00:50:19,965
I did wanna be a voice for
the voiceless. Yeah, yeah.

972
00:50:20,025 --> 00:50:23,605
And, and to raise awareness
about how important it is

973
00:50:25,765 --> 00:50:27,405
to keep the patient

974
00:50:27,665 --> 00:50:32,485
and women specifically their

975
00:50:32,485 --> 00:50:36,325
wellbeing after these
treatments, especially radiation,

976
00:50:36,325 --> 00:50:41,305
especially to the pelvis,
you know, that has to be part

977
00:50:41,305 --> 00:50:44,755
of the standard of care
and has to be talked about.

978
00:50:45,895 --> 00:50:48,075
And honesty and transparency.

979
00:50:49,335 --> 00:50:52,745
This is what's going to happen. You know?

980
00:50:52,805 --> 00:50:57,185
So I mean, I would love
there to be a, you know, a,

981
00:50:57,305 --> 00:50:59,505
a universal sheet of paper, a video

982
00:51:00,035 --> 00:51:03,105
explaining a consultation
with a sex therapy

983
00:51:03,245 --> 00:51:06,225
or a sexual health nurse ahead of time,

984
00:51:06,925 --> 00:51:10,515
and a sexual health nurse
checking in with the patient

985
00:51:10,695 --> 00:51:11,715
during treatment,

986
00:51:11,725 --> 00:51:15,575
after treatment constantly,
you know, to make sure

987
00:51:15,575 --> 00:51:18,055
that sexual health is preserved.

988
00:51:19,125 --> 00:51:20,615
It's not going to be in all cases

989
00:51:20,885 --> 00:51:22,935
because of the nature of all, of

990
00:51:22,935 --> 00:51:25,215
how tight everything is in the pelvis.

991
00:51:25,835 --> 00:51:28,135
You know, cancers can
grow, especially again,

992
00:51:28,195 --> 00:51:30,375
if women don't stand up to themselves

993
00:51:30,435 --> 00:51:32,895
and they don't go to the doctor
when they see bleeding in,

994
00:51:32,895 --> 00:51:35,375
in the rectum, you know,
bleeding on the stool.

995
00:51:35,885 --> 00:51:38,895
They don't go and say, check
this, check this, check this.

996
00:51:38,895 --> 00:51:41,095
It's not a hemorrhoid, it's
not a hemorrhoid check.

997
00:51:41,185 --> 00:51:44,215
Again, they don't do that in time.

998
00:51:44,715 --> 00:51:49,295
It can spread to the vagina,
to the ovary, to the uterus,

999
00:51:49,355 --> 00:51:53,415
you know, and, and then a part
of that could be taken out.

1000
00:51:54,155 --> 00:51:56,015
So many things there are so important to

1001
00:51:56,325 --> 00:52:00,895
- Statistically speaking,
uh, they are seeing a huge

1002
00:52:01,615 --> 00:52:06,095
increase in colon cancer among
young women specifically.

1003
00:52:06,275 --> 00:52:09,415
But in just the younger
generations. Here's the thing.

1004
00:52:09,415 --> 00:52:12,775
Well, when people get
colonoscopies, they're supposed

1005
00:52:12,775 --> 00:52:14,855
to get them age 50 and onward.

1006
00:52:15,395 --> 00:52:18,295
But it's starting to happen
to people at such a young age

1007
00:52:18,845 --> 00:52:22,375
that if you are feeling
like something is wrong,

1008
00:52:22,645 --> 00:52:25,615
just across the board, oh,
whatever gender you are,

1009
00:52:25,615 --> 00:52:29,455
however, it doesn't matter
if you feel like something is

1010
00:52:29,545 --> 00:52:32,255
wrong, stand up for yourself.

1011
00:52:32,655 --> 00:52:35,015
'cause nobody else is
gonna do that for you.

1012
00:52:35,475 --> 00:52:38,495
And likely, I mean, if you
have an advocate, great,

1013
00:52:39,235 --> 00:52:40,415
but most of us don't.

1014
00:52:41,745 --> 00:52:44,205
And you are important, and
you deserve to be treated

1015
00:52:44,275 --> 00:52:46,965
with respect and dignity
and have your voice

1016
00:52:47,385 --> 00:52:48,965
and your body be heard.

1017
00:52:49,365 --> 00:52:51,445
I cannot stress that
enough to the listeners.

1018
00:52:51,995 --> 00:52:53,925
It's so important. It's vital.

1019
00:52:54,835 --> 00:52:56,365
- Yeah. It's so important.

1020
00:52:56,625 --> 00:52:58,645
You know, I keep saying
in the, in the book, over

1021
00:52:58,645 --> 00:53:00,325
and over, advocate for yourself.

1022
00:53:00,725 --> 00:53:04,125
Advocate for yourself.
Advocate for yourself. Yeah.

1023
00:53:04,125 --> 00:53:06,045
Because no one's gonna do it.

1024
00:53:06,045 --> 00:53:09,405
And, and actually it's,
it's our job. It's our job.

1025
00:53:09,625 --> 00:53:11,445
We are the ones living in this body

1026
00:53:12,385 --> 00:53:15,125
and advocating is actually empowerment.

1027
00:53:15,225 --> 00:53:18,885
And especially for us women
who, you know, were, were,

1028
00:53:18,995 --> 00:53:22,965
were kind of reared to be
nice to, you know, not,

1029
00:53:23,145 --> 00:53:26,165
not make trouble to, you know, authority,

1030
00:53:26,185 --> 00:53:27,285
listen to authority.

1031
00:53:28,015 --> 00:53:30,885
Especially this is, this is
a journey of empowerment.

1032
00:53:31,035 --> 00:53:34,085
It's like, I'm gonna stand
up, I'm gonna stand up for me.

1033
00:53:34,845 --> 00:53:37,145
Yes. And I have to do it. I have to do it.

1034
00:53:37,725 --> 00:53:39,425
You know, it's a matter of life and death

1035
00:53:39,725 --> 00:53:41,185
and we have to do it.

1036
00:53:42,445 --> 00:53:45,935
Yeah. When I saw that
smear, that red smear

1037
00:53:47,165 --> 00:53:50,425
on the stool, it was
clear, something is wrong.

1038
00:53:51,055 --> 00:53:52,625
- Also, I advocate being a poop.

1039
00:53:52,655 --> 00:53:55,065
Look, looker, look at your
poop. <laugh>, <laugh>.

1040
00:53:55,135 --> 00:53:57,185
It's certainly gonna tell you a lot about

1041
00:53:57,185 --> 00:53:58,265
your health and wellbeing.

1042
00:53:58,665 --> 00:54:02,545
<laugh> for sure. It's interesting.

1043
00:54:03,015 --> 00:54:07,065
It's such a journey that
you spent all this time

1044
00:54:08,205 --> 00:54:09,945
in the soul searching and,

1045
00:54:10,005 --> 00:54:13,665
and touching that part that is so not of

1046
00:54:15,055 --> 00:54:17,555
the grounded body, if you will,

1047
00:54:18,095 --> 00:54:21,315
and then being so forced into your body

1048
00:54:22,095 --> 00:54:23,395
to have to stand up for it.

1049
00:54:24,265 --> 00:54:26,115
- Yeah, yeah, yeah.

1050
00:54:26,375 --> 00:54:30,875
It was, yeah, interesting
and weird and odd and, and

1051
00:54:31,005 --> 00:54:32,555
- Terrifying and all of the things.

1052
00:54:32,785 --> 00:54:34,995
- Yeah. Where
- Are you now with your health journey?

1053
00:54:36,015 --> 00:54:38,355
- I'm good. It's been so, all the stuff

1054
00:54:38,355 --> 00:54:39,875
that I was afraid of, I did.

1055
00:54:40,575 --> 00:54:43,555
Um, and, and it did, it did save my life.

1056
00:54:44,095 --> 00:54:45,755
All the doctors saved my life, all the,

1057
00:54:46,095 --> 00:54:47,275
the equipment saved my life.

1058
00:54:47,795 --> 00:54:52,075
I finished chemo in January of 2018,

1059
00:54:52,575 --> 00:54:55,275
and my second surgery
was in April of 2018.

1060
00:54:55,495 --> 00:54:59,755
So I'm good. Yeah. And I do my best.

1061
00:54:59,755 --> 00:55:01,315
Obviously this is a different body.

1062
00:55:02,065 --> 00:55:04,795
It's a di I had to learn
how to do sexuality.

1063
00:55:04,955 --> 00:55:06,995
I had to learn how to, you know, uh,

1064
00:55:07,135 --> 00:55:10,915
an irradiated tissue in the vagina, uh,

1065
00:55:11,025 --> 00:55:13,875
with menopause is not a normal tissue.

1066
00:55:14,015 --> 00:55:16,155
And regular, you know,

1067
00:55:16,155 --> 00:55:19,115
thrusting sexuality isn't the best option.

1068
00:55:19,375 --> 00:55:21,475
So I had to learn

1069
00:55:21,535 --> 00:55:24,675
and educate myself on
other ways of being sexual

1070
00:55:25,015 --> 00:55:28,515
and more tender with my female parts now.

1071
00:55:29,535 --> 00:55:32,115
And that's good. I've learned
how I've learned how to do it,

1072
00:55:32,695 --> 00:55:36,755
and I'm grateful there is
pain if I don't use the cream.

1073
00:55:36,755 --> 00:55:39,635
There's, there's always
pain with penetration.

1074
00:55:40,965 --> 00:55:43,745
It goes away after, after penetration.

1075
00:55:43,805 --> 00:55:46,225
And so, you know, it's, it's good.

1076
00:55:46,805 --> 00:55:50,105
And, you know, I have a, a
new, I don't have a rectum.

1077
00:55:50,605 --> 00:55:54,185
And so living with outer rectum
as it's the whole other way,

1078
00:55:54,725 --> 00:55:58,985
you know, of living, and
it took a long time to

1079
00:55:59,795 --> 00:56:03,385
learn how to be with that, but Okay.

1080
00:56:03,965 --> 00:56:06,825
- Do you, you have to use an external bag?

1081
00:56:07,465 --> 00:56:08,865
- I don't have an external bag anymore

1082
00:56:08,865 --> 00:56:11,385
because they reversed the ileostomy.

1083
00:56:12,465 --> 00:56:15,385
I had it reversed, um, in 2018.

1084
00:56:15,415 --> 00:56:16,545
That was the second surgery,

1085
00:56:16,765 --> 00:56:21,305
and then the body had to
learn how to work again.

1086
00:56:21,365 --> 00:56:24,485
Now my colon was asleep for
eight and a half months.

1087
00:56:24,865 --> 00:56:28,325
It wasn't working. And
so imagine all the gut

1088
00:56:29,015 --> 00:56:31,845
flora has died, the
good gut flora has died.

1089
00:56:32,105 --> 00:56:35,845
So it's probably pretty, pretty
nasty stuff in there. Okay.

1090
00:56:35,845 --> 00:56:37,925
That has probably received
some chemotherapy and mutated.

1091
00:56:38,225 --> 00:56:39,405
So I was pretty nasty in there.

1092
00:56:39,985 --> 00:56:44,685
The lining, the mucus lining
of the colon that was asleep

1093
00:56:45,025 --> 00:56:46,165
for eight and a half months.

1094
00:56:47,575 --> 00:56:52,195
Um, when, when they first
reconnected me, uh, it, the,

1095
00:56:52,455 --> 00:56:57,195
the, the, the mucus lining
wasn't normal as it is.

1096
00:56:57,295 --> 00:57:01,795
And so what happened was that
the, when CO would come out,

1097
00:57:03,275 --> 00:57:07,255
and I would need to have
many bowel movements a day,

1098
00:57:07,525 --> 00:57:12,085
because rectum is, is, is
a storage, it's stores.

1099
00:57:13,065 --> 00:57:15,045
And then when you don't have
a storage, every time you eat,

1100
00:57:15,045 --> 00:57:18,165
you gotta go eat, go eat,
go eat, go eat. Yeah. Or a

1101
00:57:18,165 --> 00:57:20,085
- Tube basically <laugh>, it's
- A two.

1102
00:57:20,115 --> 00:57:23,005
Yeah. Without, without
a, a storage unit, it,

1103
00:57:23,025 --> 00:57:24,285
it would become acidic

1104
00:57:25,625 --> 00:57:28,525
and then the acidity would
kind of burn around the anus.

1105
00:57:28,525 --> 00:57:32,445
So it, it really, it took
probably a year for the acidity

1106
00:57:32,625 --> 00:57:34,525
to, to, to leave.

1107
00:57:35,585 --> 00:57:38,045
And that first year was, was so

1108
00:57:38,645 --> 00:57:39,925
challenging. So challenging. I

1109
00:57:39,945 --> 00:57:40,945
- Bet.

1110
00:57:40,945 --> 00:57:42,805
Oof. You have endured a lot.

1111
00:57:43,105 --> 00:57:46,245
And I mean, another thing of
advocacy is now advocating

1112
00:57:46,245 --> 00:57:47,725
to your sexual partners.

1113
00:57:48,265 --> 00:57:50,765
And by you, I mean the role
you, anyone that has to go

1114
00:57:50,765 --> 00:57:53,645
through this, I mean, one has to advocate

1115
00:57:53,645 --> 00:57:55,565
with sexual partners anyway.

1116
00:57:55,705 --> 00:58:00,125
That's the beauty of having
sexual partners is you get

1117
00:58:00,125 --> 00:58:01,605
to say what it is that works for you

1118
00:58:01,625 --> 00:58:03,285
and doesn't work for you
and things like that.

1119
00:58:03,915 --> 00:58:08,205
Have you found those
conversations to be easier now

1120
00:58:08,205 --> 00:58:10,765
that you have had to advocate
for yourself for so long?

1121
00:58:11,305 --> 00:58:13,205
- I'm so, I'm so open as it is.

1122
00:58:13,845 --> 00:58:16,485
I mean, this is why I can
write about it so openly.

1123
00:58:17,265 --> 00:58:20,045
You know, I've been playing
with this book forever and ever,

1124
00:58:20,745 --> 00:58:22,765
and I'm constantly doing things with it.

1125
00:58:22,765 --> 00:58:24,885
And so when I, when I date

1126
00:58:24,945 --> 00:58:26,925
and people say, oh, what,
you know, what are you doing?

1127
00:58:26,945 --> 00:58:29,205
And I'm saying, oh, I'm
editing. What are you editing?

1128
00:58:29,225 --> 00:58:31,725
Oh, I'm writing a book. What's
about, about rectal cancer?

1129
00:58:31,805 --> 00:58:32,525
I had rectal cancer,

1130
00:58:32,555 --> 00:58:33,725
blah, blah, blah, blah, blah, blah, blah.

1131
00:58:34,145 --> 00:58:35,365
You know, it's a lot about, you know,

1132
00:58:35,365 --> 00:58:37,285
it's got a lot about
sexuality, blah, blah, blah.

1133
00:58:37,385 --> 00:58:39,845
And then I tell them, you
know, radiation did this.

1134
00:58:39,875 --> 00:58:42,245
It's in the vagina, so there's
pain, there's scar tissue.

1135
00:58:42,265 --> 00:58:44,085
And so sexuality is different for me,

1136
00:58:44,665 --> 00:58:46,805
and I'm pretty matter of fact about it.

1137
00:58:46,905 --> 00:58:51,645
I'm not like, uh, let me
tell you, uh, you know, no,

1138
00:58:51,705 --> 00:58:53,285
I'm just like, this is how it is.

1139
00:58:53,915 --> 00:58:57,645
Sexuality is different and,
and then I have to teach. Yeah.

1140
00:58:58,265 --> 00:59:01,365
And so far everybody has
wanted to learn <laugh>.

1141
00:59:03,145 --> 00:59:04,565
- That's great. That's great.

1142
00:59:04,955 --> 00:59:07,765
Tell everyone how they
may find you in your book,

1143
00:59:07,945 --> 00:59:09,965
and if they have questions for you.

1144
00:59:10,625 --> 00:59:13,245
- The name of the book is
Healing The Deepest Wounds,

1145
00:59:13,595 --> 00:59:16,685
life Giving Lessons From My
Journey with Rectal Cancer,

1146
00:59:16,815 --> 00:59:19,965
stage two three by Erit Sherman,

1147
00:59:20,485 --> 00:59:24,445
K-I-N-E-R-E-T, Sherman, S-A-G-R-M-A-N.

1148
00:59:25,005 --> 00:59:29,405
I also have, uh, a website t sherman.com,

1149
00:59:29,905 --> 00:59:32,765
and you can contact me
through there or Facebook.

1150
00:59:33,295 --> 00:59:36,805
- Great. I really appreciate
your story and your time

1151
00:59:37,185 --> 00:59:41,085
and your honesty and
integrity with your journey.

1152
00:59:41,425 --> 00:59:45,405
Uh, it's, I think, really
helpful for people to hear

1153
00:59:46,275 --> 00:59:48,485
that someone else has been through it and,

1154
00:59:49,065 --> 00:59:51,685
and maybe can help inspire
someone to stand up

1155
00:59:51,685 --> 00:59:52,885
for themselves that much more.

1156
00:59:53,155 --> 00:59:54,845
- Yeah. Thank you. There's one other thing

1157
00:59:54,845 --> 00:59:56,925
that's super important for me also,

1158
00:59:56,925 --> 00:59:58,285
when people are on this journey

1159
00:59:58,425 --> 01:00:03,415
and not on this journey,
forgiveness, self-forgiveness

1160
01:00:03,755 --> 01:00:05,375
and forgiveness of others.

1161
01:00:07,205 --> 01:00:09,745
Uh, it's also part of a self-advocacy

1162
01:00:10,015 --> 01:00:14,065
because we need, as, as much as we need to

1163
01:00:14,635 --> 01:00:17,185
being integrity, you know, with ourselves

1164
01:00:17,325 --> 01:00:20,425
and present ourselves with,
in, in the world, with the,

1165
01:00:20,445 --> 01:00:21,625
you know, all medical things

1166
01:00:21,645 --> 01:00:25,755
or anything else we need
to advocate for, we need

1167
01:00:25,755 --> 01:00:28,755
to also advocate for our own mental health

1168
01:00:29,495 --> 01:00:31,635
and our own emotional health.

1169
01:00:32,535 --> 01:00:34,235
And that's by letting go

1170
01:00:35,885 --> 01:00:39,875
doing whatever is needed
to let go of holding on

1171
01:00:40,495 --> 01:00:45,315
to angers and pains and
judgements and resentments

1172
01:00:45,415 --> 01:00:47,875
and guilts and shames and all that.

1173
01:00:49,055 --> 01:00:51,795
It, it is also part of the self-advocacy,

1174
01:00:51,795 --> 01:00:55,315
but that's the self-advocacy
with self, with letting go

1175
01:00:55,315 --> 01:00:58,515
of whatever habits there are, you know,

1176
01:00:58,515 --> 01:01:00,475
that we haven't cleaned up with ourselves.

1177
01:01:01,995 --> 01:01:05,045
- Yeah. Well said. Absolutely. Thank you.

1178
01:01:05,335 --> 01:01:06,525
Thank you so much for being

1179
01:01:06,525 --> 01:01:07,525
- Here.

1180
01:01:07,525 --> 01:01:08,245
Yeah, thank you so much, Susan.

1181
01:01:08,395 --> 01:01:09,485
It's really been a delight

1182
01:01:09,545 --> 01:01:13,045
and I'm so, um, happy to have met you

1183
01:01:13,385 --> 01:01:14,805
and spent some time with you.

1184
01:01:14,825 --> 01:01:16,245
You're so delightful.

1185
01:01:16,945 --> 01:01:19,965
- Oh, thanks. Thank you for
listening, everybody. Bye.

1186
01:01:20,355 --> 01:01:21,725
Take care. Bye. Okay,

1187
01:01:21,825 --> 01:01:22,825
- Bye.

1188
01:01:23,735 --> 01:01:25,445
- Great review and subscribe to, Hey,

1189
01:01:25,445 --> 01:01:27,565
human Podcast on iTunes, Spotify,

1190
01:01:27,905 --> 01:01:29,205
iHeart, wherever you get your podcast.

1191
01:01:29,745 --> 01:01:30,965
Thanks. Bye.

