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- Prepare to dive into the forefront

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of healthcare innovation at
our 14th annual meeting coming

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up on April 8th

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through 11th at the Hyatt Regency
in Chicago, with thousands

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of industry leaders converging
over four dynamic days

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of discussions on crucial
topics from health IT

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to executive leadership.

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It's where the future of
healthcare takes shape.

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We can't wait to connect
with you in person

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and engage in these
important conversations.

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- This is Laura Dedo with the
Becker's Healthcare Podcast.

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I'm thrilled today to be
joined by Dr. Thomas peo,

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medical director of UPMC
community osteopathic in

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Harrisburg, Pennsylvania.

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Dr. PEOs, a pleasure to have
you on the podcast today.

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- Oh, thank you so much.
It's a pleasure to be here.

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- Now I'm looking forward
to our discussion.

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Um, and before we dive in though,

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can you tell me a little bit more

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about yourself and your background?

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- Sure. I am a physician.

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I've been practicing as a physician

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for about 24 years now.

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I started out my career
as a family practitioner,

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and about halfway
through that time, I, uh,

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became a hospitalist,

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and I've been working
for the last eight years

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as the medical director
at community osteopathic

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and worked closely with
my hospitalist team

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and remain engaged in clinical
care on a daily basis.

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- Well, that's great to hear. And Dr.

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Peno, you're part of the lost generation

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of autistic US adults.

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Can you tell us more about
your journey to a diagnosis

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and why so many adults have
fallen through the cracks?

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- Sure. Yeah.

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So as your question, um,
presupposes I was diagnosed

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with autism and I was
diagnosed later in life.

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I was in my early fifties
when I was diagnosed,

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and my story is very similar to

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a story told by many other
late diagnosed autistic adults.

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Um, in that I came to my
diagnosis through my children,

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um, when I was young.

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Uh, the diagnostic criteria were different

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than they are today.

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So a person like me
would not have qualified

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for a diagnosis of autism.

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Um, it wasn't

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until 2013 when the DSM
diagnostic criteria folded,

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uh, diagnoses like Asperger's and autism

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and pervasive developmental
disorder all into one, uh,

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broad category that, uh,
people from my generation,

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um, what is referred to
in the autism literature

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as the lost generation, um,

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had an opportunity to be diagnosed.

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And I think as we, as a society,
uh, talk more about autism,

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uh, we become more
familiar with the traits

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and the diagnostic criteria.

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Um, we start to see it, uh, more and more.

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And I can, I can, I can assure you that

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that has been the case for
me in my clinical life.

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My diagnosis actually came
as my oldest daughter was,

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um, working her way through
her own, um, struggles

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and was diagnosed with
OCD for a number of years.

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And, uh, she was, uh,
very intelligent, um,

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young woman who, um, at some point began

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to question her own diagnosis

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and said to her counselor
one day says, look, I

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I just don't feel like this is me.

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I don't think it describes
me well, and I mentioned that

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because of the, um, psychiatric

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diagnoses that people
tend to have on their way

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to an autism diagnosis, OCD is is one

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of the more common ones.

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Um, she had been working
hard doing everything

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that the counselor was telling her to do.

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And, and, and then finally the
counselors came back to her

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and said, gee, I wonder if
we're dealing with autism here.

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And I can tell you that she
came home from that meeting

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and started her own deep
dive in the world of autism

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and our lives,

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our collective lives have
never been the same since.

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Um, it was just a year later
that her sister was diagnosed.

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And, and then the two of them were armed

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with all this diagnostic information,

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and they turned their
attention towards me.

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Um, I think like a lot of
adults who have not been

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around autism

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and certainly didn't understand
it deeply, I, you know,

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offended them off or, you know, kind

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of denied, uh, for months.

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But they persisted. And I
finally swallowed my pride

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and carefully reviewed
the diagnostic criteria,

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and I said, you know, I
think they're onto something.

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I, um, sought, you know, a professional

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evaluation, and indeed
the diagnosis was concern,

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uh, was confirmed.

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Um, and it's really been a,

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a fantastic journey.

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I've learned so many things, um,

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and so many ways that not
only does this diagnosis, uh,

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help me to bring clarity
to me and to my life,

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but also to help me be
a better doctor and to,

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and to see autistic traits
in my patients and, uh,

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and colleagues alike.

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- Well, that's a fascinating, uh,

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perspective that you have now.

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And just so interesting to hear, um,

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the way in which you
came to your diagnosis

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through your children,

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and as you said, um, I can
imagine others have had

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that same experience as well, or,

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or really, you know, could be
transformative to understand

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that about themselves.

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How has your diagnosis
changed your understanding

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of yourself as well as your
professional and personal life?

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- Yeah. One of the things that is

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unique about autistic
people is this concept

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of a spiky profile.

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Um, if you think of just
very generally speaking,

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a non-autistic person being like a circle

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and the profile of an
autistic person being spiky,

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those spikes are the special
interests they represent, um,

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deep and, and,

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and recurring, uh, uh,
topics that, that they,

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um, Brent that brings joy

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and, um, motivates them to
learn more and to do more.

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Um, which means that autistic people tend

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to be exceptionally
good at certain things.

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Um, and then there are
other areas where we tend

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to need some support.

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And the degree of that,
of those, you know,

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exceptional traits

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and the degree of those areas
of support is so variable.

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It really is such a vast, uh, world, uh,

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that autism represents.

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But fortunately, I have

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had a support structure in my life that I,

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I really didn't appreciate
until you know, much later.

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And I think that support
structure has been my wife

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and my family and the people around me.

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As I've learned more about
autism, I've noticed that

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that part of the reason
I didn't realize, uh,

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didn't appreciate it in myself is

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because probably many

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of my family members are also autistic.

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And I, I just had a sense of normal, um,

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that was probably more
autistic than non-autistic.

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So yeah, I've been able to
be immersed in my profession,

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you know, very young in life
that I developed, you know,

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passions for math and
science and education.

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And, you know, that led
me off to medical school,

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and I was very fortunate to have a chance

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to become a physician
and care for patients.

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But seeing that spiky profile
in myself has helped me to see

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that same kind of spiky
profile in my patients.

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So, for example, you know,
aren't they able to, uh,

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pay their bills, um,
executive functioning?

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Can they schedule their own appointments?

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Is it reasonable

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or even fair for me to expect
my patient to be able to

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take on the, this level of
independence in the future?

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Just like we counsel patients

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and their families of all
sorts of neurologic issues,

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autism is one of those
areas where we can dig deep,

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ask questions and find out about

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what areas they may have support
needs, uh, what areas, uh,

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can they be independent?

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Um, does this person need a
social worker in their life?

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Is there a family member
who can be engaged?

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And we can have a conversation
about autistic traits

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and how this, how this all works.

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Um, or is, is this an individual

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who really can be quite independent,

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but just needs to have, um,
some appreciation of their,

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you know, enjoyment of, of, you know,

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having a relatively
small social circle and,

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and, um, you know, managing
their own day-to-day life.

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- Uh, that's really interesting to hear,

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and certainly such important
points to think about

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as you're caring for patients

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and really for any doctor

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to understand is they're looking
at their patient's profile

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and, and trying to create expectations

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and a plan for the future.

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I know you recently
authored a paper on caring

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for autistic adults in
the inpatient setting.

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What are some tips that you
can share with our listeners?

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How has your own journey

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with autism helped shape your
awareness of these strategies?

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- Yeah, thank you. So the first point

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that is so important for our
listeners to appreciate is just

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how common autism is.

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Um, as of 2023, the CDC and the Autism

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and Developmental Disabilities
Monitoring Network reported

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that the incidence is 2.7800000000000002%

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of the population, or
about one in 36 people.

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There was another study done
by Kaiser some years ago

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where they looked at a
sample of 1.6 million adults

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who were diagnosed with autism,

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and they found that only 0.095% of

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that sample had been diagnosed.

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What that means is

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that autistic adults
are 30 times less likely

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to have a diagnosis than children, meaning

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that there are over 7
million undiagnosed adults

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in the United States who are autistic.

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These numbers are staggering.

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And the healthcare community,
society at large, we need

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to get better at
recognizing autistic traits,

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offering diagnostic
clarity to autistic people

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and matching up the support needs

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that this vulnerable population has.

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The second point that I would
make is that being autistic is

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a social determinant of health.

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We know that autistic people have higher

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rates of unemployment.

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They're more likely to
live with family members

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or relatives, and they may have very

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limited social connections.

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We know that there's higher
rates of diabetes, hypertension,

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heart disease, and just
generally speaking,

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they're less likely to have
their health needs met.

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We know that there are
higher rates of hearing loss,

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autoimmune disease, sleep problems.

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Sleep problems are, uh, extremely common.

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Uh, so folks who are
complaining of insomnia, could

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that be an autistic trait.

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Um, and we also see higher
rates of mental illness

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and substance use.

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And in the end, the
average life expectancy

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of an autistic person is
16 years shorter than that

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of the non-autistic population.

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So we in the healthcare
community have to first recognize

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that this is more common
than I think that we've, uh,

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that we've appreciated in the past

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that the implications are quite severe,

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and that there is really
a massive population

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of people out there who
have yet to be diagnosed

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and who are in effect
nurturing a disability

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that they don't know about.

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- That's such great perspective, you know,

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and really puts things into
a clear picture, especially

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for people who may not
understand, as you were saying,

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you know, this is their diagnosis

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or something that they're
struggling through in their ways

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that they can manage that
or, or seek extra help,

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but just haven't, it seems like

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because, um, they didn't know
that it's something that,

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you know, um, they need to be
thinking about or managing.

251
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So from your perspective,
how important is it

252
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for leaders in the healthcare
industry to advocate for

253
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and accommodate these marginalized groups?

254
00:13:09,815 --> 00:13:12,035
And can you share any
examples from your role

255
00:13:12,055 --> 00:13:13,155
as a medical director?

256
00:13:14,125 --> 00:13:15,215
- Yeah, absolutely.

257
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Um, I've been so gratified
over the past couple of years

258
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as I've done my own deep dive on autism

259
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to see these autistic traits show up in

260
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my patients in the hospital.

261
00:13:26,105 --> 00:13:31,005
Um, I've had patients when
I questioned them, uh,

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revealed to me, um, issues
around sensory, uh, intolerance.

263
00:13:36,145 --> 00:13:40,325
Uh, I, I can remember specific
examples of, you know,

264
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asking about, you know, how is
the sound level in your room?

265
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And I remember one patient
saying back to me that, you know,

266
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I'm so glad you asked.

267
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I can hear the nurses talking up

268
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and down the hallway
all day and all night.

269
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Um, this individual had been
struggling with a long history

270
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of anxiety and sleep problems.

271
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And I said, Hey, you
know, hang on a second.

272
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Lemme go get the sensory kit
that we had put together, um,

273
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about a year and a half
ago as part of, you know,

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an autism education program

275
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that we were doing in our health system.

276
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And into the room, I brought,
uh, some headphones, just,

277
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just some quieting earmuffs.

278
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And I said, why don't you put
these on? And she said, okay.

279
00:14:24,285 --> 00:14:28,385
And the moment that she
put them on, she smiled

280
00:14:29,165 --> 00:14:30,185
and she looked at me

281
00:14:30,185 --> 00:14:34,325
and she says, wow, that really feels nice.

282
00:14:36,305 --> 00:14:40,725
And then I said, okay,
well, how about the blinds?

283
00:14:41,185 --> 00:14:42,485
Do you want me to lower them?

284
00:14:42,715 --> 00:14:44,565
Well, we have blinds in all of our rooms,

285
00:14:44,705 --> 00:14:46,685
but they don't, they're
not blackout blinds.

286
00:14:46,685 --> 00:14:48,285
So they let a fair amount of light in,

287
00:14:49,265 --> 00:14:52,565
and I said, do you want
to try these sunglasses?

288
00:14:53,425 --> 00:14:57,145
And she put 'em on and
she said, yeah, it's

289
00:14:57,145 --> 00:14:58,865
so bright in here all the time.

290
00:14:59,145 --> 00:15:00,465
I really appreciate having these.

291
00:15:01,465 --> 00:15:02,965
And then I took one more step

292
00:15:03,345 --> 00:15:04,965
and I said, how about
this weighted blanket?

293
00:15:05,065 --> 00:15:08,045
Do you want to try this?
And she said, she was kind

294
00:15:08,045 --> 00:15:09,245
of apprehensive in the beginning,

295
00:15:09,345 --> 00:15:11,565
but then she allowed me
to place it on her lap.

296
00:15:11,625 --> 00:15:15,985
And, and she, she really
just relaxed into these,

297
00:15:16,485 --> 00:15:18,465
um, very simple interventions.

298
00:15:19,275 --> 00:15:21,495
And what was so gratifying to me was

299
00:15:22,045 --> 00:15:23,495
when I returned the following day,

300
00:15:23,495 --> 00:15:26,215
she was asleep in her
bedside chair with all

301
00:15:26,215 --> 00:15:31,015
of the equipment on, and I, I
just touched her very gently

302
00:15:31,015 --> 00:15:32,575
and I stalled, startled her awake,

303
00:15:32,635 --> 00:15:36,445
and she said, I, I slept, I slept

304
00:15:36,465 --> 00:15:37,805
for several hours last night,

305
00:15:37,805 --> 00:15:41,055
and it's the first time in
years, and she was so grateful.

306
00:15:41,715 --> 00:15:44,255
And we went back and we
talked about, you know,

307
00:15:44,255 --> 00:15:47,855
different ways that we
can, you know, support and,

308
00:15:48,195 --> 00:15:50,175
and certainly I don't want
to give your listeners the

309
00:15:50,175 --> 00:15:51,575
impression that, you know,

310
00:15:51,575 --> 00:15:54,215
these simple interventions
can solve all the problems of

311
00:15:54,485 --> 00:15:56,215
that autistic people face, but,

312
00:15:56,555 --> 00:15:58,535
but there are some very
simple interventions

313
00:15:58,535 --> 00:16:00,295
that healthcare systems can implement

314
00:16:00,675 --> 00:16:03,095
and it can really make a big
difference in the sensory

315
00:16:03,775 --> 00:16:06,935
overload that is so common, uh,

316
00:16:06,935 --> 00:16:08,775
for autistic patients
in a healthcare setting.

317
00:16:10,895 --> 00:16:12,235
- That's a fantastic example.

318
00:16:12,375 --> 00:16:14,875
And, and certainly, you know,
can make a big difference,

319
00:16:15,025 --> 00:16:17,235
like you were saying for
the experience, then ability

320
00:16:17,375 --> 00:16:19,875
to get well, um, from, you know,

321
00:16:19,975 --> 00:16:21,235
the health side of things too.

322
00:16:21,935 --> 00:16:23,115
Dr. Peno, thank you so much

323
00:16:23,115 --> 00:16:24,595
for joining us on the podcast today.

324
00:16:24,665 --> 00:16:26,675
This has been a fascinating conversation.

325
00:16:26,995 --> 00:16:28,395
I really appreciate you opening up

326
00:16:28,395 --> 00:16:30,235
and sharing your own
journey with us, as well

327
00:16:30,255 --> 00:16:32,795
as the advice you, you've
been able to provide

328
00:16:32,795 --> 00:16:35,515
for other healthcare providers
would be so meaningful, um,

329
00:16:35,615 --> 00:16:37,235
for them and their patients going forward.

330
00:16:37,595 --> 00:16:38,875
I appreciate this conversation

331
00:16:38,875 --> 00:16:40,595
and I look forward to
connecting with you again soon.

332
00:16:41,515 --> 00:16:43,165
- Yeah, it was great talking to you,

333
00:16:43,165 --> 00:16:44,645
and I really wish you all the best.

