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♪ Opening theme music ♪

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Hello, and welcome to this episode
of ArtsAably in Conversation.

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My name is Diane Kolin.

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This series presents artists, academics,
and project leaders who dedicate their

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time and energy to a better accessibility
for people with disabilities in the arts.

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You can find more of these conversations
on our website, artstably.com,

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which is spelled A-R-T-S-A-B-L-Y dot com.

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♪ Theme music ♪

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Today, ArtsAbly is in conversation

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with Louann Carnahan, who is

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a neurologist, specialized in epilepsy
and an accomplished classical pianist.

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You can find the resources mentioned by
Louann Carnahan during this episode 

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on ArtsAbly's website in the blog section.

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♪ Frédéric Chopin's Fantaisie-Impromptu ♪
(Short excerpt)

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Welcome to this new episode
of ArtsAbly in Conversation.

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Today, I am with Louann Carnahan, who is
a neurologist specializing in epilepsy

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and an accomplished classical pianist.

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Welcome, Louann.

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Hello.

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Thank you for being here.
It's amazing.

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I've followed your Instagram
for a long time, and I'm very excited

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to have this conversation with you.

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I'm very honored that you're
having me on here.

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Okay, so I always start by
asking my guests to present themselves.

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Where did you come from?

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Where did the music start in your life?

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Because I know that it started early.

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Sure.

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So I was born in Taiwan, but my mom took
my brother and I to the United States

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when I was two and a half,
so I grew up in the United States.

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And so that's how I have
the straight standard American accent.

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My piano life got started when I was five.

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I started taking lessons.

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It was, of course, an Asian thing to do.

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My mom, back in Taiwan, she grew up in

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more poor setting, and so she

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always wanted to take lessons,
but they didn't have the money.

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So of course, she put us in lessons.

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So that's how I got put in the lessons.

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I took lessons all the way
up until high school graduation.

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In the beginning years
through elementary school, of course,

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I wasn't very serious about it.

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There was even a time where
my older brother got put

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in lessons around the same time.
He's four years older than me.

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He stuck with it for only two

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years, and he was clamoring to quit.

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Around the same time,
I guess I was the same way.

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I was non-motivated to practice,
and so I was also fighting to want

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to be able to quit, too.

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I think it was especially probably
between second to fourth grade

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or something like that.

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But my mom just refused to let me
quit for whatever reason.

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So I pushed through lessons.

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I think it was to the point
where it was a situation of probably

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wasting time and money from the lessons
just because I wasn't really practicing.

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But anyway, she refused to let me quit.

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And then around sixth grade

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is when I finally got more
serious about practicing.

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It was actually because I was forced to.

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My parents have a manufacturing business
in China, so they were constantly

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traveling internationally
when I was young,

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starting from elementary school age.

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And so when I was in sixth grade, she

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found a couple through church, and they

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became surrogate-type parents, guardians,
so that we would stay with them.

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We would live with them
during the school year.

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They came and stayed in the house
that was just like our neighbor,

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like next door neighbor.

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I was in this weird situation
of bouncing between two houses.

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My parents basically will be gone nine
months, the whole academic school year.

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We would basically live at these
surrogate parents house.

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They would come home, maybe...

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My own parents would come home
maybe once every few months just

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for a little a little bit.

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We would stay
in our own home, regular home.

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It was this weird situation
of bouncing between homes.

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But anyway, so when we started staying
with the surrogate parents,

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we called her aunt Judy and uncle Bud.

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That's in our Chinese culture,

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where for respect any older generation,

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outside the family, even, we
would call a woman aunt or our uncle.

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So they were aunt Judy
and Uncle Bud to us.

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And aunt Judy was pretty strict.

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And so she forced me to practice.

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And of course, when you practice,
you tend to get better.

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And so then because I was forced
to practice, I started making progress.

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And starting around middle school age,
you start to feel more motivated

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to keep going once you start to feel
like you're getting a little bit better.

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My teacher was proud
and stuff, so I felt like I was

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accomplishing something on the piano.

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Then that's how I really got
more momentum.

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I did the State Music Association,

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the federation, Music Teachers Federation.

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I did those, the state, whatever
those federation association.

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It's not really a contest, 
but that sort of thing.

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Then I also did just local
or regional actual competitions.

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That came more so in high school age
when I was, again, more serious.

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I was pretty serious

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about it for being a student.

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I did go to a few state-level competitions

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toward the last maybe three years
of high school.

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I placed.

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I never got first.

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I never won a competition, but I would
usually get second place or third place.

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And a couple...

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One of the competitions, I think I
went two years in a row, and that was

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a regional, a few states, across three
or four states in my region.

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So I guess that's the spectrum
of my competition career in high school.

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So that was the level,
I guess, of playing.

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My hands are very small, so I only
can barely reach an octave.

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So my teacher had to really
select repertoire very carefully.

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I didn't find this out until just
recently, a couple of years ago.

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But we met up and she told me that she had
a hell of a time trying to find

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repertoire for me to play because
I couldn't play the standard,

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advanced high school student repertoire,
the Beethoven Sonatas or Rachmaninoff or

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something like that, or Schubert even.

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I managed to learn it in med school.

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I actually learned how to
stretch out my handspan slightly.

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So I can reach an octave better now

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as an adult than back then when I was

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taking lessons with my teachers.

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And my teacher was surprised.

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The reason how I ended up running into her
was there was this surrogate parents.

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Her daughter had a birthday,
a big celebration.

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She was also a pianist.

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I guess that's why she
forced me into practicing.

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She played in church when she was younger.

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So her daughter, for her 88th
birthday, 88 keys, she decided to have...

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Instead of waiting to the 90th milestone
birthday, she decided to have

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a big celebration in honor
of her being a pianist for her 88th

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birthday, 88 keys on the piano.

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So she invited me to come
and give a concert.

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And I had already, again,
this is very coincidental.

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I had already
been invited to give a concert.

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My aunt, my mom's sister, They
wanted to have me do a concert in Taiwan.

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So I had already learned a good amount
of repertoire, a few pieces.

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And so I played that same concert,

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and actually, I learned Beethoven's first
movement of the Moonlight Sonata.

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So I added that in as well
to the birthday party concert.

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So my teacher, because it was in
my hometown, my teacher was able to come.

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So over 20 some years after the fact
of ending lessons, my teacher came

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and she heard me play now as an adult.

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She asked me, she was like,
How are you reaching?

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Did your hand get bigger?

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So that's how I told her.

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I was like, I figured out
how to gently stretch my handspan.

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Obviously, the length of the hands
and the fingers, they don't change, but

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just the width of how wide I can open it.

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I could feel actually the difference.

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I remember when I was in high school,
my left hand, especially, was tighter.

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The tendons in the palm was stiffer,
so I couldn't open the thumb

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and pinkie width as much.

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That's what I worked on in, I guess,
med school or something like that.

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Even now, I still work on making sure

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to keep my finger width, handspan as

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gently, limber as possible
so I can maintain

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the barely octave reach that I have.

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That's how my early career
was as a high school student.

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I ended up pursuing medicine.

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Obviously, I'm a neurologist,
a physician now.

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But even through med school
and residency, I maintained the piano

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because it's always been a part of me.

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When you started when you're five
and you stick with it for so long

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and you're serious to the point
of pursuing competitions in high school, 

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it was something
that I really felt connected to.

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I did take a break
from classical music in college.

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I ended up playing in church for
the four years while I was in college.

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But then when I moved away to med school,
because those four years where I wasn't

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playing classical music, then
I felt like something was missing.

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I really felt a calling to go back
to classical repertoire.

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So that in med school
is when I decided to deliver back

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into the classical repertoire.

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And I ended up learning all new repertoire
on my own in med school.

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I always dreamed about playing
those bigger pieces like I was

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mentioning in high school.

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All my piano teacher's other students, they
all got to play like Schubert impromptus

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and the Beethoven sonatas and stuff.

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So I just decided to...

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I guess that's when I started working
on stretching my handspan.

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So I taught myself the Schubert Impromptu 
Opus 90 No. 3.

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I think it's number...

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Or maybe it's number...

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Yeah, it's number three,
the G flat major impromptu by Schubert.

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So I learned that because I remember there
was one of her other students She played

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that in her recital, her senior recital.

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And I remember really
loving that piece in high school.

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I did also end up learning Rachmaninoff,
Prelude in C sharp minor,  believe it or not.

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For me, I'm also very petite in stature.
I'm only 4.8 inches, 

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and then coupled with
my tiny handspan that

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just barely reaches an octave,

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of course, Rachmaninoff is just
out of reach for me and the power,

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you know, the stamina that it takes.

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But anyway, I don't know.
It's a miracle.

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Or it was just stubbornness
because I just wanted to do it.

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So I found a way to do it.
What else?

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Other repertoire I learned in med school -
oh, one year, I learned

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the solo Rhapsody in Blue by Gershwin.

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But I had those motivations because
I was already practicing in med school

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just to keep it up and to have
a stress release for all the pressures

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of being a medical student.

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My teacher had taught me so well that...

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It's not that she taught me
the repertoire that we worked on

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when I specifically studied with her,
but I learned how to practice,

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how to learn repertoire on my own.

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She really taught me so well
that I was able to maintain being

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a lifelong learner.

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That's how I was able to go on
and learn the repertoire on my own.

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Now, with the technology the world
of YouTube, lots of piano professors,

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very high-quality, educated piano

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professors offer so many online classes,

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master courses, and also free videos.

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After I learn repertoire, then I turn to

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these piano professionals who offer video

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tutorials to sharpen up and get proper,

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educated master class-level advice.

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Because I didn't pursue a music degree,
so I don't have the same formal knowledge

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of repertoire or interpretation.

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So that's where I still take the help
of piano professionals that way.

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But the mechanics, the basics
of how to learn the piece initially.

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My piano teacher taught me so well

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that I just know how to approach

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digging in for the first time of a new piece.

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And part of the reason why piano
has really stuck me is because it really

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helped get me through the time
of my own medical condition.

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I'm sitting in a wheelchair.

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I have a disability, and I
have a muscle disease.

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So It's a progressive,
meaning it gets worse over time.

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It started when I was in my early 20s.

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Actually, when I was in med school, when
I started med school, is when the muscle

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weakness started presenting itself.

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I started having leg muscle muscle
weakness, like thighs and hip muscles.

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Walking tended to get very tiring.

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I couldn't climb stairs.

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That was one of the first manifestations
of how it was.

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And so that was when I got sent
to the neurologist for a workup

236
00:16:19,878 --> 00:16:22,147
of the muscle disease.

237
00:16:22,181 --> 00:16:27,252
Well, actually, that was actually not the
first time I presented to a neurologist.

238
00:16:27,286 --> 00:16:31,090
The reason why I am a neurologist
and I specialize in epilepsy

239
00:16:31,090 --> 00:16:34,760
is actually because I also
have epilepsy as a patient.

240
00:16:34,793 --> 00:16:37,096
I'm also a patient myself.

241
00:16:37,129 --> 00:16:43,402
I had my first seizure in high school
during a calculus test during my senior

242
00:16:43,435 --> 00:16:48,640
year, stress, sleep deprivation,
all of those things are epilepsy,

243
00:16:48,640 --> 00:16:50,442
epileptic seizure triggers.

244
00:16:50,476 --> 00:16:56,014
Getting on the medicines,
my seizures are under control.

245
00:16:56,014 --> 00:17:02,721
But then there was a where I ended up
off seizure medicines in college.

246
00:17:02,755 --> 00:17:07,926
That's how I ended up
having my third seizure

247
00:17:07,960 --> 00:17:09,595
at the beginning of medical school.

248
00:17:09,595 --> 00:17:12,431
It was right around that time,
it was at the beginning of

249
00:17:12,431 --> 00:17:13,832
the second year of medical school.

250
00:17:13,832 --> 00:17:20,139
I had a seizure, again,
on the day of quiz.

251
00:17:20,172 --> 00:17:24,009
It was because of the seizure, I went back
to the neurologist in medical school.

252
00:17:24,042 --> 00:17:28,113
That's actually when I noticed
definitely something was wrong,

253
00:17:28,147 --> 00:17:30,149
something was weak about my legs.

254
00:17:30,182 --> 00:17:32,618
My classmates noticed as well.

255
00:17:32,651 --> 00:17:37,723
I couldn't lift my thigh
off the exam table very easily.

256
00:17:37,756 --> 00:17:39,391
I was having trouble doing that.

257
00:17:39,425 --> 00:17:42,094
My classmates agree like,
Yeah, that's weird.

258
00:17:42,127 --> 00:17:45,264
That's when I started the workup
for the muscle disease.

259
00:17:45,297 --> 00:17:49,635
They sent me for EMGs,
and then they sent me ultimately

260
00:17:49,668 --> 00:17:55,808
to a neuromuscular specialist in town,
and I went and had a muscle biopsy.

261
00:17:55,808 --> 00:18:00,779
And all of this happened toward
the end of second year, it takes time

262
00:18:00,779 --> 00:18:03,615
to get in with all the doctors
and doing the initial test.

263
00:18:03,649 --> 00:18:08,320
So third year, medical school was rolling
around, and that's the year that all my

264
00:18:08,353 --> 00:18:12,658
classmates were heading off to the start
of their third year clinical rotations.

265
00:18:12,691 --> 00:18:19,531
But because my neurologist wanted to refer
me out of state to do my muscle biopsy

266
00:18:19,565 --> 00:18:26,505
to a more specialized academic center
that had a, I guess, more advanced

267
00:18:26,538 --> 00:18:29,374
pathologist to do the muscle biopsy.

268
00:18:29,408 --> 00:18:35,247
She knew she had already
started recommending that I go ahead

269
00:18:35,280 --> 00:18:39,151
and take the entire year
off because to travel all that time,

270
00:18:39,184 --> 00:18:41,753
and then I would have lost too much time.

271
00:18:41,787 --> 00:18:45,591
The month, whatever it is,
it would have been thrown off.

272
00:18:45,624 --> 00:18:49,495
Then you can't catch up because
the schedule is very set.

273
00:18:49,495 --> 00:18:53,398
Every month is a new rotation,
and you have your whole year schedule

274
00:18:53,432 --> 00:18:55,968
laid out and made for you.

275
00:18:56,001 --> 00:19:01,240
It becomes very - in the world of medicine,
training, especially, everything is very

276
00:19:01,273 --> 00:19:05,177
laid out and scheduled, and so
you can't really deviate from that.

277
00:19:05,177 --> 00:19:08,213
Or if you do, I mean,
of course, life things always

278
00:19:08,247 --> 00:19:10,215
come up, but it's very hard.

279
00:19:10,249 --> 00:19:15,787
My neurologist just recommended me
to take off the whole year

280
00:19:15,787 --> 00:19:19,925
so I could just focus on
getting the diagnostic work up.

281
00:19:19,958 --> 00:19:22,694
It was that year that I was...

282
00:19:22,728 --> 00:19:25,564
That was the second year
of doing the piano concerts.

283
00:19:25,597 --> 00:19:29,902
That was how I had so much time
to practice that I was able to learn

284
00:19:29,935 --> 00:19:34,439
the Rhapsody in Blue by Gerschwin,
the whole 25 minute piece.

285
00:19:34,439 --> 00:19:38,176
It was cool.

286
00:19:38,210 --> 00:19:45,951
That was the good thing about that year,

287
00:19:45,984 --> 00:19:48,687
that whole medical diagnosis.

288
00:19:48,720 --> 00:19:52,624
I mean, of course, that
was the most difficult time.

289
00:19:52,658 --> 00:19:54,826
I remember being at the neurologist.

290
00:19:54,860 --> 00:20:00,098
It was before she even sent me off to the
muscle biopsy, but she could already tell

291
00:20:00,098 --> 00:20:07,673
from my exam findings and that she knew
this was some form of progressive muscle disease.

292
00:20:07,673 --> 00:20:12,211
Right then and there, she was already
recommending that I start using a mobility aid.

293
00:20:12,211 --> 00:20:17,616
And I'm 20-something, early 20s,
young person, and that was a big shock.

294
00:20:17,649 --> 00:20:22,387
I remember that day when
she said that in the appointment.

295
00:20:22,421 --> 00:20:26,992
It's like the room became muffled.

296
00:20:27,025 --> 00:20:31,129
It's like this weird sensation
of I was there, I was hearing

297
00:20:31,163 --> 00:20:35,901
what she was saying, but it
became like an outside perspective.

298
00:20:35,934 --> 00:20:38,003
I don't know.
It was the most bizarre thing.

299
00:20:38,036 --> 00:20:43,175
And I guess it was just
the emotional processing of it.

300
00:20:43,175 --> 00:20:46,211
We came out of the appointment,
I was in tears.

301
00:20:46,244 --> 00:20:50,415
Both my parents happened
to be there for that appointment.

302
00:20:50,449 --> 00:20:52,718
Luckily, they came back.

303
00:20:52,751 --> 00:20:57,089
They were in the United States at
the time, so they were there to support

304
00:20:57,122 --> 00:21:00,225
going for this medical appointment.

305
00:21:00,259 --> 00:21:02,494
My mom was there along the hallway.

306
00:21:02,494 --> 00:21:07,299
She went with me when I had to
go out of state for the muscle biopsy.

307
00:21:07,332 --> 00:21:11,570
Even though my parents
traveled internationally, because

308
00:21:11,603 --> 00:21:18,076
they were constantly in China
doing business or other in Europe

309
00:21:18,076 --> 00:21:21,947
for their manufacturing business.
But she was always...

310
00:21:21,980 --> 00:21:24,716
When something happened,
when something medical happened,

311
00:21:24,750 --> 00:21:26,251
she would always come back.

312
00:21:26,285 --> 00:21:29,388
The seizure that happened
in medical school.

313
00:21:29,388 --> 00:21:32,457
She was in China at the time,
and the seizure happened.

314
00:21:32,457 --> 00:21:35,594
And of course, when you have a seizure,
you can't drive temporarily.

315
00:21:35,594 --> 00:21:39,631
And the state that I lived in was
the standard no driving for six months.

316
00:21:39,665 --> 00:21:43,835
And that changed everything that year
because I was living off campus at

317
00:21:43,835 --> 00:21:46,438
the time, so I couldn't drive to campus.

318
00:21:46,438 --> 00:21:50,442
She came and she got me
an apartment on campus where

319
00:21:50,475 --> 00:21:52,177
a majority of the students live.

320
00:21:52,177 --> 00:21:55,013
And it was just you just
walked across the street.

321
00:21:55,047 --> 00:21:59,051
So that was temporarily,
my housing was shifted.

322
00:21:59,084 --> 00:22:00,318
It was just the bare bones.

323
00:22:00,352 --> 00:22:03,689
She got me an apartment,
and there was a mattress.

324
00:22:03,722 --> 00:22:07,659
I probably had a kitchen table
to eat and maybe study, but that was it.

325
00:22:07,659 --> 00:22:12,831
It was about the most bare bones place
because I had my other place

326
00:22:12,864 --> 00:22:17,235
that I lived, for the standard place.

327
00:22:17,235 --> 00:22:19,838
What about pianos?

328
00:22:19,871 --> 00:22:22,140
I did have a piano, coincidentally.

329
00:22:22,174 --> 00:22:23,608
That's how I ended up having...

330
00:22:23,642 --> 00:22:28,080
I was practicing all this time
during med school because we took

331
00:22:28,080 --> 00:22:32,017
a little rinky-dink upright.
I don't know.

332
00:22:32,017 --> 00:22:33,118
I moved...

333
00:22:33,151 --> 00:22:35,454
Of course, this whole
medical training process,

334
00:22:35,454 --> 00:22:37,389
you have to move every single time.

335
00:22:37,422 --> 00:22:39,958
You're changing to a new
training location.

336
00:22:39,958 --> 00:22:43,862
So I took a piano with me
almost everywhere I went.

337
00:22:43,895 --> 00:22:48,533
So to start on my third year clinical
rotations, after I completed the muscle

338
00:22:48,533 --> 00:22:53,472
biopsy and got back on schedule to start
my third and fourth year clinical

339
00:22:53,505 --> 00:22:58,043
rotations, I had to go away again out
of state to do that part

340
00:22:58,076 --> 00:23:01,146
of training because our school was...

341
00:23:01,179 --> 00:23:06,017
They only had enough spots to house
a third of our medical school class.

342
00:23:06,051 --> 00:23:10,989
And then everybody else gets sent
all across the United States.

343
00:23:11,022 --> 00:23:16,762
They have partnering hospitals, academic
places that take medical students.

344
00:23:16,795 --> 00:23:23,435
A large portion of my friends
had already gone up to Michigan,

345
00:23:23,435 --> 00:23:25,570
and they were already up there.

346
00:23:25,570 --> 00:23:30,475
It was funny, I had -
It's a lottery system.

347
00:23:30,509 --> 00:23:36,681
I had randomly been lotteried into staying
on the campus in the medical school.

348
00:23:36,715 --> 00:23:39,718
But because my friends
were all up in Michigan, I actually

349
00:23:39,751 --> 00:23:41,153
traded and gave up my spot.

350
00:23:41,153 --> 00:23:45,457
Because a lot of times when the people
who have families, spouses in

351
00:23:45,457 --> 00:23:49,594
the same place where the medical school
campus was, of course, most people

352
00:23:49,628 --> 00:23:54,499
wanted to stay there, so I actually
gave up my seat to stay on campus.

353
00:23:54,533 --> 00:23:57,636
But when I moved up there
for third and fourth year,

354
00:23:57,669 --> 00:24:00,005
then we took the piano up there.

355
00:24:00,038 --> 00:24:02,441
Then when I moved again
to another location for residency,

356
00:24:02,474 --> 00:24:04,442
we took that same piano.

357
00:24:04,476 --> 00:24:09,414
It definitely made its way
on the rounds across the country.

358
00:24:09,448 --> 00:24:13,451
That's how I ended up having access to
the practicing the piano all those years.

359
00:24:13,485 --> 00:24:18,990
When did your medical condition

360
00:24:18,990 --> 00:24:22,694
prevent you from playing the piano?

361
00:24:22,727 --> 00:24:28,467
I noticed in residency, my arms,

362
00:24:28,500 --> 00:24:31,603
my shoulders had started getting weak.

363
00:24:31,636 --> 00:24:35,707
They were already starting to get weak
toward the end, later years of med

364
00:24:35,740 --> 00:24:39,511
school, but definitely in residency,
probably about halfway through.

365
00:24:39,544 --> 00:24:44,316
It was probably shortly after
I gave that concert at the residency

366
00:24:44,316 --> 00:24:49,621
graduation ceremony for one of
the upper class who graduated before me.

367
00:24:49,654 --> 00:24:54,492
I could feel that my shoulders
were starting to get weak.

368
00:24:54,526 --> 00:24:58,163
I was still able to play,
but then I think it my third year

369
00:24:58,196 --> 00:25:05,437
of residency that I could no longer
play, or I was getting too fatigued

370
00:25:05,437 --> 00:25:07,873
to play the Fantaisie Impromptu.

371
00:25:07,873 --> 00:25:12,711
And so I knew at that point that

372
00:25:13,078 --> 00:25:15,046
the progression was starting

373
00:25:15,080 --> 00:25:16,748
to become serious.

374
00:25:16,748 --> 00:25:23,722
And that actually made me sad
to where I no longer wanted to play.

375
00:25:23,755 --> 00:25:27,058
I was still physically capable
of playing at that point,

376
00:25:27,058 --> 00:25:30,028
but I knew I was losing it.

377
00:25:30,061 --> 00:25:34,766
And so probably my last year
of residency, for sure, I actually just

378
00:25:34,799 --> 00:25:36,001
was not motivated at all.

379
00:25:36,034 --> 00:25:40,405
Looking at the piano just made me sad
because it was a reminder that,

380
00:25:40,438 --> 00:25:43,108
again, it was yet another thing
that was being taken away from me

381
00:25:43,141 --> 00:25:45,610
because of the medical condition.

382
00:25:45,644 --> 00:25:50,382
And so when I moved for fellowship,
fellowship was only one year.

383
00:25:50,415 --> 00:25:54,019
And so I didn't end up taking a piano
because it was only one year.

384
00:25:54,052 --> 00:25:58,857
Anyway, I was already getting sad
that I was losing piano.

385
00:25:59,824 --> 00:26:04,262
But then we moved finally now as my job,

386
00:26:04,296 --> 00:26:08,400
my final location of where I live now.

387
00:26:08,400 --> 00:26:11,469
Once we settled in,
again, I got that itch.

388
00:26:11,503 --> 00:26:17,776
I missed piano, and I just
had that need no matter what.

389
00:26:17,776 --> 00:26:19,344
I talked to my mom.

390
00:26:19,377 --> 00:26:25,250
I said, Is it worth it
to get a piano again here?

391
00:26:25,283 --> 00:26:32,223
Of course, the piano at home
in my hometown, that's so far away.

392
00:26:32,257 --> 00:26:35,427
So it wouldn't be worth
to take that piano here.

393
00:26:35,460 --> 00:26:40,999
But she was like, Well,
go ahead and get it.

394
00:26:41,032 --> 00:26:43,368
If it's going to make
you happy, then do it.

395
00:26:43,401 --> 00:26:45,604
You can play it for however
long as you can.

396
00:26:45,637 --> 00:26:49,140
If you can only play it
for a month, then that's okay.

397
00:26:49,174 --> 00:26:51,977
She said something crazy like that.

398
00:26:51,977 --> 00:26:55,914
I've always been a bit of
a Steinway person.

399
00:26:55,947 --> 00:27:02,587
When I was 16, that was a milestone
birthday because I came home one day from

400
00:27:02,621 --> 00:27:06,291
school and like, Oh, my God, there's a
Steinway grand piano in the living room.

401
00:27:06,324 --> 00:27:09,661
So that was what was at home
and what I got to practice on

402
00:27:09,694 --> 00:27:12,697
all that time of being at home.

403
00:27:12,731 --> 00:27:17,035
Of course, when I moved here
and I was working as an attending

404
00:27:17,068 --> 00:27:23,074
and I wanted to get a piano back,
I said, Is it worth it to get a Steinway?

405
00:27:23,074 --> 00:27:25,977
Of course, being as expensive as they are.

406
00:27:25,977 --> 00:27:31,249
She gave me - Because she was 
supportive and she gave me permission

407
00:27:31,282 --> 00:27:35,920
to want that and saying it was okay.

408
00:27:35,920 --> 00:27:38,490
Because I was just afraid
of that it would be a waste.

409
00:27:38,523 --> 00:27:41,259
You spend that much of an investment.

410
00:27:41,292 --> 00:27:45,063
And literally, what if I could only
play a short amount of time?

411
00:27:45,096 --> 00:27:49,134
But she said, Okay, if it's going to make
you happy for a month, then that's good

412
00:27:49,134 --> 00:27:50,935
enough, and that's good enough for me.

413
00:27:50,969 --> 00:27:55,073
She helped with making that purchase.

414
00:27:55,073 --> 00:28:00,845
I was very lucky to have her support.

415
00:28:01,379 --> 00:28:06,317
But because my shoulder muscle progression
was getting worse,

416
00:28:06,317 --> 00:28:11,890
it did get to a point where I physically
was no longer able to maneuver my arms

417
00:28:11,923 --> 00:28:18,496
around the keyboard. Also, technically,
I was working full-time hours,

418
00:28:18,530 --> 00:28:24,235
but I was only working part-time
productivity compared to what

419
00:28:24,235 --> 00:28:27,939
the other physicians,
what a typical full-time physician

420
00:28:27,972 --> 00:28:33,878
the productivity expectations
and the schedule, the call schedule.

421
00:28:33,878 --> 00:28:36,915
I had accommodations, actually.
I was very lucky.

422
00:28:36,948 --> 00:28:42,220
I had accommodations throughout residency
for the call schedule because, again,

423
00:28:42,220 --> 00:28:46,991
physically, because of the disability, because 
of the fatigue and the muscle weakness,

424
00:28:46,991 --> 00:28:50,962
I ended up having to approach my program

425
00:28:50,995 --> 00:28:54,866
directors and the chairman of the
department at my residency program.

426
00:28:54,899 --> 00:28:57,268
I said, I'm about to quit.

427
00:28:57,268 --> 00:28:59,137
I'm physically ready to drop.

428
00:28:59,170 --> 00:29:03,475
I can't go on like this.

429
00:29:03,475 --> 00:29:07,312
Luckily, I had a very good mentor
when I was a third-year medical

430
00:29:07,345 --> 00:29:10,482
student, and he gave me advice.

431
00:29:10,482 --> 00:29:14,185
I called him when I was about ready
to drop in residency, ready to quit.

432
00:29:14,219 --> 00:29:19,591
He said, Well, why don't you
approach your program director and see

433
00:29:19,624 --> 00:29:21,960
if there's something they can do to help?

434
00:29:21,960 --> 00:29:23,495
That surprised me.

435
00:29:23,528 --> 00:29:26,364
I never would have even thought
that I could ask for accommodations.

436
00:29:26,397 --> 00:29:30,602
I would never have had nerve,
or it just never even crossed my mind.

437
00:29:30,635 --> 00:29:33,438
I thought my career was going to be over.

438
00:29:33,438 --> 00:29:39,778
They miraculously ended up agreeing,
and they made it very easy.

439
00:29:39,778 --> 00:29:44,315
I didn't have any paperwork, didn't
have to go through filling out FMLA

440
00:29:44,349 --> 00:29:48,453
forms, didn't need a doctor's note
to say I needed it in writing.

441
00:29:48,453 --> 00:29:51,789
Of course, they could see.
I was riding around on a scooter.

442
00:29:51,789 --> 00:29:57,128
At that time,
I was able to get up and walk.

443
00:29:57,162 --> 00:30:01,733
I'm still in ambulatory wheelchair
user, so while I need the wheelchair, I'm

444
00:30:01,733 --> 00:30:04,569
much more reliant on the wheelchair now.

445
00:30:04,602 --> 00:30:07,939
I can only walk a very short distance.

446
00:30:07,972 --> 00:30:12,477
But back then, I was able to get up
out of the chair or the scooter

447
00:30:12,510 --> 00:30:15,613
I I used the scooter at the time
to ride around the hospital.

448
00:30:15,647 --> 00:30:19,918
But I could go in the hospital rooms
and clinic and do an exam on the patient.

449
00:30:19,918 --> 00:30:24,789
So all of the actual pertinent stuff that
we needed to do for training and to learn

450
00:30:24,823 --> 00:30:27,592
how to do physically, I was able to do.

451
00:30:27,625 --> 00:30:32,597
It was just the call schedule that was
too hard on my body, too fatiguing,

452
00:30:32,597 --> 00:30:36,968
because I had actually gone through
intern year doing all the same schedule.

453
00:30:37,001 --> 00:30:38,636
I didn't say anything.

454
00:30:38,636 --> 00:30:43,274
I never even brought up the need
for accommodations up until that point.

455
00:30:43,308 --> 00:30:48,546
Even as an intern, the only thing
I ever had to do was I had to find a spot

456
00:30:48,580 --> 00:30:50,848
to put my scooter at the hospital.

457
00:30:50,882 --> 00:30:54,219
Even then, I never officially
requested anything.

458
00:30:54,219 --> 00:30:59,224
I just picked a spot in the intern
the call room that first year,

459
00:30:59,257 --> 00:31:01,492
and I just put it there myself.
I didn't ask anybody.

460
00:31:01,492 --> 00:31:04,562
It didn't really have any...
There was no formal to do about it.

461
00:31:04,596 --> 00:31:08,199
Of course, no one's going to touch it.
Everybody just left it alone.

462
00:31:08,199 --> 00:31:14,339
Then you would go home and have this
post-call day, but you were coming home

463
00:31:14,339 --> 00:31:18,243
working from a 28-hour shift,
and you would have the afternoon

464
00:31:18,276 --> 00:31:22,947
to sleep and rest, and then you would
have to go back to work the next day.

465
00:31:22,981 --> 00:31:26,251
That was when I got to the breaking point
at the end of my first year,

466
00:31:26,284 --> 00:31:32,090
transitioning into the start of the
actual formal neurology residency year.

467
00:31:32,123 --> 00:31:35,860
That was when I was to the dropping
point, and that was when I approached

468
00:31:35,894 --> 00:31:39,330
my neurology program directors
and the chairman of the department.

469
00:31:39,364 --> 00:31:42,934
And there's also this sense of...
you have to compensate

470
00:31:42,934 --> 00:31:46,638
when you have a disability, 
you have to work harder.

471
00:31:47,605 --> 00:31:49,874
I mean, I don't want to say I
work harder than everybody else,

472
00:31:49,874 --> 00:31:53,578
but you have to prove yourself.

473
00:31:53,611 --> 00:31:55,046
And I felt that way anyway.

474
00:31:55,079 --> 00:31:59,450
I've always had this chip
on my shoulder so I always

475
00:31:59,484 --> 00:32:02,787
felt like it was this weakness.

476
00:32:02,820 --> 00:32:06,658
Having the scooter, the mobility
aid, it always felt like

477
00:32:06,691 --> 00:32:08,226
this elephant in the room.

478
00:32:08,259 --> 00:32:13,431
I guess that really motivated me to make
sure that I did a good job and I learned

479
00:32:13,464 --> 00:32:15,233
what I was supposed to be learning.

480
00:32:15,233 --> 00:32:18,569
I got the evaluations
that I got during intern year.

481
00:32:18,603 --> 00:32:23,107
I guess it's, again, I pushed myself

482
00:32:23,141 --> 00:32:25,977
that hard and I proved that I really

483
00:32:26,010 --> 00:32:29,180
wanted to be there and I proved that
I was capable of being a hard worker.

484
00:32:29,213 --> 00:32:35,286
But my body, medical condition physically,
was not going to allow it to continue.

485
00:32:35,320 --> 00:32:37,488
But at this time, you were still...

486
00:32:37,522 --> 00:32:43,761
You were trying to get back
to your Steinway too, right?

487
00:32:43,795 --> 00:32:45,063
Yeah. Well, that was,

488
00:32:45,063 --> 00:32:47,832
yes, when we moved here 
back to being out

489
00:32:47,865 --> 00:32:52,770
of training and when I was working,
then this was a couple of years after I

490
00:32:52,804 --> 00:32:55,773
graduated fellowship, when we moved 
to where I'm working now

491
00:32:55,773 --> 00:32:59,243
that, yes, we did finally end up 
getting the Steinway

492
00:32:59,277 --> 00:33:05,683
is what I have here at home is what I'm
playing on my videos on social media.

493
00:33:05,717 --> 00:33:10,054
During that time working,
the beginning years of working

494
00:33:10,054 --> 00:33:14,158
as an attending, I eventually just
did get to the point where I couldn't

495
00:33:14,192 --> 00:33:15,927
raise my arms to play anymore.

496
00:33:15,960 --> 00:33:18,696
And so I did stop playing.

497
00:33:18,696 --> 00:33:23,267
But again, it was like that sense
of, oh, my gosh, I can't lose piano.

498
00:33:23,267 --> 00:33:28,773
So at the same time when I was knowing
in the back of my mind for mental health

499
00:33:28,773 --> 00:33:33,444
reasons, I needed to start accepting
the fact that I was going

500
00:33:33,478 --> 00:33:36,114
to lose piano out of my life.

501
00:33:36,114 --> 00:33:38,416
I decided anyway to build myself.

502
00:33:38,416 --> 00:33:40,151
I came up with this harness design.

503
00:33:40,184 --> 00:33:46,357
There's a metal frame that I came up with,
and I hooked up straps to it, so

504
00:33:46,391 --> 00:33:49,994
it supports my arms, dingling in the air.

505
00:33:50,028 --> 00:33:54,232
And so that facilitates me
being able to move around the keyboard.

506
00:33:54,265 --> 00:34:00,538
My husband ended up figuring
out how to make it.

507
00:34:00,571 --> 00:34:05,810
It's a very kind of like duck tape together.

508
00:34:05,843 --> 00:34:11,249
There's like zip ties and an elastic strap
from a fabric store and 

509
00:34:11,249 --> 00:34:13,951
a small dog harness that I 
wrap around my arms.

510
00:34:13,985 --> 00:34:17,655
It's just hanging from a metal frame
that's zip-tied to the piano bench.

511
00:34:17,655 --> 00:34:19,257
I mean, very rinky-dink stuff.

512
00:34:19,290 --> 00:34:21,592
Nothing fancy or expensive at all.

513
00:34:21,592 --> 00:34:22,794
These are just very cheap materials.

514
00:34:22,827 --> 00:34:24,962
They just get anywhere.

515
00:34:24,996 --> 00:34:26,364
But anyway, he built it.

516
00:34:26,397 --> 00:34:30,068
But still, How did you...

517
00:34:30,101 --> 00:34:33,805
Okay, let's try to figure out
what works, and let's just

518
00:34:33,838 --> 00:34:38,109
bring a frame and some straps.

519
00:34:38,142 --> 00:34:41,779
Between the moments
where you stopped and the moment

520
00:34:41,813 --> 00:34:43,981
where you stopped and the moment
where you said, Okay, I need this frame.

521
00:34:44,015 --> 00:34:45,583
How long was it?

522
00:34:45,616 --> 00:34:48,953
Probably a couple of years.

523
00:34:48,953 --> 00:34:49,487
Okay.

524
00:34:49,520 --> 00:34:51,956
Yeah, I mean, probably a couple of years.

525
00:34:51,956 --> 00:34:56,527
But the way I figured out, I think being
a neurologist and understanding

526
00:34:56,561 --> 00:35:01,666
the neuroanatomy especially
the muscles, the specific muscle groups.

527
00:35:01,699 --> 00:35:05,570
I knew exactly what muscles
were weak and the exact movements

528
00:35:05,603 --> 00:35:08,506
that I needed help to maintain my arms.

529
00:35:08,539 --> 00:35:14,645
And so that's how I came up with
the design of what the harness

530
00:35:14,679 --> 00:35:16,280
and the frame needed to be.

531
00:35:16,314 --> 00:35:21,119
Because in all my search, when I knew that
my arms were going and I was no longer

532
00:35:21,152 --> 00:35:27,358
going to be able to play naturally,
I had reached out to some local company

533
00:35:27,391 --> 00:35:30,828
who made an exoskeleton type

534
00:35:30,828 --> 00:35:35,199
for arms, to hold up arms for children.

535
00:35:35,199 --> 00:35:37,969
And so I actually did that.

536
00:35:38,002 --> 00:35:42,807
I went to the clinic here
in town, and they were very gracious

537
00:35:42,840 --> 00:35:45,309
and willing to make me the...

538
00:35:45,343 --> 00:35:48,112
It's like one of those for scoliosis,

539
00:35:48,146 --> 00:35:52,683
like a torso, a TLSO type frame.

540
00:35:52,717 --> 00:35:57,288
And then the attachments, they had this
metal frame, but that device actually

541
00:35:57,321 --> 00:35:58,523
wasn't able to help me, because -

542
00:35:58,523 --> 00:36:00,758
No, because then you don't move anymore.

543
00:36:00,791 --> 00:36:02,193
It was too limiting.

544
00:36:02,226 --> 00:36:04,195
Yeah, there was no movement.

545
00:36:04,228 --> 00:36:05,863
There was no lateral movement.

546
00:36:05,897 --> 00:36:08,633
And the way that it actually
held up my arms, it did not

547
00:36:08,666 --> 00:36:11,702
hold up my arms correctly.
It actually put my arms this way.

548
00:36:11,736 --> 00:36:13,337
And we don't play the piano this way.

549
00:36:13,371 --> 00:36:16,807
We're up with our elbows
like this in this type of a plane.

550
00:36:16,841 --> 00:36:21,479
We play the piano this way, where
the arms need to be bent like this.

551
00:36:21,512 --> 00:36:27,385
And so that device
failed to meet my needs.

552
00:36:27,418 --> 00:36:29,554
So that wasn't able
to help me with the piano.

553
00:36:29,587 --> 00:36:34,058
So that's what then I knew, okay,
I need to be able to figure out something

554
00:36:34,058 --> 00:36:38,362
to hold my arm in this position
because the specific muscle groups

555
00:36:38,396 --> 00:36:42,633
that's weak in me is especially
the shoulder rotator cuff muscles.

556
00:36:42,633 --> 00:36:45,970
So that encompasses the shoulder,
the deltoid muscle.

557
00:36:46,003 --> 00:36:48,639
That was probably
the first muscle that went.

558
00:36:48,639 --> 00:36:52,743
But it also encompasses the muscles
around your shoulder blade.

559
00:36:52,777 --> 00:36:55,846
So the external rotator.

560
00:36:55,880 --> 00:36:59,817
So the muscles that
turn your arm out that way.

561
00:36:59,850 --> 00:37:02,253
I can't do that.

562
00:37:02,286 --> 00:37:06,924
I have to push with my other hand
to make it turn this way

563
00:37:06,958 --> 00:37:08,192
and to hold in this position.

564
00:37:08,226 --> 00:37:13,030
Because my elbow flexion and extension, so
the bicep muscle and the tricep muscle,

565
00:37:13,064 --> 00:37:17,001
when your elbow is in this position,
I can hinge up and down

566
00:37:17,034 --> 00:37:18,469
like this at the elbow.

567
00:37:18,502 --> 00:37:25,343
And my wrist and my hands are completely
normal strength, full strength, luckily.

568
00:37:25,376 --> 00:37:26,410
Thank goodness.

569
00:37:26,444 --> 00:37:31,849
And so the small dog harnesses
that I have zip-tied, if you see from

570
00:37:31,882 --> 00:37:37,054
the videos, one cuff is here
and one cuff is above my elbow.

571
00:37:37,054 --> 00:37:42,360
And it's cuffed in a way, hanging
from the straps, that it holds my arms

572
00:37:42,393 --> 00:37:44,095
in this external rotation.

573
00:37:44,095 --> 00:37:49,100
But my finger strength,
my hand, grip, my wrist, flexion,

574
00:37:49,100 --> 00:37:53,170
extension, and all of the movement
that we have here, that is normal.

575
00:37:53,204 --> 00:37:57,074
My neurologist, she's surprised.

576
00:37:57,074 --> 00:38:00,978
She didn't know I played piano
until I started posting on social media.

577
00:38:00,978 --> 00:38:03,080
It's funny.

578
00:38:03,080 --> 00:38:06,417
There was a neurologist group
for women neurologists.

579
00:38:06,417 --> 00:38:08,085
They stumbled on my video.

580
00:38:08,119 --> 00:38:10,821
I came to an appointment and she was like,
Oh, you're famous on the internet.

581
00:38:10,855 --> 00:38:15,092
She had stumbled upon my video
and she's like, How are you playing?

582
00:38:15,126 --> 00:38:16,727
I was like, What is this?

583
00:38:16,761 --> 00:38:18,996
Then she was like, What?

584
00:38:18,996 --> 00:38:20,564
She held her hand up to my hand.

585
00:38:20,598 --> 00:38:22,633
Of course, everybody's
hand is bigger than mine.

586
00:38:22,667 --> 00:38:26,470
She's like, Oh, my gosh, how are you
playing with such small hands?

587
00:38:26,504 --> 00:38:31,809
When you started showing that you
must have had a lot of questions, right?

588
00:38:31,842 --> 00:38:37,715
You decided to go on Instagram
and show your story about the frame.

589
00:38:37,715 --> 00:38:41,619
How did you come up with this idea
of saying, Okay, let's go live

590
00:38:41,619 --> 00:38:45,156
on social media and show this?

591
00:38:45,156 --> 00:38:49,260
Well, I remember, of course, being in a...

592
00:38:49,293 --> 00:38:52,630
It was a horrible devastation.

593
00:38:52,663 --> 00:38:56,967
It's this grief when you're faced with

594
00:38:57,001 --> 00:38:59,670
this horrible news of your life changing

595
00:38:59,704 --> 00:39:04,375
and shifting from a healthy world

596
00:39:04,375 --> 00:39:07,812
to be an able-bodied person to shifting

597
00:39:07,845 --> 00:39:10,748
into this world of disability.
I think it's a completely different realm.

598
00:39:10,781 --> 00:39:12,883
I feel split as a person.

599
00:39:12,917 --> 00:39:16,754
I mean, it's a very bizarre feeling
that I've lived with my whole life.

600
00:39:16,754 --> 00:39:21,692
The shift in my self being able-bodied
all through high school and college

601
00:39:21,726 --> 00:39:23,828
and then starting in med school.

602
00:39:23,828 --> 00:39:27,765
So I know how painful it is to go through

603
00:39:27,798 --> 00:39:31,936
that process and grief and coping.

604
00:39:31,969 --> 00:39:36,073
I had that mentor in medical school.

605
00:39:36,073 --> 00:39:42,113
Also, as part of how he helped me so much
is he helped me get established

606
00:39:42,146 --> 00:39:43,347
with the therapist.

607
00:39:43,380 --> 00:39:46,250
And the therapist is who helped me

608
00:39:46,283 --> 00:39:51,889
learn how to cope and just face all of

609
00:39:51,922 --> 00:39:56,861
the difficulty, the mental,
the emotional difficulties.

610
00:39:56,894 --> 00:40:01,232
She learned - she taught me 
how to cope with that.

611
00:40:01,265 --> 00:40:05,870
So I started posting on social
media, one, because I guess I just

612
00:40:05,903 --> 00:40:12,209
wanted to help encourage other people
to show what's possible.

613
00:40:12,243 --> 00:40:18,048
And to show people with disabilities that

614
00:40:18,082 --> 00:40:22,319
you can dream, you can have a career.

615
00:40:22,420 --> 00:40:24,955
I became a doctor.

616
00:40:24,955 --> 00:40:26,724
I'm a musician.

617
00:40:26,757 --> 00:40:33,330
And so I wanted to show other people with
disabilities just to give a source of...

618
00:40:33,364 --> 00:40:36,700
Because for me, I didn't
have that when I was going through it.

619
00:40:36,700 --> 00:40:41,572
If I would have had another person
to see that, okay, life isn't over.

620
00:40:41,605 --> 00:40:45,509
There can still be a lot
of possibilities that you can do,

621
00:40:45,543 --> 00:40:49,747
you can achieve, if you want to.

622
00:40:49,780 --> 00:40:53,017
You have to put in the work to do it.

623
00:40:53,017 --> 00:40:58,622
But I didn't have a role model
like that, someone that I could turn to.

624
00:40:58,656 --> 00:41:03,194
Because traditionally, I feel like
society, not only the physical barriers

625
00:41:03,227 --> 00:41:06,864
of having a disability with just
being able to get a wheelchair to

626
00:41:06,897 --> 00:41:11,469
a public place, that's the physical side
of disability, of how it's limiting.

627
00:41:11,502 --> 00:41:16,941
But then there's the social construct of
the limiting factor of disability, where

628
00:41:16,974 --> 00:41:22,580
it's just this dichotomy of able-bodied
society and disabled community.

629
00:41:22,613 --> 00:41:27,818
And able-bodied general society

630
00:41:27,852 --> 00:41:33,757
sees disabled people, I guess,
with a certain stereotype.

631
00:41:33,757 --> 00:41:39,530
So there's not this representation
out in mainstream society where you see

632
00:41:39,563 --> 00:41:44,468
teachers with the physical
disability, doctors, musicians.

633
00:41:44,501 --> 00:41:51,242
Since posting on social media, I have
actually - many people have reached out

634
00:41:51,275 --> 00:41:56,514
through messages and commenting on the
videos that there's a whole world of us

635
00:41:56,514 --> 00:41:58,716
musicians with disabilities I never knew.

636
00:41:58,749 --> 00:42:00,317
I thought I was alone.

637
00:42:00,351 --> 00:42:02,186
That's the way I started.

638
00:42:02,219 --> 00:42:04,054
We are a lot.
I can tell you.

639
00:42:04,054 --> 00:42:06,323
There's a lot of musicians
with disabilities.

640
00:42:06,357 --> 00:42:09,193
That's wonderful and that's amazing.

641
00:42:09,193 --> 00:42:11,795
I think we need more representation.

642
00:42:11,795 --> 00:42:16,967
I like seeing you on social media because

643
00:42:17,001 --> 00:42:19,236
when I learned you were a doctor,

644
00:42:19,270 --> 00:42:25,442
in disability studies, in the academic
field, there is this opposition world

645
00:42:25,476 --> 00:42:28,679
between the medical and the social model.

646
00:42:28,679 --> 00:42:35,419
You are representing both the medical
and the social model and being an artist.

647
00:42:35,419 --> 00:42:38,989
When you do your videos,
you show how difficult it

648
00:42:39,023 --> 00:42:42,359
is to practice and how the piano...

649
00:42:42,393 --> 00:42:45,963
I love this part of one
of the conversations that

650
00:42:45,996 --> 00:42:47,197
you have frequently, actually.

651
00:42:47,231 --> 00:42:51,936
I'm taking one in November, for example,
where you were practicing something

652
00:42:51,936 --> 00:42:55,706
and you were saying,
But why do the piano factors make these

653
00:42:55,739 --> 00:42:59,643
pianos so big with such a big - 
can they do something 

654
00:42:59,643 --> 00:43:03,213
that would accommodate me and with 
my smaller hands and with my- 

655
00:43:03,213 --> 00:43:04,748
Yeah, narrower keys.

656
00:43:04,782 --> 00:43:06,951
Yes, I remember the video
you're talking about.

657
00:43:06,984 --> 00:43:10,554
Yeah, that was a big frustration
that this is all going through my mind.

658
00:43:10,554 --> 00:43:14,792
You were even saying these pianos
are built for big men

659
00:43:14,792 --> 00:43:17,161
like Rachmaninoff and Beethoven, with big hands.

660
00:43:17,161 --> 00:43:18,662
Yeah, a huge hands.

661
00:43:18,696 --> 00:43:19,697
Yeah, I remember that.

662
00:43:19,730 --> 00:43:22,833
Yeah, his hand is probably like double,
like two of my hands put together.

663
00:43:22,866 --> 00:43:25,235
It's probably the size
of Rachmaninoff's hand.

664
00:43:25,235 --> 00:43:30,507
But unfortunately, the modern piano
was made for keys to fit that hand.

665
00:43:30,541 --> 00:43:36,513
Actually, and just not having anything
to do with medical limitations, but just

666
00:43:36,513 --> 00:43:41,085
all classical pianists are
affected by the size when there's actually

667
00:43:41,118 --> 00:43:45,356
the PASK. There's this organization
that they're trying to advocate

668
00:43:45,356 --> 00:43:49,660
to incorporate these narrower
key options into the piano world.

669
00:43:49,693 --> 00:43:52,796
I don't remember the abbreviation
of what it stands for, but

670
00:43:52,830 --> 00:43:57,568
there's this PASK, is the organization

671
00:43:57,601 --> 00:43:59,803
that's trying to advocate for

672
00:43:59,803 --> 00:44:02,306
narrower key options for pianists.

673
00:44:02,339 --> 00:44:05,643
Because actually, when you look at the statistics, 

674
00:44:05,643 --> 00:44:10,014
females, the average handspan of 
a female can only reach a ninth.

675
00:44:10,047 --> 00:44:15,853
So the Bell-shaped Curve, when most women
fall in the realm of a ninth.

676
00:44:15,886 --> 00:44:20,491
And then there's this little overlap
where, again, the 10% of women,

677
00:44:20,524 --> 00:44:24,962
those are the problem, traditionally,
the ones who have the ability to go on

678
00:44:24,995 --> 00:44:29,733
and become famous concert pianists
that we know of, Yuja Wang,

679
00:44:30,034 --> 00:44:34,071
as an example, just one example,
there's many female concert pianists.

680
00:44:34,104 --> 00:44:39,810
But you have to have a certain handspan
size to be able to reach the repertoire

681
00:44:39,843 --> 00:44:43,614
that is required to be a concert pianist
playing these concertos 

682
00:44:43,614 --> 00:44:47,117
and everything else, advance that I can never...

683
00:44:47,151 --> 00:44:49,820
I can only dream about playing,
but never will be able to.

684
00:44:49,820 --> 00:44:54,692
I love the Polonaises, especially
Chopin's Heroic Polonaise

685
00:44:54,725 --> 00:45:00,964
in A-flat major, Liszt's La Campanella,
all of those famous pieces that

686
00:45:00,998 --> 00:45:03,400
every classical pianist can play.

687
00:45:03,434 --> 00:45:07,271
I will never be able to play that
because my handspan just isn't there.

688
00:45:07,304 --> 00:45:09,940
And the same thing with men,
the bell curve shape with men,

689
00:45:09,973 --> 00:45:14,678
there's this overlap of the 10 %
of men, this certain population of men

690
00:45:14,711 --> 00:45:16,713
who say that they can only reach a ninth.

691
00:45:16,713 --> 00:45:20,517
So that's small for a male hand size.

692
00:45:20,517 --> 00:45:25,089
And so statistically,
that's why when you look at the hand size,

693
00:45:25,122 --> 00:45:29,293
when you look at the population of 
people where the majority number

694
00:45:29,293 --> 00:45:33,864
of pianists fall,
the modern piano size is actually not

695
00:45:33,897 --> 00:45:38,936
serving the majority number of people
where their handspans fall.

696
00:45:38,969 --> 00:45:42,639
And of course, I'm in
the extremely smaller size

697
00:45:42,673 --> 00:45:48,278
I'm not even anywhere near close to
the size of the average female handspan.

698
00:45:48,278 --> 00:45:52,316
Those are the challenges that I face.

699
00:45:52,349 --> 00:45:56,553
It's way more handspan, width-wise,

700
00:45:56,553 --> 00:45:59,923
than even the average female hand size.

701
00:45:59,957 --> 00:46:03,727
Yeah, but then you also show
how you practice and how every day

702
00:46:03,760 --> 00:46:06,130
it gets better like everybody else.

703
00:46:06,163 --> 00:46:10,901
Practice your piano and every day,
you get a little bit better.

704
00:46:10,934 --> 00:46:16,907
Your Instagram channel is full
of either these videos where we

705
00:46:16,940 --> 00:46:18,876
see you practice or these videos

706
00:46:18,909 --> 00:46:25,182
where we see you in your context of life.

707
00:46:25,215 --> 00:46:27,918
I love that.

708
00:46:27,918 --> 00:46:29,720
I'm so glad.

709
00:46:29,753 --> 00:46:33,190
I'm glad that it resonates with you
and hopefully

710
00:46:33,190 --> 00:46:34,791
that it resonates with other people.

711
00:46:34,825 --> 00:46:41,398
Yeah, I heard because there was a couple
of videos where, being in the classical

712
00:46:41,398 --> 00:46:46,970
community, there's a certain minority
of elite of certain opinions that

713
00:46:47,004 --> 00:46:50,941
are hard, critical of other musicians.

714
00:46:50,974 --> 00:46:56,880
If you don't show the video in top performance, 

715
00:46:56,880 --> 00:47:00,851
performance level
quality playing, 

716
00:47:00,851 --> 00:47:02,686
it's like you're going
to get eaten alive.

717
00:47:02,686 --> 00:47:05,055
There was a couple of videos
where people were just, That is horrible.

718
00:47:05,055 --> 00:47:06,223
You're horrible.

719
00:47:06,256 --> 00:47:11,495
And they're criticizing the speed,
the tempo, and then the technique.

720
00:47:11,495 --> 00:47:14,698
I mean, everybody's got
an opinion There is this...

721
00:47:14,698 --> 00:47:21,271
One commenter mentioned that,
Hey, they appreciate the fact that I show

722
00:47:21,305 --> 00:47:24,908
normal life and how the real process is.

723
00:47:24,908 --> 00:47:31,381
It sounds not good and perfect
and performance level in the beginning.

724
00:47:31,415 --> 00:47:33,550
It's okay to show that.

725
00:47:33,584 --> 00:47:35,352
I'm glad that that resonates with you.

726
00:47:35,385 --> 00:47:37,454
I suggest you do you.

727
00:47:37,454 --> 00:47:41,658
And that you don't care about the others.

728
00:47:41,758 --> 00:47:48,232
No, It's great, but it's social media, so

729
00:47:48,265 --> 00:47:52,035
everybody has an opinion on everything.

730
00:47:52,069 --> 00:47:55,305
But yeah, no, I think it's fascinating.

731
00:47:55,339 --> 00:47:59,209
It's full of little details
of things that a pianist

732
00:47:59,243 --> 00:48:01,578
lives every day, so that's great.

733
00:48:01,612 --> 00:48:04,915
But especially seeing you
play with this frame, for me,

734
00:48:04,948 --> 00:48:07,517
it was like, That's really brilliant.

735
00:48:07,517 --> 00:48:12,456
It's really like, Okay, let's remove
the problem that is causing my arms

736
00:48:12,489 --> 00:48:18,662
to not hold and let's use the hands
and let's use a basic frame.

737
00:48:18,695 --> 00:48:20,631
I love that idea.

738
00:48:21,431 --> 00:48:23,967
I want to go a bit further on that.

739
00:48:24,001 --> 00:48:27,604
Do you have any projects
that you are working on,

740
00:48:27,638 --> 00:48:30,340
now that we know you on social media?

741
00:48:30,374 --> 00:48:34,678
Yeah.
I happen to be recording.

742
00:48:34,678 --> 00:48:37,080
I recorded, actually, I completed it.

743
00:48:37,114 --> 00:48:39,916
I worked on it for three days
this week, actually, so it's

744
00:48:39,950 --> 00:48:41,351
very coincidental timing.

745
00:48:41,385 --> 00:48:47,824
I'm very lucky that I met you and
we get to be having this conversation.

746
00:48:47,858 --> 00:48:51,361
But I recorded it, and I want to try to 

747
00:48:51,361 --> 00:48:55,999
release and make a public debut

748
00:48:56,033 --> 00:49:00,804
as a recording artist and release
the Chopin's Nocturne, Opus 9,

749
00:49:00,837 --> 00:49:05,575
number 2, in E-flat major,
to release it to streaming platforms.

750
00:49:05,609 --> 00:49:07,444
And that is a whole new ball game.

751
00:49:07,477 --> 00:49:09,947
I don't know anything about it.

752
00:49:09,980 --> 00:49:14,318
Again, YouTube, tutorials, I learned
and little snippets here and there from

753
00:49:14,351 --> 00:49:16,887
people's videos who explain the process.

754
00:49:16,920 --> 00:49:21,258
I had to delve into
more online tutorial videos about

755
00:49:21,291 --> 00:49:25,796
the audio engineering side of putting out

756
00:49:25,796 --> 00:49:29,800
a recording of decent quality.

757
00:49:29,800 --> 00:49:34,638
Words like compression and just even

758
00:49:34,671 --> 00:49:37,240
the microphone position and micing

759
00:49:37,274 --> 00:49:40,877
a piano is way more complicated than

760
00:49:40,911 --> 00:49:45,649
whatever, other settings potentially.

761
00:49:45,682 --> 00:49:50,554
Technically, I only have the one
mic, and so I'm not technically

762
00:49:50,554 --> 00:49:52,689
recording in stereo.

763
00:49:52,723 --> 00:49:55,792
Don't tell the streaming platforms that.

764
00:49:55,792 --> 00:50:00,497
Hopefully, they'll still accept it. 
But all of those things in all these terms

765
00:50:00,530 --> 00:50:03,100
that I just have no knowledge
of, and I don't know any about thing

766
00:50:03,100 --> 00:50:04,501
about the postproduction side.

767
00:50:04,534 --> 00:50:09,172
This is very much, I guess,
analogous to my harness.

768
00:50:09,172 --> 00:50:12,909
It's like this Ricky Dink,
zip tie situation.

769
00:50:12,909 --> 00:50:17,814
My brother is the one that got me
this microphone, this new one.

770
00:50:17,814 --> 00:50:22,018
He got it for my birthday last
year, which I was sitting around with not

771
00:50:22,018 --> 00:50:25,021
doing anything with it because
I didn't know how to use it.

772
00:50:25,055 --> 00:50:28,358
Anyway, when he visited, he came from
Thanksgiving, and he was like, 

773
00:50:28,358 --> 00:50:30,894
We need to get you set up with this microphone.

774
00:50:30,894 --> 00:50:35,699
We worked through it, we set it
up, made it work with my phone.

775
00:50:35,699 --> 00:50:39,669
It's one of those USB mics,
and it comes with an app.

776
00:50:39,703 --> 00:50:42,439
In the app, you have all
of these settings, 

777
00:50:42,439 --> 00:50:43,807
and that's what I didn't know anything about.

778
00:50:43,840 --> 00:50:48,879
I had to go to YouTube and look
for the online tutorial explanations.

779
00:50:48,912 --> 00:50:51,114
That's what I was doing this week.

780
00:50:51,148 --> 00:50:54,284
I was learning how to tweak
this and that, and then the amount

781
00:50:54,317 --> 00:51:00,290
of reverb and, I guess, the timbre
or how much the tone quality.

782
00:51:00,323 --> 00:51:02,392
All of that is through this app.

783
00:51:02,426 --> 00:51:03,727
I managed to complete that.

784
00:51:03,760 --> 00:51:05,762
I recorded for three days this week.

785
00:51:05,796 --> 00:51:11,635
The minute you push the record
button, it's like you forget how to play.

786
00:51:11,635 --> 00:51:14,938
You forget the piece all together.

787
00:51:14,971 --> 00:51:18,175
I mean, there's a bunch of starting
and stopping, and then playing halfway

788
00:51:18,175 --> 00:51:21,912
through, you suddenly forget what note
you're playing or you play a wrong chord,

789
00:51:21,912 --> 00:51:24,815
and then that throws you off,
and suddenly you forget where you are,

790
00:51:24,815 --> 00:51:27,884
or you use a wrong fingering, and 
that subconsciously throws you off

791
00:51:27,918 --> 00:51:30,053
so then you have a brain fart.

792
00:51:30,086 --> 00:51:31,988
But I managed to finish the recording.

793
00:51:32,022 --> 00:51:38,094
I took some photos yesterday for the album
cover, and I played around with it.

794
00:51:38,128 --> 00:51:42,666
It's me, Louann Carnahan.

795
00:51:42,699 --> 00:51:48,505
I'm releasing Chopin's Nocturne
in E flat major, opus 9 number 2.

796
00:51:48,538 --> 00:51:51,408
Coming to you on Spotify,
Apple Music, YouTube Music,

797
00:51:51,441 --> 00:51:53,543
and all the other streaming platforms.

798
00:51:53,577 --> 00:51:54,778
Live Monday. Hopefully.

799
00:51:54,811 --> 00:51:56,179
We will put the link.

800
00:51:56,213 --> 00:52:01,017
There is a resource page with this
We are going to be able to have

801
00:52:01,051 --> 00:52:04,321
the direct link and click and have your release.

802
00:52:04,321 --> 00:52:06,356
How exciting.

803
00:52:06,356 --> 00:52:10,360
Okay, I have one last question for you
before we complete this interview.

804
00:52:10,393 --> 00:52:15,765
It's about people who might have counted
on your life, have helped you

805
00:52:15,799 --> 00:52:20,337
figuring out some of your path,
especially in the musical path,

806
00:52:20,370 --> 00:52:24,674
I would say if you have one or two people

807
00:52:24,708 --> 00:52:29,012
to think of in the in that era,

808
00:52:29,045 --> 00:52:32,249
who would it be and why?

809
00:52:32,349 --> 00:52:33,250
Well, yeah.

810
00:52:33,283 --> 00:52:36,386
Starting off in the very beginning
of my life would be my mom.

811
00:52:36,419 --> 00:52:40,023
She's the one that put me in piano
lessons, as Asian parents do.

812
00:52:40,056 --> 00:52:43,760
But she is also the one
that would not let me quit.

813
00:52:43,760 --> 00:52:46,229
She was paying for
two years worth of lessons

814
00:52:46,263 --> 00:52:49,065
that were a complete waste of money.

815
00:52:49,099 --> 00:52:54,104
And good or bad, I'm not to say that 

816
00:52:54,104 --> 00:52:56,806
all children should be forced to do something

817
00:52:56,840 --> 00:52:58,208
that they're not enjoying at the moment.

818
00:52:58,241 --> 00:53:02,279
But for me, I was lucky
that it ended up working out, and it

819
00:53:02,279 --> 00:53:04,648
is what was needed to be in my life.

820
00:53:04,681 --> 00:53:09,152
Because if I would have quit
lessons, there would be no piano.

821
00:53:09,152 --> 00:53:13,557
And then I wouldn't have had piano
to fall back on to help me to learn to

822
00:53:13,590 --> 00:53:20,263
cope and grieve as I was going
through my own medical process.

823
00:53:20,297 --> 00:53:24,134
So my mom, first and foremost to her,
Thank you for not letting me quit piano

824
00:53:24,134 --> 00:53:27,571
when I was clamoring to quit,
when my brother was quitting.

825
00:53:27,604 --> 00:53:33,109
Then Aunt Judy, my surrogate parents,
when she forced me to practice,

826
00:53:33,143 --> 00:53:35,812
that's when I got better.

827
00:53:35,845 --> 00:53:42,152
For sure, she played a big role
in helping my progress.

828
00:53:42,185 --> 00:53:46,790
Then, of was my piano teacher,
Mrs. Minasian.

829
00:53:46,790 --> 00:53:48,458
I always called her.
I can't call her by her first name.

830
00:53:48,458 --> 00:53:50,193
She goes by Joyce.

831
00:53:50,193 --> 00:53:54,097
I've heard other people call her,
but that's actually her middle name.

832
00:53:54,097 --> 00:53:56,600
Her, I guess, name is Mary Minasian.

833
00:53:56,633 --> 00:53:58,068
I hope you don't mind.

834
00:53:58,101 --> 00:53:59,869
I'm sharing your name.

835
00:53:59,903 --> 00:54:04,841
But Mrs. Minasian, she was my
piano teacher that I took lessons from.

836
00:54:04,874 --> 00:54:06,676
I actually didn't start with her.

837
00:54:06,676 --> 00:54:09,012
I started lessons with someone else.

838
00:54:09,045 --> 00:54:14,217
I think I was with this first teacher for
maybe six months or something like that.

839
00:54:14,251 --> 00:54:18,054
But my mom, because in her circle
of friends, her Asian friends,

840
00:54:18,054 --> 00:54:22,225
their teacher was Mrs. Minasian.

841
00:54:22,259 --> 00:54:23,760
So my mom changed me over to her.

842
00:54:23,793 --> 00:54:26,696
And she was the one
that I studied with from age six

843
00:54:26,730 --> 00:54:28,865
to my high school graduation.

844
00:54:28,898 --> 00:54:31,301
I graduated high school when I was 17.

845
00:54:31,334 --> 00:54:32,502
I have her to thank.

846
00:54:32,535 --> 00:54:36,940
My teacher just gave me such a good
foundation and piano technique that I

847
00:54:36,973 --> 00:54:40,343
don't struggle with those things,
how to maneuver, how to play arpeggios,

848
00:54:40,343 --> 00:54:45,015
how to play trills, how to play scales,
The only thing is I struggle with octaves

849
00:54:45,048 --> 00:54:46,716
because my hands don't reach.

850
00:54:46,716 --> 00:54:51,254
So there is no point of perfecting octaves
because I just can't play pieces

851
00:54:51,288 --> 00:54:53,156
that play repetitive fast octaves.

852
00:54:53,156 --> 00:54:56,092
So that is, I guess, one technique

853
00:54:56,092 --> 00:55:01,898
that I don't have any mastery level of.

854
00:55:01,898 --> 00:55:07,837
But yeah, I cannot speak
highly enough of my piano teacher,

855
00:55:07,837 --> 00:55:10,140
and she taught me how to learn.

856
00:55:10,173 --> 00:55:13,977
Writing and fingering,
In the very beginning,

857
00:55:14,010 --> 00:55:15,412
it's a very painstaking process.

858
00:55:15,445 --> 00:55:17,814
When I sit down to look at
a piece for the first time,

859
00:55:17,847 --> 00:55:23,553
it can take hours or something
as you're working your way through it.

860
00:55:23,553 --> 00:55:26,723
And then you change fingerings,
you play it around and you figure out

861
00:55:26,756 --> 00:55:27,857
what works and what doesn't work.

862
00:55:27,857 --> 00:55:32,228
And then even as you play it longer
and you get it faster, closer

863
00:55:32,228 --> 00:55:34,230
to speed, then you find out that
that fingering doesn't work.

864
00:55:34,264 --> 00:55:36,099
So I'm constantly changing.

865
00:55:36,132 --> 00:55:40,136
Then practicing hands separate,
putting hands together, dynamics,

866
00:55:40,170 --> 00:55:42,472
all of that musicality stuff.

867
00:55:42,505 --> 00:55:47,510
I mean, all of that process, she just
gave me such a tremendous foundation

868
00:55:47,544 --> 00:55:52,749
that she set me up to be able
to be an adult lifelong learner.

869
00:55:52,782 --> 00:55:55,251
Well, we arrived at the end
of our interview.

870
00:55:55,285 --> 00:55:56,619
It was really fascinating.

871
00:55:56,653 --> 00:56:02,492
Thank you so much for sharing your story
and sharing your thoughts.

872
00:56:02,525 --> 00:56:08,031
We will share also your Instagram page
so that people can have a look

873
00:56:08,064 --> 00:56:10,900
at these amazing videos that you post.

874
00:56:10,934 --> 00:56:13,670
Cool.
Well, Thank you very much.

875
00:56:13,703 --> 00:56:19,809
Again, I'm so honored that you
reached out to me, like little me.

876
00:56:19,843 --> 00:56:24,748
I'm like nobody in the
realm of social media.

877
00:56:24,781 --> 00:56:27,484
I'm so honored that you reached out.

878
00:56:27,517 --> 00:56:31,020
I know I took probably
a month to get back to you.

879
00:56:31,020 --> 00:56:33,156
I know you originally
reached out in December,

880
00:56:33,189 --> 00:56:36,893
but I thank you for being patient
and that you didn't give up on me.

881
00:56:36,893 --> 00:56:42,132
You were so kind and still responsive
and wanting to have me on.

882
00:56:42,165 --> 00:56:46,069
But I saw your email and I
was like, Oh, my gosh, wow.

883
00:56:46,102 --> 00:56:49,472
That's an honor.
It's an honor.

884
00:56:49,472 --> 00:56:50,573
Thank you so much.

885
00:56:50,607 --> 00:56:56,880
Well, have a fantastic day
and good luck with the release.

886
00:56:56,913 --> 00:56:58,948
Enjoy.

887
00:56:58,948 --> 00:57:02,185
Thank you so much. It was very nice meeting you.

888
00:57:02,185 --> 00:57:02,919
Thank you.

889
00:57:02,952 --> 00:57:04,554
Have a good day.

890
00:57:04,554 --> 00:57:05,855
Bye

891
00:57:07,223 --> 00:57:12,362
♪ Closing theme music ♪
